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Lessons from ME/CFS: Finding Meaning in the Suffering
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The BIG CHASE: funding US ME/CFS non-profits

Discussion in 'Action Alerts and Advocacy' started by Frank, Dec 1, 2010.

  1. Dolphin

    Dolphin Senior Member

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    Frank, did you send out an action alert? I don't remember getting one. Actually, I haven't received one for a while.
  2. Dolphin

    Dolphin Senior Member

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    Yes, they highlighted this place http://www.facebook.com/l.php?u=htt...you/Screenshot2011-05-02at52842PM.png&h=45856 to check for messages.
    I found loads of messages in there last night, mostly from groups but also from an old school friend from a couple of months ago.

    I wonder how many people wouldn't have voted because they think the WPI is safe - it wasn't said much till the last day or two. The main people who would know are people who see the leaderboard - I'm not sure there would be many people who would get to the leaderboard but wouldn't vote (unless they have a problem). However, there may be people who voted but didn't make a big effort contacting family and friends for this reason.

    Round 2 is only one week rather than 2 weeks for Round 1 - it will be interesting to see how many votes are needed; perhaps fewer votes rather than more votes will get the same position.
  3. Dolphin

    Dolphin Senior Member

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    I've just posted on some yahoogroups that it's the last day of voting in Round 1 - I'm hoping that will wake some people from their slumber. I see it has prompted one of my non-US FB friends to try to vote (was surprised they hadn't voted before now).

    I know it's not particulary important to get more votes but I'm hoping that if they do it this time, they'll vote for Round 2 as they'll know what is involved.

    Perhaps people could do this in other places e.g. Facebook groups - I've quite a lot on.
  4. frenchtulip

    frenchtulip Senior Member

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    One thing the CAA did not do when they voted for other charities was to leave messges asking for votes for the CAA in return. The WPI did a fantastic job of leaving messages, including the link to their voting page. I saw very, very few left by the CAA. The WPI also forged an alliance with the Florida Vision group by leaving multiple positive messages on the Florida Vision voting page. So, in Round Two, leaving messages asking for votes for the CAA would be a good thing for CAA supporters to do (and always include the link to the CAA voting page).
  5. Dolphin

    Dolphin Senior Member

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    Of course, with this, one has to be careful not to help groups pass your group(s) out - probably best to concentrate on ones towards the bottom in general.
  6. Dolphin

    Dolphin Senior Member

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    Thanks frenchtulip.
    Well done for all you did.
    I did get a little feedback. Also I never went back to most groups I posted on.

    Regarding the UK: although I would have thought there are lots of WPI supporters in the UK, I'm not sure how many UK groups have been that supportive.

    I'm on a list (actually two but one is fairly inactive) for group leaders and I'm basically the only person plugging it. One person a few days ago said they wanted to vote except for the privacy issue but perhaps because of a bit of prodding, they voted. Another person said not to vote for the CAA. Apart from that, it's been very quiet. And if the group leaders haven't voted, it probably means they haven't passed it on to others.

    I think for Round 2, more people need to contact non-US groups both through Facebook and other means of contact - I think there could be several thousand extra votes there with the right prodding.
    And it probably has to be repeated several times that people outside the US can vote.
  7. Hope123

    Hope123 Senior Member

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    I'm going to make a post specifically for international visitors to PR on the 'General' News page. Nothing particularly new but just to highlight the issue.
  8. beesknees

    beesknees Senior Member

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    Don't forget to leave a comment to vote for WPI 0r CAA. Once you voted for a charity you can leave as many comments as you want. So if you left a comment days ago you may want to leave another comment so people see it.
  9. Dolphin

    Dolphin Senior Member

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    (Off-topic - kind of)

    It's really jumped up quickly down the bottom - I remember telling somebody not so long ago (possibly over the weekend? end of the last working week?) that one could have less than 100 votes and be in top 100. Now it's 418. I think it may have only been something like 330 (?) in the last update 12 hours ago. I'd say some groups thought after the last update that they would be secure if they got to 400.
  10. SpecialK82

    SpecialK82 Senior Member

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    USA
    Does anyone know if it's against the rules the sign up for multiple facebook accounts under different names, maybe different emails?
  11. justinreilly

    justinreilly Stop the IoM & P2P! Adopt CCC!

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    It's definitely against Facebook rules to sign up for even one not using your real name. I'm sure it's against the Chase rules, though I haven't reviewed them lately.
  12. Dolphin

    Dolphin Senior Member

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    5 of the top 10 in Chase Community Giving are partly or wholly for drum corps

    We have very few drum corps in Ireland so I didn't know that "YOUTH EDUCATION IN THE ARTS" (#1)
    is
    Also, until I looked at the logo, I didn't know what SCV (#8) was: SANTA CLARA VANGUARD BOOSTER CLUB. Logo says "Drum and Bugle Corps"

    10 Blue Devil Parent Association
    Then there is also:
    2 DRUM CORPS INTERNATIONAL INC

    7 GLASSMEN JR DRUM & BUGLE CORPS INC

    While people in the US may feel some affinity with drum corps, it might be useful to point this out to people outside the US.
  13. frenchtulip

    frenchtulip Senior Member

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    From the FAQ's of the Chase contest:
    How many votes do I get?
    Each person who Likes Chase Community Giving, receives 10 votes to cast as they see fit in Round 1. You can only use 1 vote per charity; but with hundreds of thousands of charities to choose from, finding 10 you like should be no sweat. In Round 2, each person receives 5 votes to cast on the charities competing in that Round. You can see how many votes you have remaining at the top of each page.

