1. Patients launch a $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
Lessons from ME/CFS: Finding Meaning in the Suffering
If you're aware of my previous articles here at Phoenix Rising then it's pretty clear that I don't generally spend my time musing upon the philosophy of the disease. I find it better to spend my time reading research and trying my best to break it down to its core elements and write...
Discuss the article on the Forums.

The FAQ that should never be necessary

Discussion in 'General ME/CFS Discussion' started by Roy S, Dec 27, 2012.

  1. Roy S

    Roy S former DC ME/CFS lobbyist

    Messages:
    427
    Likes:
    401
    Illinois, USA
    The FAQ that should never be necessary


    Quote

    Here is a quote:
    I cannot be washed, cannot raise my head, cannot have company, cannot be lifted from bed, cannot look out of the window, cannot be touched, cannot watch television or listen to music - the list is long.​
    There are thousands of other quotes that could be used instead.


    FAQ

    Here is a FAQ. It should never be necessary.
    I do not like posting it. I might remove it. You may still repost this post elsewhere verbatim if you want (even if I don't remove it).
    She was exaggerating or faking

    She died.
    But it was "secondary gain"!

    Dead.
    But it was "catastrophizing"!

    Dead.
    But it was "illness beliefs"!

    Dead.
    But it was "deconditioning"!

    Have you ever gotten out of shape? Did you die?
    But it was "laziness"!

    Dead.
    But it was "ambition"!

    Dead.
    But it was "a disorder of effort perception"!

    Dead.
    But it was "characterized by exertion issues"!

    Dead.
    But it was "push / crash cycle"!

    Dead.
    But "treadmill studies will get to the bottom of it"!

    Dead.1
    But it is "characterized by fatigue, headaches, sleep disturbance and several other symptoms"

    Describing a mild hangover helps you how?
    === But "the mild sufferers I know only have a few symptoms like that"!

    For the rest of the blog see here.
    Merry likes this.
  2. Merry

    Merry Senior Member

    Messages:
    1,357
    Likes:
    607
    Columbus, Ohio, USA
    Roy S, if you are able, could you please edit the FAQ so that the FAQ question or topic is formatted differently from Samuel's answer, perhaps with the FAQ topic bolded. Also maybe separate topics with spaces. Thank you.
  3. Roy S

    Roy S former DC ME/CFS lobbyist

    Messages:
    427
    Likes:
    401
    Illinois, USA
    Does that look okay now?
  4. Merry

    Merry Senior Member

    Messages:
    1,357
    Likes:
    607
    Columbus, Ohio, USA
    Roy S, thanks for reformatting. It is easier to read than previously. Sorry if that effort used up your energy for the day. :( Thanks for posting in the first place.
  5. GracieJ

    GracieJ Senior Member

    Messages:
    428
    Likes:
    681
    Utah
    Please leave this up. Please, please, please. Thank you for sharing. Just powerful.
  6. alex3619

    alex3619 Senior Member

    Messages:
    6,661
    Likes:
    9,784
    Logan, Queensland, Australia

See more popular forum discussions.

Share This Page