Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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Terpenes = reduced PEM

Discussion in 'General Treatment' started by NotThisGuy, Oct 10, 2017.

  1. NotThisGuy

    NotThisGuy Senior Member

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    I thought I might give terpenes a try.
    Today I tested D-Limonene (I only smelled it).

    The first minutes were horrible because it made my mast cells degranulate.
    But after a few minutes I became incredible calm.
    My POTS got worse for 1 hour but in the Long term the positive effect remained without any side effects
    .
    I also went Shopping for grocery (about 100-200 meter Walking plus 15 minutes driving a car) and my PEM was very mild. Usually I would be in agony thinking I might die soon after 100-200 meter Walking.

    Going to try soon the other 5 Basic terpenes found in Cannabis.

    Here are two Shops who only sell extracts from organic grown Food:

    UK:
    https://www.terpenes-uk.co.uk/isolates
    US:
    https://buy-terpenes.com/product-category/true-terpenes/terpene-isolates/
     
    Learner1, cigana, PatJ and 4 others like this.
  2. Wishful

    Wishful Senior Member

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    I tried turpentine once. I forget why it was supposed to possibly reduce immune system activation, but at the time I was desperate enough to try anything. It didn't have a noticeable effect. I think I tried balsam poplar buds around that time too. Fairly pleasant flavour at first. Then it got hotter, and hotter, and hotter. Luckily there was plenty of snow around to quench the burning sensation. No effect on my symptoms though.

    Oh the crazy things we try...
     
  3. Woolie

    Woolie Gone now, hope to see you all again soon somewhere

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    So you just sniff them? And they are nice to smell? And that in itself is enough to reduce PEM?
     
  4. Alvin2

    Alvin2 If humans were rational...

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    WHAT?!?!?!?!?
    Are you insane?
     
    Learner1 and A.B. like this.
  5. NotThisGuy

    NotThisGuy Senior Member

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    smells like heaven ;) tried it twice and it is still working.
    still dont know if the mast cell reaction to it might draw my adrenals.... I will Report after Long term use.
     
  6. Woolie

    Woolie Gone now, hope to see you all again soon somewhere

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    You know, I was a bit bemused earlier, but now you've got me wondering.

    A couple of springs ago, I got quite bad hay fever. It lasted about 6 weeks and was the best period in my life healthwise in the past four years. Almost as if the hay fever somehow 'distracted' my immune system or something (I know, it could be the other way around, I got hay fever because I was feeling better, but still its curious).

    I thought if I could only bottle the whatever that sets off the hay fever, maybe I could repeat that.
     
  7. NotThisGuy

    NotThisGuy Senior Member

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    either your immunsystem was distracted or something in the air made you feel better + gave you hay fever.
    could be phytohormones or the terpenes in pollen.
     
  8. Skycloud

    Skycloud Senior Member

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    I had a fair amount of exposure to turpentine in the past . I'm struggling with this idea.
     
  9. NotThisGuy

    NotThisGuy Senior Member

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    yeah i've read into turpentine. It really seems like a bad idea.
    Didn't find any study to Food grade terpenes though.
    Only that Food grade d-Limonene is sold by jarrow as supplement
     
  10. Wishful

    Wishful Senior Member

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    I don't think it was crazy to try turpentine. It was only a small amount. At the time I didn't know what I had, but I did know that the medical system was utterly refusing to do anything to help me. I was at the point when I didn't care if I died. I'm not sure that part's changed. :(

    I guess I shouldn't mention crushing LED's for the gallium arsenide to see if arsenic would help. :rolleyes:
     
  11. Skycloud

    Skycloud Senior Member

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    I wouldn't call you crazy, but yeah, probably wise not to mention the gallium arsenide ;)
     
  12. NotThisGuy

    NotThisGuy Senior Member

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    yesterday was third day of sniffing Limonene.
    yesterday I was able to do Things I couldn't have done the days before Limonene!! Lifting packages of watter bottles etc.
    Also went Shopping and still no huge PEM. Even was able to clean a Little bit in my house.
    My sleep is deeper and more recovering. Feeling more energized in the morning.
    My BM changed from IBS-D to rabbit pellets.
    The rabbit pellets BM occured on the first day sniff but It's improving towards more normal BM. Still a downside of Limonene therapy...
    Lot of changes at once. I really hope I'm not doing any harm to myself with Limonene, but so far it doesn't feel like I'm doing any harm.
     
    PatJ likes this.
  13. Learner1

    Learner1 Professional Patient

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    From http://www.lifeextension.com/Protocols/Metabolic-Health/Metabolic-Detoxification/Page-02
     
  14. JES

    JES Senior Member

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    Interesting. Just FYI, you can also buy food grade d-Limonene such as the one sold here. Apparently it's a popular supplement among those with acid reflux / GERD, but I also read it might be useful for bile flow and digestion. I will try this approach instead of sniffing, intuitively it sounds safer to me.
     
  15. NotThisGuy

    NotThisGuy Senior Member

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    yes, but the ingredients are a nightmare for someone with MACD.
    instead of sniffing you can dilute the pure d-Limonene with water.
    Just don't know how someone can take 1000mg of d-Limonene at one go.
     
  16. Mary

    Mary Senior Member

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    @NotThisGuy - why did you decide to give terpenes a try? and is the limonene still helping you?
     
  17. Hip

    Hip Senior Member

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    Some time ago I tried a one-off oral dose of 1000 mg D-limonene, and did not notice anything.

    Do you have mast cell activation syndrome (MCAS)?



    What D-limonene is very good for, though, is cleaning off the gluey residue of sticky labels on products. Far better than alcohol, which usually does not work. I have never met a sticky label glue that cannot be removed with D-limonene. Turpentine is also excellent for this purpose, but it smells bad. Whereas D-limonene has fresh lemon scent.
     
    PatJ likes this.

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