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Tania's journal of drug treatments and other ME things

Discussion in 'General Treatment' started by taniaaust1, Dec 28, 2011.

  1. taniaaust1

    taniaaust1

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    ah, glad you posted this as I'd forgot to do that to tell her about how my elderly friend had to once again drag me throu the house on the floor and this post of yours just reminded me. I'll see if I can get hold of her right now. I'll tell her that the support agency coordinator got annoyed with me too for sending workers overtime.
     
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  2. taniaaust1

    taniaaust1

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    What's putting me off of getting one as much as the money thing is Im not sure if it would even work well here as Ive got things usually all over the floor of my house. (With my aspergers Im very messy which was fine when I didnt have ME as I then could have a huge big clean up once or twice a day and hence keep my house good and have it clean. With ME thou, I cant do much when I go to clean up from all Aspergers messes I make. My Aspie self often just tends to drop things on the floor unless Im being very focused (which is hard with the ME).

    To give you an idea of my Aspie stuff and the mess causes.. around my seat right now, an arm length width around me ON THE FLOOR right now. Is an empty water bottle, a glass, a jug, shoes, some hard plastic rubbish (no idea why that is there as I also have a bin by me), a newspaper. Its very hard for me to focus on something which isnt holding my interest and I loose focus so easily (esp with the ME brain fatigue adding to my Aspergers).

    Its really a bad combo of illnesses to have as it takes so much effort to deal with just having Aspergers.

    I think that one of those things, wouldnt be able to do much of my house too much stuff on floor and the boxes all over the place too (whoever does my floors often has to be moving stuff). I think I'd like to be able to trial one some how first as Im worried I may send out money to buy it but then find it not too good with my situation as it is.

    When Ive been dragged throu my house Im often actually been dragged over stuff or its having to be moved out the way. Its kind of irronic that Im very particular where things go (an Aspie thing, eg my glasses all go away in size orders and the set types go into rows) but so messy with the Aspergers too.

    The other day before the workers got here I pulled the plastics out of my cupboard and they were all over the bench, I couldnt handle the way they'd been put into the cupboard all unstacked and messy and it had been bugging me a lot for 2 weeks. Unfortunately new workers still getting used to things here and doesnt know not to just throw the plastics into the plastic cupboard. (I think its interesting that people either seem to keep their plastic cupboards where they like to stack like containers or they tend to do the opposite and just throw everything into the plastic cupboard. Seems not to be a lot of middle ground in my observations of peoples plastics cupboards).

    Almost OCD in some areas due to aspergers. Its probably another reason why Im not handling idea of the robot, I cant handle the thought of having something "partly done".. a floor only half cleaned as the rest couldnt be done due to things there. A partly done job irritates me and I see it as no better then a not done at all job. Once again aspie black and white thinking, something either is done or it isnt.

    Are those robot things able to deal with broken glass at all? At times glass has been left on my floor for days. Are they as strong as a normal good vaccum with decent suction?
     
    Last edited: Jul 31, 2014
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  3. taniaaust1

    taniaaust1

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    Update
    I actually managed to get hold of her for a change (I really thought she probably wouldnt be there, ohh I just realised, its Thursday not Wednesday, its Wednesdays she's usually not there). She seemed more at ease with me today thou I was stressed as normal when I need to speak on a phone to someone who doesnt understand ME well. I think she more understood what I was saying today (anything involving wheelchairs she's often been good with.. she's in one herself, its the other stuff I find she doesnt seem to understand the depth Im being affected with.

    I told her that my elderly friend had to drag me throu the house and we couldnt use the wheelchair to get me to back after I injured myself due to the boxes not being unpacked and being in the way. She didnt hang up on me today either. She was like "so you cant get around in the house in the wheelchair and I was NOPE!! (its taken her a long time to understand that! I think my whole case due to all the different things has been a little overwhelming to her).

