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The Family Member ME/CFS Prevalence Poll Take II

Discussion in 'General ME/CFS News' started by Cort, Aug 12, 2010.

?

Do one of the members of my extended family have an ME/CFS or ME/CFS Like condition?

  1. An immediate family member - father, mother, siblings, children has been diagnosed with ME/CFS

    97 vote(s)
    31.6%
  2. A significant other or partner has been diagnosed with ME/CFS

    11 vote(s)
    3.6%
  3. A secondary Relative - aunt, uncle, cousin, grandparents, etc. has been diagnosed with ME/CFS

    57 vote(s)
    18.6%
  4. A far flung relative has been diagnosed with ME/CFS

    9 vote(s)
    2.9%
  5. An immediate family member has mysterious fatigue but has not been diagnosed with ME/CFS

    68 vote(s)
    22.1%
  6. A significant other, etc. has mysterious fatigue not been diagnosed with ME/CFS

    14 vote(s)
    4.6%
  7. A secondary family member has mysterious fatigue but has not been diagnosed with ME/CFS

    32 vote(s)
    10.4%
  8. A far flung Relative has mysterious fatigue but has not been diagnosed with ME/CFS

    5 vote(s)
    1.6%
  9. No family members have been diagnosed with ME/CFS or have an undiagnosed fatiguing condition

    95 vote(s)
    30.9%
Multiple votes are allowed.
  1. Cort

    Cort Phoenix Rising Founder

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    Raleigh, NC
    Does ME/CFS crop up in families? Take the poll and lets find out! If at least one member of the following groups has something that appears to be ME/CFS (mysterious fatiguing and debilitating disorder doctors cannot figure out) please check them.
  2. Cort

    Cort Phoenix Rising Founder

    Messages:
    7,025
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    439
    Raleigh, NC
  3. SOC

    SOC Moderator and Senior Member

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    USA
    Hey Cort,
    What if you have family members in more than one group? I checked 2 groups, and the checked groups showed up with votes at first, but now one group that I checked has 0 votes.
  4. Cort

    Cort Phoenix Rising Founder

    Messages:
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    Raleigh, NC
    Could it have been the old Poll that you took? I think I put you can vote for more than one selection - I'll check.

    It is a multiple choice poll. Has anyone else had this problem?

    Which group needs another vote? I may be able to put it in.
  5. SOC

    SOC Moderator and Senior Member

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    No, it was this one. I was the first voter, I think. I'll try to doublecheck, though...
  6. urbantravels

    urbantravels disjecta membra

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    Los Angeles, CA
    Oh geez, I'm lost. Too many confounding factors.

    None of my first-degree relatives have CFS - but then I live thousands of miles away from all of them. So even if I share genetic susceptibility, I may not share a (hypothetical) exposure to Pathogen X. Lot of difference between family members who live together and family members who see each other a few times a year!

    My ex-husband and ex-boyfriends all seem pretty healthy AFAIK. I'm concerned about the guys who were around at the time I was actively getting sick...but nothing I can do about that except watch and wait for more data about XMRV and perhaps the widespread availability of testing. :(

    Cort, you have a twin?? You could be part of a twin study!!
  7. Cort

    Cort Phoenix Rising Founder

    Messages:
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    439
    Raleigh, NC
    I was in one actually. A really extensive one about 10 years ago. THey found both twins seemed to have some metabolic problems I think.

    This poll is showing high rates of CFS within families! Much higher than the few studies would lead us to believe.
  8. SOC

    SOC Moderator and Senior Member

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    6,277
    USA
    And, so far, no correlation with significant others. We have some here, so they exist, but it looks like it might be small numbers. Interesting.
  9. urbantravels

    urbantravels disjecta membra

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    Los Angeles, CA
    It will be *really* interesting once XMRV testing becomes more widely available, to see if intimate partners of PWCs actually do have XMRV without having become sick.
  10. Tembo

    Tembo Australia

    Messages:
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    Likes:
    10
    CFS is quite rampant in our family - my mother - her brother and two sisters all suffer debilitating CFS/ME - and interesting to note the 5th sibling is fit and healthy actually lives in a different county - makes me wonder about transmission?
    I suffer from it as does my sister and we have 2 cousins that are looking very suspect too. So 6 definitely and another 2 maybe.
    Allyson likes this.
  11. Frickly

    Frickly Senior Member

    Messages:
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    35
    Texas
    I think this poll would tell us more if it was broadened to autism, cfs, fibro, ms, gwi, lyme, alzheimers (too tired to spell check) and even bipolar disorder. I wonder if we all have a common denominator that manifests itself in different ways? My family has lyme, autism, cfs, bipolar, adhd, ocd and tourettes. Yes...we are really screwed up. :)
  12. Dolphin

    Dolphin Senior Member

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    Cort can you edit the link to: http://www.forums.aboutmecfs.org/sh...-with-ME-CFS-Blood-versus-non-blood-relatives - I posted the initial thread earlier but don't know what happened to it.
  13. taniaaust1

    taniaaust1 Senior Member

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    Sth Australia
    I find that aspect comparision interesting too.. certainly genetic component there (ive always believed that). Seems partners are far less at risk then ones own family.
  14. taniaaust1

    taniaaust1 Senior Member

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    Sth Australia
    Interesting thought.
  15. Stone

    Stone Senior Member

    Messages:
    371
    Likes:
    6
    NC
    This is a great poll. I would have wished though that there were questions about how many have MULTIPLE immediate family members with CFS, and how many have MULTIPLE secondary family members, etc. The poll does not differentiate between those who have one family member affected or many family members affected. It could be an eye-opener. I have 3 immediate family members diagnosed, bringing the total diagnosed immediate family members to 4. I also have 2 cousins diagnosed as well. Also, if what I've read of the statistics on early death in CFS are true, you may pick up more accurate information if both living and deceased persons were included, or are they?
    Allyson likes this.
  16. usedtobeperkytina

    usedtobeperkytina Senior Member

    Messages:
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    185
    Clay, Alabama
    I find this poll interesting.

    Tina
  17. ggingues

    ggingues $10 gift code at iHerb GAS343 of $40

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    Concord, NH
    Voted today, I find this poll interesting.
  18. leaves

    leaves Senior Member

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    I dont think it is genetic but that there is vertical transmission mostly
  19. caledonia

    caledonia

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    Cincinnati, OH, USA
    I have 2 other immediate family members affected. One living, one deceased. Wish I could reflect that in the poll.
  20. Stone

    Stone Senior Member

    Messages:
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    NC
    I don't understand what you're trying to say. Can you rephrase or elaborate what you mean? What 10 words are you referring to? What are you yada-yada-ing? Lost, sorry.

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