Severe ME Day of Understanding and Remembrance: Aug. 8, 2017
Determined to paper the Internet with articles about ME, Jody Smith brings some additional focus to Severe Myalgic Encephalomyelitis Day of Understanding and Remembrance on Aug. 8, 2017 ...
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tell your story to PANDORA

Discussion in 'Action Alerts and Advocacy' started by Nielk, Apr 4, 2011.

  1. Nielk

    Nielk

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    Tell Us Your Story: Lyme and MCS
    Lyme:
    The protein study that found biological distinction between ME/CFS patients and those who had Lyme disease but continued to show symptoms after treatment has led to
    news media attention. PANDORA has been asked to participate in a radio program that will focus on Lyme prevention and the controversies with diagnosing Lyme disease and accessing knowledgeable treatment.

    The difficulties in distinguishing between ME/CFS and Lyme disease will also be part of the discussion. If you have Lyme disease, please contact Tina Tidmore asap by phone at 205-680-6890.

    MCS:
    Additionally, PANDORA is updating the website with a totally new layout. In describing each of the NeuroEndocrineImmune diseases, we want to include a personal account. The PANDORA brochure already has the personal account of people with ME/CFS, fibromyalgia, MCS and chronic Lyme disease. The one missing is MCS. Please e-mail Tina Tidmore at ttidmore@pandoranet.info if you have MCS and are willing to have your story and photo included on the new website.

    Marly Silverman, Founder
    P.A.N.D.O.R.A. - Patient Alliance for Neuroendocrineimmune Disorders Organization for Research and Advocacy, Inc.
     
  2. WillowJ

    WillowJ คภภเє ɠรค๓թєl

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    WA, USA
    that's really neat about the radio show and everything
     

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