    I still need to get throu the her thou that I couldnt even push a wheelchair myself from my bedroom to the front door even if their wasnt things in the way as Id be wiped out after that. I dont know how to get that throu to her.

    She's sending an email to Disability Services over it to once again tell them I need to be given unpacking time support.
    .....................

    One thing I think is interesting, is that ages ago one of the home support agencies told me they would put off doing a house assessment at my place till things were unpacked. (I wish they'd do it while Im having issues but I guess they'd then have to try to do something about all this and the unpacked stuff in the way???). I guess without assessments people can turn a blind eye to the issue.

    My advocate today told me she had heard from the disability service but they still havent heard a reply back from my CFS specialist (Dr Del Fante). He's probably fed up with them, he cant do the kind of detailed assessment they want from him when he's only got to see me for 30mins in the past 18mths!!! They expect the impossible from him and of cause he cant give it. They still dont understand this so bugging him trying to get him to do reports while they wont even help me get back there to see him how ever times it takes so he can give them the indepth report they want.

    I wish my advocate would listen to me about why he wont be able to do that report. Neither her nor the disability service is being sensible about this.

    He told them I needed a wheelchair and could only walk a 4 steps on a form, so they do have that in writing (he was writing for one of my worst days thou not my very worst). He told them if they want more info to get the physio to see me and do a full report on my needs. The physio saw me and did report back to them in a very long phone convo (according to the physio who was surprised with the way they'd been treating me and the fact they are refusing to give me more support). So what do they expect from my doctor I dont even get to be able to see. (I hope it doesnt put him off of being my doctor all the harrassment he's getting from them over me).
     
    Last edited: Jul 31, 2014
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  4. taniaaust1

    taniaaust1

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    Update on my blood test situaton

    Healthscope rang me back again, its been all sorted out to get the most recent blood tests Im needing done at home. They will be here next Wednesday to do that.

    Yesterday while going throu paperwork, I find an old blood test form from Nov last year which I believe tests which werent done (due to me not having enough transport support), they are fasting blood tests the hospital specialist at the repat hospital wanted done (the specialist my GP hopes I will be able to get back too). So he certainly would still no doubt want these done (some of these may be tests I never have had).

    So I asked Healthscope that if I could give them this other form when they came and if they can take the blood for those other tests too while they are here at it. They said thou "no" and said its a rule that the doctor has to arrange it with them. ***sighs*** OMG why does life has to be sooo hard. They coming to do the other fasting one so why cant they do this other one at the same time?? (its the original form, and being a fasting test is why I wouldnt of got this one done while I was seeing the specialist at the hospital).

    Doesnt anything work on common sense? If I cant get to the blood lab to get one lot of tests done so a doctor has approved with them to have that done at my home, surely that means I cant get there either for these others. The ***balloons*** beucracticy. *

    * I cant spell it and I cant even think how to pronouce that word Im after to try to look it up, something like that but Im slaughtering the word. ***balloons*** is a replacement word some of us were discussing not long ago to say "Ive forgotten the correct word, you'll have to guess it"". Funny thou is that I can still remember the replacement word ***balloons** to use.

    I wonder if me not currently eatting is going to screw up those blood tests next Wednesday? Im going to have to eat a yogurt thou for this as its a insulin one which needs to be done 30mins after food. (I hope my body doesnt decide to throw it up or something due to starving myself).

    I ate a little bit yesterday after days of not eatting at all, had a piece of chicken and a few nuts and then regreted I'd ate something as I then felt ill after not eatting for days. (I have no plans to make myself miserable and if I feel hungry I will eat. Makes no sense to give one discomfort when Im seeking peace. I feel healthier when I dont eat. I guess this shows just how much wrong foods due to not being able to stay on the diet Im supposed to be on due to lack of support, is affecting me.
    ....................

