The 12th Invest in ME Research Conference June, 2017, Part 2
MEMum presents the second article in a series of three about the recent 12th Invest In ME International Conference (IIMEC12) in London.
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Testing Treatments: better research for better health care (free book - available in 10 languages)

Discussion in 'General ME/CFS Discussion' started by Dolphin, Nov 26, 2014.

  1. Dolphin

    Dolphin Senior Member

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    Following a recommendation by Ben Goldacre in his book Bad Science, I just read the book:

    Here's a description:

    It can be read in 10 languages on this site:
    www.testingtreatments.org

    The 10 languages are:
     
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  2. Dolphin

    Dolphin Senior Member

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    I've read more medical research than most people (probably over 500 papers) so it wasn't as informative to me as I would have liked.

    However, it was interesting enough to read different examples of how medical practice has changed at different stages.

    Also, there were some points (e.g. about patient preferences and the importance of patient involvement) that I feel could be made more in the ME/CFS field.

    Many things encouraged me to remain involved as a patient who comments on research.

    I'll post some extracts over the next day or two that I underlined. However, other people may find other bits of interest.
     
    Last edited: Nov 26, 2014
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  3. Dolphin

    Dolphin Senior Member

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    These extracts are from the first edition in English from http://www.jameslindlibrary.org/pdf/testing-treatments.pdf but the second edition is also now available http://www.testingtreatments.org/wp-content/uploads/2012/09/TT_2ndEd_English_17oct2011.pdf

    Sometimes I just underlined a short bit but have added some surrounding text to help give context.

    FOREWORD

    FOREWORD TO THE FIRST PRINTING

     
  4. Dolphin

    Dolphin Senior Member

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    Intro

     
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  5. Dolphin

    Dolphin Senior Member

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    Chapter 1

    *To put babies on their stomachs.
     
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  6. Dolphin

    Dolphin Senior Member

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    Chapter 3:

     
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  7. Dolphin

    Dolphin Senior Member

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    Chapter 4-6 (I lost track):

    (Gives an example of patient preferences)
    [A doctor]
     
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  8. Dolphin

    Dolphin Senior Member

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    Chapter 5-6 (I lost track):

     
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  9. Dolphin

    Dolphin Senior Member

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    Chapter 7 to end:
    --

     
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  10. Dolphin

    Dolphin Senior Member

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  11. Sean

    Sean Senior Member

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    Well said.

    I can understand doctors feeling pressured to have a definite answer and effective treatment. A pressure, ironically, in large part due to the great success of modern science based medicine.

    But the serious problem of not being sufficiently open about the limits to their knowledge, particularly in the clinic, still needs to be addressed.
     
  12. Little Bluestem

    Little Bluestem Senescent on the Illinois Prairie ❀❤✿Ƹ̵̡Ӝ̵̨̄Ʒ✿❤❀

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    Midwest, USA
    That would be because practising physicians are generally not scientists. I think this confusion is the result of calling people who do not have a PhD 'doctor'.
     

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