1. Patients launch a $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
Never Ask Us if We're Hungry -- The Answer's Always No
There are three of us here and for many years, none of us ever got hungry. When our brains would turn to mush, when our faces would go numb, and we would start the invisible vibration which is the signature dance of ME/CFS, we knew we needed to eat.
Discuss the article on the Forums.

testing for hypovolemia in POTS

Discussion in 'Autonomic, Cardiovascular, and Respiratory' started by lauluce, May 2, 2014.

  1. lauluce

    lauluce as long as you manage to stay alive, there's hope

    Messages:
    55
    Likes:
    34
    argentina
    Hi, I've recently confirmed I have POTS thank's to a tilt table test. I read many times that in CFS patients, POTS is related to low blood volume, known as hypovolemia. Does any of you know is there is any test for hypovolemia? thanks in advance
    Allyson likes this.
  2. Sea

    Sea Senior Member

    Messages:
    630
    Likes:
    637
    NSW Australia
  3. Gingergrrl43

    Gingergrrl43 Senior Member

    Messages:
    570
    Likes:
    678
    USA
    Interesting thread although a little too complicated for my brain to follow LOL. My cardiologist told me yesterday that she suspects I have low blood volume b/c I have very low blood pressure and tachycardia (demonstrated on different tests.) She had me lie down and then stand up and she was pressing on the vein in my neck when she made that statement (although I did not do an actual test as described in the other thread.) But it was enough for her to recommend Florinef which I have not tried yet (and posted about in another thread.)
  4. Allyson

    Allyson Senior Member

    Messages:
    1,684
    Likes:
    666
    Australia, Melbourne
    the

    there is link to LBV testing in this thread - about 5th post down - I had it done and mine was only 4.3 litres instead of 5-6 litres

    http://forum.notcrazy.net/index.php?topic=9571.0

    please let me know if you have it done what the results are

    Ally
    ahimsa and lauluce like this.
  5. lauluce

    lauluce as long as you manage to stay alive, there's hope

    Messages:
    55
    Likes:
    34
    argentina
    Thank you! :) I'll check it out
    Allyson likes this.
  6. Allyson

    Allyson Senior Member

    Messages:
    1,684
    Likes:
    666
    Australia, Melbourne
    I have heard of only a few who have actually been tested so far - and yet they say it I a common symptom of ME and FM and EDS and POTS....

    Ally
    lauluce likes this.
  7. lauluce

    lauluce as long as you manage to stay alive, there's hope

    Messages:
    55
    Likes:
    34
    argentina
    You should try to get tested, get a tilt table test, since that thest can by itself allow to diagnose POTS.
    The simple definition and diagnostic criteria of POTS is what follows:

    "An operational definition of the syndrome includes symptoms of orthostatic intolerance associated with an increase in heart rate from the supine to upright position of more than 30 beats per minute or to a heart rate of greater than 120 beats per minute within 10 minutes of head-up til (HUT). These criteria are derived for adults, and larger heart rates are likely observed in children and adolescents with POTS."

    By this criteria, I don't need a doctor to conclude that i've got POTS since my heart rate increases from 90 qhen the table is parallel to the ground with me lying down to 140 within 10 minutes of HUT (when the table is perpendicular to the ground, with me standing).
    There are treatments for this, you should really give it a try, you could get a lot better.
    Check these links from good sources about POTS:

    http://www.ndrf.org/NDRF Patient Handbook/SecA_pp59-134.PDF
    https://circ.ahajournals.org/content/117/21/2814.full.pdf html
    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2600095/
    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2600095/pdf/478.pdf
    http://emedicine.medscape.com/article/902155-overview#showall
    http://www.mayoclinicproceedings.org/article/S0025-6196(12)00896-8/pdf
    https://docs.google.com/file/d/0B4xZkI0tTFX3dEtwVHVRR0RUN2M/edit

    Good luck! :D

See more popular forum discussions.

Share This Page