August 8th, 2016: Understanding and Remembrance Day for Severe Myalgic Encephalomyelitis
Jody Smith joins with other ME voices in honor of Understanding and Remembrance Day for Severe Myalgic Encephalomyelitis.
Discuss the article on the Forums.

The 3 times my ME/CFS almost completely vanished...

Discussion in 'General ME/CFS Discussion' started by Antares in NYC, Sep 15, 2013.

  1. Little Bluestem

    Little Bluestem Senescent on the Illinois Prairie ❀❤✿Ƹ̵̡Ӝ̵̨̄Ʒ✿❤❀

    Midwest, USA
    To go even farther off on a tangent -
    When I was a child my parents took in a starved and dehydrated mare with an hours old foal. The mare did not have any udder development and we were concerned she was not producing milk. Once fed and watered, she did produce milk. The foal nursed and thrived, but the mare never developed udders. The foal was consuming the milk about as fast as she was producing it. The foal’s growth and development were quite normal, so she was producing adequate milk.
    justy likes this.
  2. anne_likes_red

    anne_likes_red Senior Member

    Even further off the original topic (sorry!), but justy's post reminded me of something I listened to yesterday - a recent talk at AHS13 by Kevin Boyd, a pediatric dentist from Chicago who has a special interest in evolutionary medicine.

    His presentation is titled "Sleep Apnea, Attention Deficit Disorder and Small Jaws: Not Likely Things of the Past."
    He explains how he believes optimal jaw development, which helps allow the proper oxygenation of the brain during sleep, really depends on extended breastfeeding...something like 3 or 4 years! (Society's not set up well for that way of living either.)
    The link is not to the full presentation, just the audio - a bootleg version.
    SickOfSickness likes this.
  3. justy

    justy Senior Member

    Anne - thanks for the video link, will have a look later. Breastfeeding is indeed considered extremely important for proper developemnt of the jaw and teeth, as breastfeeding is an active process, whereas being fed by bottle is passive - the baby does not have to work to get the milk out of the teet, with minimal pressure it just flows.

    So far off topic now!
  4. cigana

    cigana Senior Member

    Hi Antares, thanks for posting this. Yes, you can count me as a person who has had very similar experiences to you.

    I'm surprised no one has mentioned this, as it's fairly well known with MECFS and called either the Location Effect or Mold Avoidance. The theory is that something in the environment (most likely mold) is causing inflammation.

    I have also miraculously felt better while being abroad, most notably Japan.

    The reason why you probably don't feel better in all locations is that it is only in a small number of locations where the mold is not present.

    Many people with MECFS have recovered for example by spending large times in the desert and then moving to a mold-free environment. See the posts in the biotoxin section.

    I think that for some reason, the thing that is causing your MECFS (let's say a retrovirus or Lyme bacteria purely for arguments sake) is also causing you to be highly sensitive to the mold, to such an extent that actually the majority of your symptoms are due to the mold (rather than the underlying cause, which in and of itself produces less overt symptoms).
    Antares in NYC likes this.
  5. gregh286

    gregh286 Senior Member

    Londonderry, Northern Ireland.
    @Antares in NYC
    I have noticed this trend whereby a disruption to my circadian rhythm has hugely positive CFS effects. Over Christmas I had 2 overnight Dubai flights where i felt "tired" or jetlagged the next day but not the whole CFS feeling of doom with a few hours airline sleep both ways.
    I also have the issue of waking up feeling "dead" or worse with greater amount of sleep, legs really heavy, all that stuff.
    I have broke my sleep pattern into 3-4 hour blocks as a trial and huge improvement, but not really sustainable to most people to work like that,
    Something is going wrong at the metabolic level at night/sleep cycle. Not mold in my case, 3 weeks in brutal mexican and dubai heat didnt fix it, no its in the human body clock.

    The only sliver of medical biomarker i have after a huge number of tests to work on is very high saliva cortisol readings, lending me to the idea of a totally overworked adrenal and thyroid during sleep cycle.
    I have started phosphatidylserine this week in an attempt to calm it. As a person I am not mentally stressed, but obviously my body is physically stressed to something or other.
    By disrupting my circadian rhythm I am confusing my body cortisol production, with positive energy outcome.

    Keep you posted,:)
    Last edited: Jan 12, 2015
    ukxmrv, Antares in NYC and cigana like this.

See more popular forum discussions.

Share This Page