    My mood right now is very frustrated at our whole gov and how our health places dont support us (my anger and frustration over it runs deep), Im feeling better then I was right after the frogs died, it hasnt changed how I feel about not wanting to be here. I want peace, an escape from all this, a way to leave all the frustrations and problems I do notdeserve behind me, I still want to leave this body and the horrific way we get treated just cause we have ME/CFS.

    If my posts are distressing anyone about what Im doing, I ask that you stay away from this thread as I dont want to cause issues for anyone.
    ..........

    I do have some good news, my ankle is all better again (I think the reiki really speeded up that healing of it all), well still a wee bit swollen on one side but I can now walk on it without any discomfort.
     
    Last edited: Jul 31, 2014
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  5. taniaaust1

    taniaaust1

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    Good point, thanks. I'll try to remember to ask her when she comes.

    ?? obviously something I said has confused you. I got told that the volunteer services re transport I spoke to, I was told they cant cater to the needs I have.. so they arent suitable. They said they cant tell people who may be in the car with me not to wear perfumes.

    There was a volunteer service which wasnt well followed up thou and havent rang me back. I dont have the health to keep on peoples backs and Ive already had an appointment with a place once and also rang more then 3 times and not got called back. So Ive given up on them (they were going to put me on a list to get a gov handout computer too but Ive no idea if that was ever done. I cant remember what that one was called now (it would be somewhere in my notes here but there is too much in my notes of what goes on to find things), it was one I was trying to get garden support throu. I need a support worker chasing things up for me but of cause I dont have one.

    Helene from disability services, who gave me all those issues last year and wouldnt believe my issues and said horrible stuff to me "CFS doesnt cause that!" , she was their social worker I think. The disability services usually give their clients a social worker if needed but of cause they deem me not to need one as they wont believe how sick I are.

    I recently got told due to cut backs that social workers dont now do practical support things for people and now are concentrating on just counselling people (which helps none when one is in my situation and needs everything being chased up and do not need "well how do you feel today?". They arent able to do letters for people anymore and they do not do advocacy (as that is the job of the Advococy and Complaints place Im already doing with).

    The volunteer service (red cross transport), their volunteers have rules they are under to work for that service. , Ive only got to talk to one of the volunteers and Ive (twice I think it was) spoke to their head person begging that their normal rules can be broken for me but they have rules.

    Its irronic as people dont smoke in cars due to it not being good for people and affecting those with asthma, but if someone has ME/CFS the big volunteer services dont cater for this and cant make sure you wont be the only person they are picking up and cant say to whos going to be in the car "no perfume or deoderants please".

    Well I dont for the council gardening help as they arent allowed to help anyone who is a client of disability services as it is expected they'd be helping that person. If I was a normal member of the public on disability and not so bad that I was in need of the home support I get from the disability service, Ive been told I'd be able to get helped twice a year with my garden. (orginally I was told I didnt qualify based on my age but in more recent times was told the above). Everywhere has rules. I told them that disability services was refusing to help me but they said they cant do nothing due to that rule (so in other words Im too ill to qualify for their help in an irronic way for a bit of GARDEN SUPPORT)

    (if anyone feels like calling them and telling them this is very unfair when disability services is refusing to give me the gardening support, that the local council gives support to others on disability less disabled then me (eg not requiring the other gov services), feel welcome to ring them and say something. sorry I cant remember my local councils name, Okporinga council or something like that (Ive no idea how to spell it right now). The fact I forget names of everything, makes this all harder as I spend so much time looking up names only to loose them or forget again.

    Ive put in a lot of my health trying to get the support and truely have tried so much.

    No my carers cant with the hours I get my support for, they probably cant even if they wanted too (which they dont or otherwise they'd be doing it, one often is having to work while her child is home, the other now is doing a lot of hours with doing 2 jobs now that she's with second agency). The agencies are very very likely to have rules about socialising with the clients out of hours in case some kind of abuse happened.

