1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
AVIVA Semi-Finals: National ME/FM Action Network is competing for $100,000
The National ME/FM Action Network in Canada is competing for $100,000 for biomedical research of ME and FM in the Aviva Community Fund contest. With thanks to all who helped, they made it through the first round of voting into the Semi-Finals.
Discuss the article on the Forums.

The BIG CHASE: funding US ME/CFS non-profits

Discussion in 'Action Alerts and Advocacy' started by Frank, Dec 1, 2010.

  1. Tuha

    Tuha Senior Member

    Messages:
    822
    Likes:
    985
    so we will have more than 2 weeks to chose the organisations
     
  2. frenchtulip

    frenchtulip Senior Member

    Messages:
    552
    Likes:
    341
    New Eligibility Requirements

    http://apps.facebook.com/chasecommunitygiving/

    Am I reading this right? The contest is targeting charities with operating expenses between $1,000,000 and $10,000,000. So the nonprofits on our list are all too small. The WPI and the CAA would perhaps qualify.
     
  3. Sasha

    Sasha Fine, thank you

    Messages:
    8,805
    Likes:
    8,253
    UK
    Sounds like that to me, tulip. That might bring in the university-linked labs (Dr Klimas's and maybe the Pacific Fatigue Labs) since their issue was that the ME/CFS bits are part of the university's whole thing.
     
  4. Cort

    Cort Phoenix Rising Founder

    Messages:
    7,025
    Likes:
    441
    Raleigh, NC
    That sucks...What do non-profits between 1,000,000 and 10,000,000 care about $25K...Its the smaller non-profits that really need that kind of money..I don't get it.

    We really need $ like that. That would have made a huge difference to us - and I daresay to the community.
     
  5. Cort

    Cort Phoenix Rising Founder

    Messages:
    7,025
    Likes:
    441
    Raleigh, NC
    Got some good news. Chase will do a program for small non-profits later on in the year...(whew!). That's only way PR can get that much money it appears...

     
  6. frenchtulip

    frenchtulip Senior Member

    Messages:
    552
    Likes:
    341
    That's great news, Cort! My heart sank when I saw those new rules. But for now, maybe we could get money for the WPI or the CFIDS Association. I sent a message to the WPI and posted info on the CFIDS Facebook page. I am also wondering if the National Fibromyalgia Association might qualify this time. If the Pacific Lab or Dr. Klimas' lab could benefit, that would be wonderful, too.
     
  7. Frank

    Frank Senior Member

    Messages:
    848
    Likes:
    8
    Europe
    Ok hopefully we get at least WPI and CAA in contest. I'm ready to do some tutorial and website work.
     
  8. frenchtulip

    frenchtulip Senior Member

    Messages:
    552
    Likes:
    341
    The Chase Community Giving site on Facebook is now open for charities to set up.
    http://www.facebook.com/#!/ChaseCommunityGiving?sk=app_162065369655
    If you do a search for charities, you'll find that the CFIDS Association and the WPI are both listed in their data bank. I guess we need to find out if these charities actually want to participate and if they meet the eligibility requirements. If so, we would need charity administrators for the contest pages. I'm not sure whether the administrator would need to be someone on-staff or if the each charity could designate a person outside the organization to serve as administrator. I will be busy in the next several days, there are about 16 days before voting begins.
     
  9. frenchtulip

    frenchtulip Senior Member

    Messages:
    552
    Likes:
    341
    I did send a couple of emails to the WPI about the spring contest. I haven't heard back, but did see something on Facebook that made me think that Andrea is aware of the spring contest. Hopefully, the WPI has entered. I posted a message about the contest on the CFIDS Assn. Facebook page some time back. Kim made a comment, but I'm not sure whether they are interested in entering. With their small staff, it might be impossible to devote time to the contest--unless they designated a non-staff charity administrator who could do most of the work. There are nine days left before voting begins.
     
  10. frenchtulip

    frenchtulip Senior Member

    Messages:
    552
    Likes:
    341
    Good news! I just heard back from the WPI. They are working on the Community Chase Giving project right now. It will be so great if they win!!!
     
  11. Tuha

    Tuha Senior Member

    Messages:
    822
    Likes:
    985
    I think this year it will be more difficult than the last one. There will be big organisations with big support groups - so we have to do bigger effort than the last year to get some money for our organisations.
    I found on internet a site with a lot of cfs organisations (their adresses and contacts).
    http://www.mecfsforums.com/wiki/Organizations_for_ME/CFS

    What do you think about to contact them and ask them if they can encourage their members to vote - they can make a small publicity on their web sites/ face book sites or most of them have a mailing list of their members so they can send them an email about the competition.
     
