Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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The Family Member ME/CFS Prevalence Poll Take II

Discussion in 'General ME/CFS News' started by Cort, Aug 12, 2010.


Do one of the members of my extended family have an ME/CFS or ME/CFS Like condition?

  1. An immediate family member - father, mother, siblings, children has been diagnosed with ME/CFS

    121 vote(s)
  2. A significant other or partner has been diagnosed with ME/CFS

    17 vote(s)
  3. A secondary Relative - aunt, uncle, cousin, grandparents, etc. has been diagnosed with ME/CFS

    68 vote(s)
  4. A far flung relative has been diagnosed with ME/CFS

    14 vote(s)
  5. An immediate family member has mysterious fatigue but has not been diagnosed with ME/CFS

    81 vote(s)
  6. A significant other, etc. has mysterious fatigue not been diagnosed with ME/CFS

    17 vote(s)
  7. A secondary family member has mysterious fatigue but has not been diagnosed with ME/CFS

    40 vote(s)
  8. A far flung Relative has mysterious fatigue but has not been diagnosed with ME/CFS

    7 vote(s)
  9. No family members have been diagnosed with ME/CFS or have an undiagnosed fatiguing condition

    138 vote(s)
Multiple votes are allowed.
  1. justy

    justy Senior Member

    For the record:
    My biological mother, who I did not grow up with has been diagnosed with M.E. Her neice (my maternal cousin) has been diagnosed with M.E. I have M.E. My eldest daughter was sick at 15 and bedbound, at the same time that I had a severe relapse. She is much better now (age 21) but has poor stamina and other issues which have never resolved. Her onset, with slow but gradual recovery with no treatment in early 20's is very similar to my initial event 20 years ago. However I worry about her health as I have had a sevre relapse 6 years ago that I am still recovering from, after man y years of only being mildly affected.

    She seems to be going down a similar path. My youngest son is a worry also as he often feels very worn out and tired, especially from mental exertion - he finds piano lessons and practise exhausting at times - although he has no other symptoms currently.

    My eldest daughter and youngest son can both bend their thumbs back down to their wrists, and although I have never heard of this being an issue for people with EDS etc they also have both broken bones from minor falls. My daughter has broken one of her arms in four places on four separate occasions. My youngest son fell in a park last year and snapped two bones in his fore arm and had to have a bog operation to repair it, which had a long recovery time. My other two children who look very alike have no problems, no hypermobility and no broken bones ever.
  2. Mel9

    Mel9 Senior Member

    NSW Australia
  3. Mel9

    Mel9 Senior Member

    NSW Australia
    I answered nil members of family with cfs but there are two with bipolar
    rosie26 likes this.
  4. elliepeabody


    East of England
    No family members that I know of have been diagnosed with ME. However, there does seem to be an autoimmune theme in our family, Mother has psoriasis, and one of my brothers has Crohn's. My father had schizophrenia (I read some research recently that suggested an autoimmune link). Another brother possibly has BXO although no definite diagnosis yet. Sister has thyroid problems. Not a healthy family!

    Oh meant to add, one of my nephews has hypermobility in some of his joints (I have this but only in my index fingers)
  5. Maria1

    Maria1 Senior Member

    Interesting- my late brother had an undiagnosed psychotic disorder, most likely bipolar. I have a cousin with schizophrenia but no ME/CFS illnesses anywhere. I was thinking the other day about the energy surges and dips that go along with the mood cycles in bipolar.

    I got no further than thinking with ME/CFS the energy is low (without the mood) before my brain gave out.
    Mel9 and elliepeabody like this.
  6. stephen727


  7. JaimeS

    JaimeS Senior Member

    Mid-Ohio Valley, United States
    Sadly, there was no option for "two immediate family members have been diagnosed..."

    My mother, my older sister, and me.
    Tapanui 'Flu and Mrs Sowester like this.
  8. Mrs Sowester

    Mrs Sowester Senior Member

    My mother has classic undiagnosed mild ME. I'm moderate. My daughter is mild at present.
    Also my paternal uncle had ME in the 80s and has recently had a diagnosis of connective tissue disease.
  9. Manganus

    Manganus Senior Member

    Canary islands
    For some reason, maybe cultural, fatigue is not what we tell each other, but rather debilitating and severe pain.

    My great grandmother (i.e. my maternal grandmother's mother) got a progeny of thirteen reaching adult age.

    Clearly nine of us thirteen seem similarly affected, although not diagnosed with ME, including immune system issues and/or psychiatric issues and/or connective tissue problems (like endometriosis, slipped discs, symphysis pubis dysfunction and semi-chronic tendinitis).

    In our family, it seems like we suffer from a "weakness" that's inherited from our mothers (mitocondrias...?). The three that are offspring of her son seem healthier. (An other son took his own life at age 37, childless, and I know nothing more about him.)

    Of us nine, three qualified for invalid pension, approximately at age 50, two left their professions and became house wifes in their 40:ies, and one was self-employed with a bed in the room beside the office, that was used many times each day.

    (I my view, ME/CFS might be the "end result" or a final stage of all this, but what do I know?)
    *GG* likes this.

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