    Its not that issue. Im dealing with those who run the orgs and they have rules, whether too young, too ill for us to be dealing with, we cant cater for you due to your perfume isues or you are someone who needs a carer with you as you need the care support etc.

    Is not that they dont believe Im not sick, its rather Im too sick and they dont help those who have the degree of issues I do. I get told by everyone that disability services should be helping me.

    I probably should be dealing with an MP (member of parliament over my situation), that is one thing I havent tried and lots of people have told me I should). Im just already trying to deal with too many (I end up being on the phone most days at some point trying to sort something). I guess someone should be telling them that the Sth Australian services are completely failing ME people.
     
    Last edited: Jul 30, 2014
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  6. taniaaust1

    taniaaust1

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    Wow, Im looking up the yellow pages right now to try to find a lawyer who does injury claims and stuff, the other place was right, the No win, no fee ones are clearly listed. I just got to ring them and find out if any will take on a person with a government services abuse/negect/discrimination/injury claim.
     
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  7. taniaaust1

    taniaaust1

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    Finding a private lawyer update

    Im worried otherwise just how long the EOC referal to someone else will take if I keep going throu the Equal opportunity commission process. Im no longer really trusting of any gov dept services so would like normal private lawyer if possible (thou if I cant find another to take on my case I will have to wait and go throu the other route).

    I just rang Nick Xenophon and Co Lawyers but apparently they specialise in personal injury, medical neglect done by doctor cases. The lawyer was very nice but said they deal with doctor neglect cases and he wouldnt feel right due to dealing with this due to its not their field of experience, so he's given me the phone numbers of 3 other law firms who deal with situations such as mine more.

    This lawyer told me that some lawyers do home visits! but he didnt know if the 3 he was recommending for my case do or not so I'll have to ask. FINALLY seems I have some hope here seeing a lawyer could come and see me at home.

    I just rang one of the law firms I was given by the other lawyer but all their lawyers are out right now so someone will be ringing back.
     
  8. taniaaust1

    taniaaust1

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    The recommended lawyer has rang me back and we had a good talk (he was very good and didnt rush me on the phone at all and allowed me to say all I had to say).

    He says he wants to look at any paperwork I have before he will take me on or not and I said I'd post it to him once I get it all together which may take me 2-3 weeks (hopefully my friend can help). It didnt put him off when I said I would need a visit at my home and that I was in seaford rise (their office is based in the city, which is probaby a 45-50km drive from me).

    Ive misplaced lots of the letters, I really really hope my friend who tries to help me with my paperwork stuff knows which of the many folders I have certain things in.

    Im so glad I contacted him as he's told me I'll have to ahead with this case very soon if he takes it on as discrimintion case over the discrimination over not refering me to see physio for wheelchair over me having ME/CFS etc, etc discrimination cases need to be done within 12mths!!!

    So if I kept down the path I was doing, trying and trying to get it sorted out, it would of been too late for a court case for this.

    I shouldnt be so suspecious but I now wonder if that is why disability services is making out they are trying to sort it out by doing things in a way they wont be eg demanding a detailed report from a doctor whos only seen me for 30mins in the past 18mths and also contacting him and not my other doctor, when I had told them he was on leave!! Could they be purposely delaying things for me till it was too late for me to take them to court???? (Im sure they probably have sought their own legal advice by now and know more about how things legally work then me).
     
    Last edited: Jul 31, 2014
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  9. MeSci

    MeSci ME/CFS since 1995; activity level 6

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    @taniaaust1 please make sure you have copies of everything you post off in case it goes astray, and maybe use a special delivery service that requires a receipt.

    If you just scan everything on your computer that should be OK, but make sure you back the files up on at least one external drive (e.g. memory stick).

    I speak from bitter experience of important things going missing in the post AND data being lost from computers and external drives. I was very glad I had started backing stuff up on two drives recently - even though it's a hassle - as I lost everything again this week from one memory stick. The first time I lost the data I had to invest in a data recovery program, but they don't work perfectly and you have to re-catalogue everything into the right folders again.
     
