The 12th Invest in ME Conference, Part 1
OverTheHills presents the first article in a series of three about the recent 12th Invest In ME international Conference (IIMEC12) in London.
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Telegraph: Exercise can help chronic fatigue syndrome, study shows

Discussion in 'General ME/CFS News' started by Kati, Jun 22, 2017.

  1. Kati

    Kati Patient in training

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    http://www.telegraph.co.uk/science/...an-help-chronic-fatigue-syndrome-study-shows/

    i am not sure why this article publishes today in Telegraph. Weird.

    More at the link above.
     
    Last edited: Jun 22, 2017
  2. Jonathan Edwards

    Jonathan Edwards "Gibberish"

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    I suspect it is there because the PACE propaganda machine has been put into overdrive owing to certain people getting into a bit of a blue funk.
     
  3. Dolphin

    Dolphin Senior Member

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  4. Kati

    Kati Patient in training

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  5. NelliePledge

    NelliePledge plodder

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    OMG people across the UK tin hats on for receipt of this "useful" article from well meaning misled friends and family

    I feel sorry for newly diagnosed people who might get taken in by this
     
  6. alex3619

    alex3619 Senior Member

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    Logan, Queensland, Australia
    I just posted this in the Telegraph -
     
  7. Alvin2

    Alvin2 If humans were rational...

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    So i've had to overdo it to survive, i try to do it as gently as i can, why am i getting worse instead of better?
    Telling lies over and over again does not alter reality [facepalm]

    This is why we need the disease mechanism, let them try to argue a blood test. Its like saying cancer can be cured with exercise, no one will accept that tripe.
     
  8. lauluce

    lauluce as long as you manage to stay alive, there's hope

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    argentina
    yes, we desperately need a biomarker... it's the only thing ignorant and not so intelligent people will ever understand, a number on a piece of paper from a lab
     
  9. Demepivo

    Demepivo Dolores Abernathy

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    1 Please feel free to leave comments about the article on the Telegrph website

    2 The article was authored by Sarah Knapton

    https://twitter.com/sarahknapton

    sarah.knapton@telegraph.co.uk

    This article won't be deleted but newspapers normally write a provocative article to get a response (The Telegraph have previous form on this & ME)
     
    Last edited: Jun 23, 2017
  10. lnester7

    lnester7 Seven

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    What is the formal mechanism to a news paper when facts are wrong? Or you want them to demonstrate a source???
    There is not a citation or what they are basing the claims on which study.
     
    Luther Blissett likes this.
  11. RogerBlack

    RogerBlack Senior Member

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    In principle in the UK, you can complain to the press complaints commission.
     
    lnester7 and Luther Blissett like this.
  12. Demepivo

    Demepivo Dolores Abernathy

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    These days IPSO (Independent Press Standards Organisation) who you complain to.

    https://www.ipso.co.uk/make-a-complaint/
     
    MEMum, Luther Blissett and RogerBlack like this.
  13. Demepivo

    Demepivo Dolores Abernathy

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  14. slysaint

    slysaint Senior Member

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    yes, me too, just like all the others that came before.
     
  15. Kati

    Kati Patient in training

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  16. NelliePledge

    NelliePledge plodder

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    Oh dear. Obviously the study itself is a UK generated problem but not helpful that Science Daily is able to quote this US Dr from Michigan Dr Clauw in support. I wasn't aware that there was ongoin support for GET in the US I thought it had been taken off the recommended approach there.
     
  17. ash0787

    ash0787 Senior Member

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    why do they think exercise is a viable medical treatment, it doesn't even take any qualifications to supervise somebody who is walking on a treadmill or something.

    I think there might be some benefit to occasional activity when its within pacing, if the persons health is stable,
    for example I somehow managed to get rid of my othostatic intolerance entirely for a while, could sit in a normal chair for several hours without ill effect, I wonder if was due to correct pacing + frequently trying to sit upright,
    walking is different though, the more I walk in one day the slower I move the next day.
     
