1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
Part 2: Brain Cells Making us Sick? Messed up microglia could be driving symptoms
Simon McGrath looks at theories that microglia, the brain's immune cells, might be overactive and driving the symptoms of ME/CFS and fibromyalgia.
Discuss the article on the Forums.

The Family Member ME/CFS Prevalence Poll Take II

Discussion in 'General ME/CFS News' started by Cort, Aug 12, 2010.


Do one of the members of my extended family have an ME/CFS or ME/CFS Like condition?

  1. An immediate family member - father, mother, siblings, children has been diagnosed with ME/CFS

    97 vote(s)
  2. A significant other or partner has been diagnosed with ME/CFS

    11 vote(s)
  3. A secondary Relative - aunt, uncle, cousin, grandparents, etc. has been diagnosed with ME/CFS

    57 vote(s)
  4. A far flung relative has been diagnosed with ME/CFS

    9 vote(s)
  5. An immediate family member has mysterious fatigue but has not been diagnosed with ME/CFS

    68 vote(s)
  6. A significant other, etc. has mysterious fatigue not been diagnosed with ME/CFS

    14 vote(s)
  7. A secondary family member has mysterious fatigue but has not been diagnosed with ME/CFS

    32 vote(s)
  8. A far flung Relative has mysterious fatigue but has not been diagnosed with ME/CFS

    5 vote(s)
  9. No family members have been diagnosed with ME/CFS or have an undiagnosed fatiguing condition

    95 vote(s)
Multiple votes are allowed.
  1. justy

    justy Senior Member

    For the record:
    My biological mother, who I did not grow up with has been diagnosed with M.E. Her neice (my maternal cousin) has been diagnosed with M.E. I have M.E. My eldest daughter was sick at 15 and bedbound, at the same time that I had a severe relapse. She is much better now (age 21) but has poor stamina and other issues which have never resolved. Her onset, with slow but gradual recovery with no treatment in early 20's is very similar to my initial event 20 years ago. However I worry about her health as I have had a sevre relapse 6 years ago that I am still recovering from, after man y years of only being mildly affected.

    She seems to be going down a similar path. My youngest son is a worry also as he often feels very worn out and tired, especially from mental exertion - he finds piano lessons and practise exhausting at times - although he has no other symptoms currently.

    My eldest daughter and youngest son can both bend their thumbs back down to their wrists, and although I have never heard of this being an issue for people with EDS etc they also have both broken bones from minor falls. My daughter has broken one of her arms in four places on four separate occasions. My youngest son fell in a park last year and snapped two bones in his fore arm and had to have a bog operation to repair it, which had a long recovery time. My other two children who look very alike have no problems, no hypermobility and no broken bones ever.

See more popular forum discussions.

Share This Page