  10. golden

    golden Senior Member

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    Clear Light
     
  11. golden

    golden Senior Member

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    I am going to make more confusion if i try to post from my mobile as the discussion gets more complex. Many ridiculous technical difficulties. Will be able to get to a computer next week -

    But on one or two points - I do clearly recall your transport issues with the public and perfume etc. And my brain did extend this to volunteers coming into your home with perfume and washing powder (i know some hsve)

    Sorry about that. I need to re-read the posts.

    It is good to read that you havent come to a rejection from the volunteer links - more just a pause and rest in communication - I do think these offer hope....its a nuisance they have to be chased up though...

    Its great news the lawyer.. I do believe disability have been intentionally stalling you!!! Good For You :)

    Getting the disability to do what they are supposed to will obviously solve most issues.... I hope you get plenty of compensation too to try to regain some of your health back that they stole from you . I wish you and your friend much strength and determination and clarity in organising and copying all the relevant case for the lawyer.

    I can offer to help chase up these volunteering services if and when you need - via email - let me know.

    So far, the emails i sent out dont cover your area or i have been given links to places which do cover the area but for the aged or some other such rules. You know how that all goes. There are many more to try.

    Best to wait maybe now until you hear from your lawyer?

    There is ALWAYS a way through these dismal Situations.
     
  12. taniaaust1

    taniaaust1

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    At one point I was paying extra when I was posting things as things were getting ridiculous as DisabilitySA several times said they didnt have stuff I had posted to them, so I started making people sign for my letters and was keeping the special sticker thing one gets when one sends via that kind of post.

    Thing is I ended up with quite a few of those stickers with no idea to what letters and places they were for, it ended up a shambles. So all it ended up causing was a waste of money (as it was a lot more expensive to do that). I wish I'd been organised enough to stick the stickers on the copies of the lettters, ***sighs*** I only now just thought of that.!!! :( (Its like I dont even think of the obvious when Im needing too and then everything ends up messed up).

    Ive never used a memory stick myself (my friend has used his for me in the past eg he did the 23andME raw data download onto his memory stuck as I didnt know how to do it), Im arent confident with doing stuff on the computer. He has shown me things before but I keep forgetting. I did recently in the past 2mths buy one thou but yet to be working with it.

    My ability to learn new things currently is quite poor (and even when I do learn something new, its often dropping right out of my head shortly after).

    I have thou got things so that if I cant find the printed copies of my letters, they should be all there scanned into the computer and I are a bit more organised there with most of them should be in a certain file (others are probably randomly about my computer hence why I havent gone straight things this way.

    Im concerned what letters could be "randomly about" hence a nightmare for me to find, and which will be easily found in the file I nowdays store letters in). So Im currently in avoidance mode in case I look there and the situation is worst then currently aware of (Im hoping most things will be there). So fingers crossed I will be able to find all the things I need but just with time and hard work (searching for things is hard on my head).

    I do not know how to do any of that backing up stuf from just putting things into ordinary computer files, and learning computer stuff is just way to overwhelming for my head and me right now.

    For me its not about it being a hassle, but just cause Im finding learning difficult and I end up loosing out my head what Ive managed to learn even thou it takes heaps of effort to try to get something ingrained into my head in the first place. I usually get headaches and highly stressed when Im trying to absorb info Im struggling to absorb and trying to make my brain do so. (then with a worst brain and gone into mind fog, I end up going into emotional issues due to all the stress).

    Last time I was trying to file my things, I was struggling to know the alphabet and I was attempting to file test results in alphabetical order of what they were. It was sooo hard when I couldnt work out what letters came before what. (Im not kidding but I think I went throu the alphabet about 30 times to do what should of been a very simple thing). Thats what lead to my sprained ankle the other day, Id just done that and then went to stand and my brain and body wasnt working to the point that I didnt coordinate where to place feet or something (and then one of my legs gave out).

