Discussion in 'Latest ME/CFS Research' started by Tom Kindlon, Aug 5, 2017.
I am unable to access the supplemental data file. If anyone could get the file and either attach it to a message in this thread, send it to me as a private message or alternatively email it to me at Tom Kindlon at Gmail dot com, I would appreciate it.
Somebody has now kindly sent me the file.
That is a large group of patients for one centre to see.
I thought this was a clever idea. I don't recall seeing it being explicitly mentioned in the CFS literature that I have read before.
It's a pity they don't give more information on this in the main text
I thought this was interesting:
This study kind of suggests that the Chalder Fatigue Scale is rubbish, even if well, they don't say it explicitly.
I asked my daughter, who currently has mild CFS, to take the survey. She scored 47 on the Fatigue scale which puts her in the 25th percentile of their CFS patients.
However, I think some of the other scales have a lot of bias depending on what you are used to doing, which is probably a function of how long you have had CFS. For example, she was midway between the 50th and 75th percentiles on the Activity scale and above the 50th percentile on the Concentration scale.
The question how useful a fatigue questionnaire even is remains. They're worthless for detecting or measuring post-exertional malaise I would say because there is no time or exertion dimension.
Can someone advise me here. Is there a definitive, well accepted definition of what fatigue actually is. Is it a physical phenomenon? A mental perception? Does the medical profession have a commonly agreed understanding of what it actually is?
Not as far as I'm aware. When I'm asked about it by a doc I usually ask them to define what they mean by the word "fatigue". That aways seems to take em aback.
You can also try a Google Site Search
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