  12. frenchtulip

    frenchtulip Senior Member

    Messages:
    552
    Likes:
    341
    Yes, I think it will be harder this time. Tuha, your idea of contacting the list of ME/CFS organizations is a great one. We could divide the list into parts and several of us could work contacting organizations. I would definitely be willing to take a portion of the list. I couldn't remember whether persons from outside the U.S. could vote, but in checking the rules, I find that they can. I think the WPI has a real shot at winning.
     
  13. Tuha

    Tuha Senior Member

    Messages:
    822
    Likes:
    985
    The last year also people from outside the US could vote. I just checked the list of ME/ CFS organisations and if I count good there are almost 150. frenchtulip, i would join you with contacting the organisations. I think if we would find 10 other people it would be great - everyone could take 15 organisations. so lets wait some more days to see if someone want to help.

    With this activity I have some questions - do we already know which organisations fit all the conditions?
    would we start to contact the organisations slowly or do we wait till the begining of the competition?
     
  14. Andrew

    Andrew Senior Member

    Messages:
    1,980
    Likes:
    1,273
    Los Angeles, USA
    I'm getting confused reading this thread. At the beginning is says WPI is not eligible. I almost gave up. But then kept looking From what I can see, they are eligible. Maybe we need a new thread. Or edit the first message and have a link to the current info, simply stated.
     
  15. Sasha

    Sasha Fine, thank you

    Messages:
    8,805
    Likes:
    8,253
    UK
    WPI are in the CHASE contest!

    Hi Andrew - when the thread began, we were assuming that the rules would be like last time and that the WPI would therefore be too big to enter - but recently the rules were published for the latest contest and they're different, making the WPI eligible.

    I just got the following email from the WPI asking for support in the contest. We should think about how to generate the maximum possible support, with a clear explanation for the brain-fogged of what to do, whether it's daily voting, etc.

     
  16. Andrew

    Andrew Senior Member

    Messages:
    1,980
    Likes:
    1,273
    Los Angeles, USA
  17. Dolphin

    Dolphin Senior Member

    Messages:
    6,872
    Likes:
    6,165
    I think some of them wouldn't have had a turnover of $1m. Do people know if the WPI or the CAA (I know not everyone (or less) will vote for them) qualify. I don't live in the US so I'm not as au fait as I imagine others are regarding where to check such details.
     
  18. frenchtulip

    frenchtulip Senior Member

    Messages:
    552
    Likes:
    341
    Dolphin, I just did a check to see if smaller organizations are in the Chase Facebook listing of charities. I found the New Jersey Chronic Fatigue Syndrome Association, which was in the competition for smaller nonprofits last time. Also, the American Cancer Society headquartered in Atlanta, GA is listed there. I think it must be a listing of all charities found at Guidestar.

    The WPI is in the competition. I received the same email from the WPI that Sasha posted above and emailed them to see if we have permission to use their email when we contact other ME/CFS organizations asking for their help with voting. The WPI responded saying they would love to have our help and that we may in fact use their email.
     
  19. Dolphin

    Dolphin Senior Member

    Messages:
    6,872
    Likes:
    6,165
    Ok. I received the same mail and have already forwarded it to a list. However, I would still like to know for definite whether the WPI and the CAA qualify before I make a huge effort asking people. I imagine it probably isn't too hard to check (if one knows where to check) on the financial returns for the qualifying year.
     
  20. frenchtulip

    frenchtulip Senior Member

    Messages:
    552
    Likes:
    341
    Dolphin, you can check financial info for the WPI at www.guidestar.org. Do a search for the Whittemore Peterson Institute and then click on 990 forms from IRS. You have to register to access the info. I think the WPI has probably been very careful about the financial requirement; they were in the last competition with the smaller nonprofits and withdrew, I think, because their operating expenses were actually over $1 million. I haven't heard that the CAA is entering. If so, their info would also be at guidestar and is on their website at www.cfids.org.

    Tuha, I'm glad you want to contact ME/CFS organizations, too. I'll be glad to take any part of the list you want me to. Voting begins on April 21st, so there's only about a week left. I don't know that it matters when we start contacting other nonprofits to ask for their help in voting.
     

See more popular forum discussions.

Share This Page