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  18. NelliePledge

    NelliePledge plodder

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    Last edited: Jun 24, 2017
  19. Solstice

    Solstice Senior Member

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    Well, on the brightside there isn't a positive comment on this article in the comment section of the telegraph.
     
  20. slysaint

    slysaint Senior Member

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    "
    Asalah Achterberg 23 Jun 2017 4:38PM
    If Ms Sarah Knapton is sincerely interested in this topic, I suggest she takes a look at the journalistic efforts of DrPh David Tuller. He will show how this kind of research has been widely debunked by true scientists.

    Graded exercise therapy has not been shown to help. In fact, the results are inflated by lax entrance criteria, shoddy protocols, and no objective measures. Moreover, many patients have gotten worse, not better. Often irrevocably, losing the little bit of quality of life they had left.

    This completely uncritical article does more harm than good.

    "
    helen oliver 23 Jun 2017 11:33AM
    I am lost for words. You publish this and yet there was no mention in the UK press of the International conference organised by the charity InvestinME reporting on recent amazing advances in research for M.E (Stanford Prof Ron Davis amongst them). There is bias in reporting on M.E in the UK. Norway is running trials on a drug that is already showing positive results. This illness is in the blood. My housebound 27 yr old once fit, energetic fully employed, traveling, passionate for the outdoors daughter was seen by a leading ME CFS psychiatrist in London who has written in her notes that there is nothing wrong with her head/mind. He tried hard to find it!. This terrible reporting is devastating for UK ME patients and needs to stop."

    "Jules Dub 23 Jun 2017 10:59AM
    This is the kind of substandard article, which causes so much damage to a person who is affected by ME. Further causing them to have relationship breakdowns, with families/spouses/friends and (if they're lucky enough to work) colleagues and employers.

    You have produced an article which is not accurate, you have not fully researched what you have shared, with an air of authority, as 'Science Editor' how totally unprofessional of you, how unethical of the Telegraph to allow it to be included in their newspaper.

    Do you have the first clue the psychological abuse you are causing, printing these sensationalist articles, at the expense of the wellbeing of chronically ill and disabled people?

    People deserve to be given ALL of the facts, not a 1 sided argument, which follows the rhetoric of people who know that this is 'bad science', the whole trial was seriously flawed, there is still ongoing dispute from researchers, scientists, specialists."

    "
    Mark Harper 23 Jun 2017 9:46AM
    This just seems to be the same old stuff from the heavily-criticised PACE trial, which also claimed marginal benefits from graded exercise therapy for sufferers from ME/CFS. In the USA, ME/CFS has been renamed systemic exertion intolerance disease (SEID) - the clue's in the name, exertion is exactly what ME/CFS sufferers can't tolerate! Trying to make sufferers increase their exertion levels willy-nilly is dangerous and could do real harm."

    "
    Stinky Feet 23 Jun 2017 8:46AM
    This is almost getting comical. Queen Mary are so up to their eyes in it they are still trying to push this. No doubt, just as the PACE trial was, GETSET will also be de-bunked with the authors clinging onto what's left of their careers. Graded exercise is harmful, the US are strides ahead in condemning this with the NIH now funding proper science. Come on UK, catch up."

    "
    Madeline Scott 23 Jun 2017 1:15AM
    How is this study different from the one published in 2015 - widely and internationally discredited, subject to an FOI request which showed the data had been misrecorded and misinterpreted, which QMUL spent £200 000 trying to suppress, which the MEA rightly continue to lobby the Lancet to retract, and which was reported in this newspaper ... in a manner which caused a large number of upheld complaints to Press Standards?!

    It's just that on the face of it, it does seem to be entirely the same report, repeated. Why?"

    Jules Dub 23 Jun 2017 11:23AM
    Lazy journalism.... copied article from 2013 Pyschology Today; just scan the comments, on that article, and you can clearly see why the ME community/ME Sufferers, are so angry & frustrated, about such a damaging piece, 4 years on, being shared again as 'factual news'!

    https://www.psychologytoday.com/blog/sleep-newzzz/201303/exercise-and-cbt-can-help-chronic-fatigue
     

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