Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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The Conversation US: How a study about Chronic Fatigue Syndrome was doctored

Discussion in 'General ME/CFS News' started by AndyPR, Mar 22, 2017.

  1. AndyPR

    AndyPR Senior Member

    http://theconversation.com/how-a-st...-was-doctored-adding-to-pain-and-stigma-74890

    Article by Steven Lubet, Professor of Law and signatory to the recent open letter on PACE.
     
    moosie, J.G, MEMum and 53 others like this.
  2. Webdog

    Webdog Senior Member

    :rofl:
     
    Mary, moosie, Snow Leopard and 37 others like this.
  3. Esther12

    Esther12 Senior Member

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    So much PACE stuff is coming out at the moment! NYT piece, Collins NIH blog, Wilshire response to Sharpe, Kindlon harms paper, Australian Guardian piece... need... time... to... *gasp*... breathe.
     
    Mary, Barry53, MEMum and 26 others like this.
  4. AndyPR

    AndyPR Senior Member

    How dare he, the brute... ;)
     
    MEMum, 2kidswithME, MeSci and 15 others like this.
  5. trishrhymes

    trishrhymes Senior Member

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    Outstanding article. I think this might be the one i print off to give to people who ask or make wrong assumptions. Also need one with summary of biomedical research to go with it. Any suggestions?
     
    moosie, MEMum, Laelia and 6 others like this.
  6. Keela Too

    Keela Too Sally Burch

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    The 101 signatures letter
    Tom et als reply to the PACE authors' reply ....
    And this article.

    3 very strong pieces, that are accessible to most.
     
    MEMum, Laelia, Jan and 10 others like this.
  7. JoanDublin

    JoanDublin Senior Member

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    MEMum likes this.
  8. Alvin2

    Alvin2 If humans were rational...

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    Confirmation bias meets reality :(
     
    MEMum likes this.
  9. Barry53

    Barry53 Senior Member

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    This is feeling like a goood week :). The first para sums it up ...

     
  10. JoanDublin

    JoanDublin Senior Member

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    PhoenixDown and trishrhymes like this.
  11. trishrhymes

    trishrhymes Senior Member

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    Thanks, @JoanDublin, this looks very useful and I shall certainly keep a copy. I was thinking of something shorter and easier to read. Maybe I'll use the recent New Scientist piece. Anyway, this is off topic for this thread, so I won't ask for more responses.
     
    MEMum likes this.
  12. Yogi

    Yogi Senior Member

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  13. Yogi

    Yogi Senior Member

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    original tweet
     
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  14. Barry53

    Barry53 Senior Member

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    I wonder when the BBC will pick up on all this kicking off, and what their take on it will be? And how they might attempt to explain only ever reporting the stories spoon fed to them by the SMC, rather than doing real investigative journalism (like they used to once upon a time), and proactively look for the real stories behind and around the ones suspiciously placed in front of their noses. I used to have huge respect for the BBC's investigative journalism.
     
    Last edited: Mar 23, 2017
    MEMum, dangermouse, Yogi and 10 others like this.
  15. Kati

    Kati Patient in training

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    PennyIA, Hutan, dangermouse and 18 others like this.
  16. Kati

    Kati Patient in training

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    Tweeted by David Tuller:

     
    MEMum, dangermouse, Jan and 14 others like this.
  17. slysaint

    slysaint Senior Member

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    I've been sending them and a number of other tv news people all relevant info and links as they've cropped up(for months); apart from initial responses to say thanks, have had no definite replies.
    Unless my emails are now going directly into their deleted/spam folders they all know what's been going on.
     
    Cohen2, Countrygirl, MEMum and 8 others like this.
  18. Solstice

    Solstice Senior Member

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    Posted this on a dutch newsforum. Wanted to relate this to some quotes about the dutch Fitnet-trial. But I can't quite figure out how yet. Anyone here that can help? I think it should include the results announced by the dutch team and one or more quotes about it having a null result at long term follow up. But dunno where to look and search-engines aren't of much help right now. Bit foggy too.
     
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  19. Esther12

    Esther12 Senior Member

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    Is this of use? http://link.springer.com/article/10.1007/s00431-013-2234-x
     
    Solstice and Barry53 like this.
  20. Yogi

    Yogi Senior Member

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    MEMum, dangermouse, Barry53 and 8 others like this.

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