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Telegraph: Exercise can help chronic fatigue syndrome, study shows

Kati

Patient in training
Messages
5,497
http://www.telegraph.co.uk/science/...an-help-chronic-fatigue-syndrome-study-shows/

i am not sure why this article publishes today in Telegraph. Weird.

Increasing exercise each day can help patients with Chronic Fatigue System to feel less tired and feel better, a new study suggests.

Scientists at Queen Mary University of London placed 200 people on a 12 week programme in which they were either encouraged by a physiotherapist to walk a little more each or given a programme of medical care including medication for depression, pain and insomnia.

After four months the mean fatigue score of the exercise group was four points lower than in the control group, on a scale of 100, which researchers said was a moderate but significant impact. Physical function was also six points higher.

More at the link above.
 
Last edited:

alex3619

Senior Member
Messages
13,810
Location
Logan, Queensland, Australia
I just posted this in the Telegraph -
Anyone diligently following this kind of research will know that the long term follow up for the PACE trial produced no significant result. You were just as well off with standard medical care. This is the norm with this type of study where they bother to monitor long term effects.

There is NO study with clear objective evidence that there is improvement. If I am wrong please specify the study and the evidence. In one study patients did improve in testing, but did less overall as they spent more time resting.

These issues are probably due to methodological biases, or to regression to the mean, or both.

Any study without objective evidence in this area can be ignored. Its time such studies no longer even got published. They are wasting money, researcher and patient time, and misleading medical professionals.
 

Alvin2

The good news is patients don't die the bad news..
Messages
2,984
So i've had to overdo it to survive, i try to do it as gently as i can, why am i getting worse instead of better?
Telling lies over and over again does not alter reality [facepalm]

This is why we need the disease mechanism, let them try to argue a blood test. Its like saying cancer can be cured with exercise, no one will accept that tripe.
 

lauluce

as long as you manage to stay alive, there's hope
Messages
591
Location
argentina
So i've had to overdo it to survive, i try to do it as gently as i can, why am i getting worse instead of better?
Telling lies over and over again does not alter reality [facepalm]

This is why we need the disease mechanism, let them try to argue a blood test. Its like saying cancer can be cured with exercise, no one will accept that tripe.
yes, we desperately need a biomarker... it's the only thing ignorant and not so intelligent people will ever understand, a number on a piece of paper from a lab
 

Seven7

Seven
Messages
3,444
Location
USA
What is the formal mechanism to a news paper when facts are wrong? Or you want them to demonstrate a source???
There is not a citation or what they are basing the claims on which study.
 

NelliePledge

Senior Member
Messages
807
Oh dear. Obviously the study itself is a UK generated problem but not helpful that Science Daily is able to quote this US Dr from Michigan Dr Clauw in support. I wasn't aware that there was ongoin support for GET in the US I thought it had been taken off the recommended approach there.
 

ash0787

Senior Member
Messages
308
why do they think exercise is a viable medical treatment, it doesn't even take any qualifications to supervise somebody who is walking on a treadmill or something.

I think there might be some benefit to occasional activity when its within pacing, if the persons health is stable,
for example I somehow managed to get rid of my othostatic intolerance entirely for a while, could sit in a normal chair for several hours without ill effect, I wonder if was due to correct pacing + frequently trying to sit upright,
walking is different though, the more I walk in one day the slower I move the next day.
 
Messages
2,125
Well, on the brightside there isn't a positive comment on this article in the comment section of the telegraph.
"
Asalah Achterberg 23 Jun 2017 4:38PM
If Ms Sarah Knapton is sincerely interested in this topic, I suggest she takes a look at the journalistic efforts of DrPh David Tuller. He will show how this kind of research has been widely debunked by true scientists.

Graded exercise therapy has not been shown to help. In fact, the results are inflated by lax entrance criteria, shoddy protocols, and no objective measures. Moreover, many patients have gotten worse, not better. Often irrevocably, losing the little bit of quality of life they had left.

This completely uncritical article does more harm than good.

"
helen oliver 23 Jun 2017 11:33AM
I am lost for words. You publish this and yet there was no mention in the UK press of the International conference organised by the charity InvestinME reporting on recent amazing advances in research for M.E (Stanford Prof Ron Davis amongst them). There is bias in reporting on M.E in the UK. Norway is running trials on a drug that is already showing positive results. This illness is in the blood. My housebound 27 yr old once fit, energetic fully employed, traveling, passionate for the outdoors daughter was seen by a leading ME CFS psychiatrist in London who has written in her notes that there is nothing wrong with her head/mind. He tried hard to find it!. This terrible reporting is devastating for UK ME patients and needs to stop."

"Jules Dub 23 Jun 2017 10:59AM
This is the kind of substandard article, which causes so much damage to a person who is affected by ME. Further causing them to have relationship breakdowns, with families/spouses/friends and (if they're lucky enough to work) colleagues and employers.

You have produced an article which is not accurate, you have not fully researched what you have shared, with an air of authority, as 'Science Editor' how totally unprofessional of you, how unethical of the Telegraph to allow it to be included in their newspaper.

Do you have the first clue the psychological abuse you are causing, printing these sensationalist articles, at the expense of the wellbeing of chronically ill and disabled people?

People deserve to be given ALL of the facts, not a 1 sided argument, which follows the rhetoric of people who know that this is 'bad science', the whole trial was seriously flawed, there is still ongoing dispute from researchers, scientists, specialists."

"
Mark Harper 23 Jun 2017 9:46AM
This just seems to be the same old stuff from the heavily-criticised PACE trial, which also claimed marginal benefits from graded exercise therapy for sufferers from ME/CFS. In the USA, ME/CFS has been renamed systemic exertion intolerance disease (SEID) - the clue's in the name, exertion is exactly what ME/CFS sufferers can't tolerate! Trying to make sufferers increase their exertion levels willy-nilly is dangerous and could do real harm."

"
Stinky Feet 23 Jun 2017 8:46AM
This is almost getting comical. Queen Mary are so up to their eyes in it they are still trying to push this. No doubt, just as the PACE trial was, GETSET will also be de-bunked with the authors clinging onto what's left of their careers. Graded exercise is harmful, the US are strides ahead in condemning this with the NIH now funding proper science. Come on UK, catch up."

"
Madeline Scott 23 Jun 2017 1:15AM
How is this study different from the one published in 2015 - widely and internationally discredited, subject to an FOI request which showed the data had been misrecorded and misinterpreted, which QMUL spent £200 000 trying to suppress, which the MEA rightly continue to lobby the Lancet to retract, and which was reported in this newspaper ... in a manner which caused a large number of upheld complaints to Press Standards?!

It's just that on the face of it, it does seem to be entirely the same report, repeated. Why?"

Jules Dub 23 Jun 2017 11:23AM
Lazy journalism.... copied article from 2013 Pyschology Today; just scan the comments, on that article, and you can clearly see why the ME community/ME Sufferers, are so angry & frustrated, about such a damaging piece, 4 years on, being shared again as 'factual news'!

https://www.psychologytoday.com/blog/sleep-newzzz/201303/exercise-and-cbt-can-help-chronic-fatigue