    Brain work really wipes me out and putting things in alphabetic order so I could find them.. very hard work on my brain!! so has often carries consquences for me.

    **fingers crossed I will be able to find all I need** My friend last night informed me he will be visiting on Monday. I was going to get him to help me finish finding my medical info for my medical file and possibly run me down to my doctors clinic to see if she has a couple of a couple of my medical things which seem to be lost (as paramedics were requesting to see it last time and not having all my stuff there may of lead to the bad treatment I recieved from).

    Now Im wondering if I should get him to use his time with me then to help find all the letters from the agencies for the lawyer esp since the lawyer said I need to hurry if I want to have things happening in the time we have to do it.

    There is too much stuff to sort. Im still doing at least phone call every day Im okay to do one while trying to sort out things (at times up to 5 a day which gives me intense anxiety as I have issue with phones, I find i so hard to focus taking on a phone).
     
    Last edited: Aug 1, 2014
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  13. taniaaust1

    taniaaust1

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    What I'd love to do is to get enough that I can not have to deal with them anymore, it stresses me out having to deal with them. Im to the point where I want a massive payout so I can pay for the support services I need. I no longer wish to deal with a dept which has discriminated against me for years.

    Thank you.

    Its in my posts somewhere on this thread, an org or group which where going to refer me to another group to see if they could do gardening here (the one who didnt ring me back but I did have an appointment with but had no follow up). Im not well enough to be going throu 20 pages of posts or so to find it, to do that, that would make me sicker (This is one of my issues, even when Im making a lot of effort to keep good notes on my situation, there is so much going on that I cant find the info again, trying to do so exhausts me and sends me into relapsing further. I wish my brain could just remember things.

    If you ever have enough health to not knock yourself around doing it, you could find the name from my posts and let me know, Im sure I'll know it if hear it (its like just off the grasp of my memory). If you found right now, maybe they have an email (I was only trying to deal with them by phone, I may of posted something to them, but can remember). Ive no idea if they have an email address.

    The other volunteer services Ive tried are deadends as the wont change rules or just wont so cant cater to my current needs (so I cant see any solution). I dont mind you trying any church ones for me if you find any of those, if you think they wont mind helping a non christian without giving me a hard time by trying to convert me. As I only are taken to the shops and back here, I dont even know what churches are around my area.

    Its up to me now to do the next step there and get all the info into him. I will have to do much of that as its going to take a lot of work to get all things together to MAKE SURE he takes my case on and can easily see I can win it.

    I know disability service will say things like "she didnt take up the volunteer services transport option" and things like that, so Im going to need to also prove that those werent in fact suitable option for me eg write to them and get letters of the things which show why they werent suitable. None of that is currently is in letters as the rejections etc have all been done by phone. (thou there is a lot of other stuff there to precede with a case but then how I do I prove I was telling disability services I needed a wheelchair for a long time? They've lied in the past and I know will lie in court, no doubt they will try to say I wasnt asking for long).

    Unfortunately most of it will need to be done by me as he's currently only here once a week for a short time but thank you.

    Maybe but I wish it wasnt having to have the stress of taking gov depts to court and if I cant find a lawyer to take this on, I honestly cant see a way out of my issues. Finding help sounds far easier then Ive found it to be. The more people a person has around them, the more easier it is for those people in their network to find others to help so unfortunately when a person has a little network, it doesnt expand out much.

    Ive thought about adverstising in a newspaper but in the past people have taken advantage of me, so that makes me wary of complete strangers with no supporting org or no one I know referencing them. eg I wouldnt like to be giving someone my bankcard to run down to the shops who I'd hired from a newspaper. People take advantage of vulerable people and cause I have Aspergers, I have no good judgement at all of people (and this has caused a lot of trouble in my life)

    You probably dont remember from my earlier posts, but I had some very bad gardener experiences from people not professional gardeners.

