I've seen a lot of language like this in the articles I've been reading lately on ME: I've been experiencing symptoms for a year and a half, have just diagnosed myself, and think I'm on the verge of getting my doctors to agree with me. Woohoo! However, given that most doctors don't know how to treat ME, don't even entirely believe in it, even if they do diagnose you, and there is no none cure, why is early diagnosis important? Are there studies that actually show it, or is it just folk wisdom? Is it because patients who are getting diagnosed early are actually getting good treatment, or are they just lest likely to push themselves beyond their limits, and thus exacerbate their already horrible condition? I'm "lucky" in that I'm only 20% bedbound, and so far can spend 80% of my time living a relatively normal life. However, my relapses seem to be getting worse as time goes on, as are my supposedly psychosomatic neurological symptoms (I used to not have neuro symptoms, only flu+fatigue). How can I put the breaks on this? Really wish all of this stuff was in a Wiki. I'm laying in bed, waiting to go to more doctors appointments and do more blood tests that are likely to come back normal, but I wish there were things I could do to start treating myself now. It would be great to have a primer with a list of potentially helpful interventions, with citations to research studies that might provide empirical or theoretical support for the intervention, plus a poll for each intervention, say, of users on this site rating their self-reported symptom improvement, plus a space for more qualitative comments/suggestions. Just for example: magnesium supplementation,links to studies on lactic acid in CSF of patients with CFS, poll of users who found mild, moderate, or significant symptom reduction, of which symptoms, at what doses, comments on length of time it took for magnesium to become therapeutic, etc. If anyone thinks this would be useful, I am pretty sure I can ask some of my coder friends to do a hackathon and produce a tool in a couple of hours. If someone is already working on this, let me know how I can help!