    I think in the last Chase contest the officials deducted votes from charities when they suspected that Facebook accounts had been made up. I think that auditors probably get suspicious only if the name on the email account does not match the name on the Facebook account. But this is just my opinion.
  14. justinreilly

    justinreilly Stop the IoM & P2P! Adopt CCC!

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    Noone in the US cares about drum corps except people in drum corps. They are just successfully banding together to get votes.
  15. Dolphin

    Dolphin Senior Member

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    Ok, good to know. I didn't want to speak on how people in the US might feel while I consume a lot of media (TV/radio/newspapers/magazines/etc) from Ireland and the UK so would have an idea about attitudes in those countries.
  16. justinreilly

    justinreilly Stop the IoM & P2P! Adopt CCC!

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    Illness Groups

    With 40 mins left in round 1, here are the other groups related to illnesses. (for some reason they don't list #100). I suggest we form some kind of alliance with them. Also, does anyone have an 'open line' of communication to WPI and CAA who can ask them if we can act as their agents to tell these groups that WPI and CAA themselves will ask people to vote for them?

    Strategically, I would tell the higher up ones that we can agree that we (WPI and CAA and supporters) and their org will ask people to vote for each other during the entire contest. For the lower ranking ones, we can agree that we will 'advertise' for them for a shorter period- say a day or two, but they have to 'advertise' for us the whole time. That way we can get votes from more orgs.

    13. Dogs for the Deaf
    24. I Rhett Syndrome F
    27. N Marfan F
    44. FANCONI ANEMIA RESEARCH FUND
    46. The National MPS Society
    56. FLORIDA'S VISION QUEST
    59. EPILEPSY FOUNDATION OF FLORIDA INC
    85. Treatment Action Group (AIDS)
    88. Guide Dog Foundation for the Blind
    95. Cancer Care Services
    98. Lustgarten Foundation
    99. National MS Society
  17. Dolphin

    Dolphin Senior Member

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    Some of them are interested in research and some specifically aren't. I thought the ones specifically interested in research might feel closest to us and what we were looking for (although I am confused as to what the WPI money is going for atm - I had read that the clinic couldn't use the charity money in Dr Deckoff Jones' blog - but thought I read something saying the opposite with regard to Chase Community Giving. I imagine when they say what the $500,000 will be spent on, it will become clear). Although then a problem with that was that some were for conditions that seem to affect and kill children so maybe they wouldn't feel as close to us. Also, perhaps the distinction I'm making makes less of a difference to the average voter who might like a charity that gives support services but still likes research (at board level or whatever, the difference might be more in focus).
  18. justinreilly

    justinreilly Stop the IoM & P2P! Adopt CCC!

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    Stategy

    Thank you Frenchtulip, Dolphin and everyone!

    Does anyone know what good strategies here would be. I assume we should band together with illnesses and also with the other top orgs that are not drum corps, like the Wolf and Wildlife Centers and Joyful Heart.

    The main problem with banding together with other high ranking orgs is that the inability to monitor compliance makes it very hard to get votes from the other ones and there is a danger of pushing them ahead of us with our own votes. (this is much less of a problem with lower ranking orgs since we wouldn't be in direct competition with them) Does anyone have any idea of how to get around this and monitor/ensure compliance?

    One way would be with an app. There may be too little time to get something together like this, but it would be extremely useful. (If we can't do it now, let's think about it for the future). The app would let you enter what orgs you wanted to vote for and what your 'favorite' org was. The app would vote for you and then log which orgs' supporters had voted for which other orgs. One problem with this would be the app would probably need access to personal info from the voter.

    Your feedback please!
  19. Hope123

    Hope123 Senior Member

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    I think for the purposes of the contest, it is likely against the rules. One Facebook account per user although people have used tricks as I understand in certain situations to bypass this -- don't do this for Chase though -- we don't want to be disqualified.

    However, contrary to what others say, I don't think there is a rule on Facebook that you have to use your true name or give true information on your account. I regard it as I would any other e-mail/ forum account where only one of my accounts has my true name. Not having true or having little info on my "play" accounts means less chance of identity theft and less chance of being bombarded by advertisers/ spam.
  20. Dolphin

    Dolphin Senior Member

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    Good you're strategizing, Justin.
    One thought I had looking through the lists was that there were quite a few wildlife/wild animal charities and then a few more charities dealing with domesticated animals. So "animal lovers" may use up their five votes in round #2 so might not be generally great to pair up with?

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