    One arriving here with a male friend (the other hadnt even come to do any gardening), drunk to do my gardening (he actuallly was going to do the work with a bottle in his hand) , he started yelling at me and acting agressively and cornered me and I felt threatened so ended up in my stress hitting the guy in the head. (I lash out if I feel very threatened and get scared) who was then going to report me to the police. Ive had an assult change put onto me in the past a long time ago.

    Fortunately on that occassion the guys drinking buddy he'd brought to my place with him, wouldnt support him in pressing charges against me and stopped him going to the cops but I was left with a lot of stress as the guy was still insisting on going to the police when he left my place. I spent 3 weeks in fear, wondering if the police were going to turn up on my doorstep.

    Another guy wanted my money for the gardening up front, said he needed it for petrol for the lawn mower etc and then run off with my with money and only did a little of the work.

    Those incidents happened to me within the past 5 years.
     
    Last edited: Aug 1, 2014
  14. taniaaust1

    taniaaust1

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    I started a PR thread about the following but thought I'd mention it here as this will may affect me and I have been wanting to see if I can get help throu these.

    I wonder if Im one of the persons who needs to wait or not as I have contacted one of their team by email asking about if there is anyway to do distance appointments a long time ago now (as I dont manage to keep up with my emails I dont even know if they ever responded. They didnt have like a reception which could be rung).

    Maybe I got added to their list and dont even know?

    This below is interesting too

    So hopefully this could help things.
     
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  15. taniaaust1

    taniaaust1

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    I had a half a glass of milk earlier and its made me feel sick/nausea like throwing up and actually sent me into dizziness. I know milk isnt good for my ME/CFS body but was surprised at just how dizzy it made me, the bad affects from it were amost immediate. (I think the issue for me is with the milk proteins so I was interested to see in the latest ME/CFS InvestInME Conference that it was found that children with ME/CFS often have issues with milk protein). I think I'll stick to drinking water.
     
  16. Valentijn

    Valentijn Activity Level: 3

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    Amersfoort, Netherlands
    If you have an allergy or immune reaction to food it can cause hypotension very quickly. I have this happen, and it's pretty horrible.
     
    taniaaust1 likes this.
  17. golden

    golden Senior Member

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    Clear Light
    No, i think that was before my time here - thats terrible w/the gardener. Terrible.

    I agree must be very careful and through professional agencies are most likely the safest.

    And yep you dont want to find u have been accidentally converted or brainwashed by a religious group :-/

    I think when my evangelist neighbour came to realise i wasnt going to be taken in by her hogwash - things changed. I now no longer even accept the 'Good News' newspaper she posts. I told her not to post it - it stopped for a couple if months and tgen this month i got another - so i just posted tgat one back...

    When I understood her real thoughts and what she had been doing as a missionary in Africa all those years I was really shocked.

    Still I think in theory, a church group dedicated to helping is a plausible resource - and often holds professiinal accreditation

    But yes, i will look through the posts from a computer for details. Not a problem.

    I hope your friend can find additiinal time to help you - as this is an important junction.
     
    taniaaust1 likes this.
  18. MeSci

    MeSci ME/CFS since 1995; activity level 6

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    Haven't read the latest messages yet - still ploughing through the thread on the Daily Mail article, but saw that you were trying to borrow a camcorder, @taniaaust1. Just had a quick look on ebay Australia and found one that sold for just Aus AU $20.00 Postage: AU $16.35. A good Panasonic one sold for $70.

    You could upload videos to YouTube (but I guess you'd need a better computer/connection first).

    I posted the info here so as not to take the other thread O-T.
     
  19. taniaaust1

    taniaaust1

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    ok, I'll test that out in the next couple of days with the milk and this time take my BP when I start feeling dizzy. I didnt know foods do that.
     
  20. MeSci

    MeSci ME/CFS since 1995; activity level 6

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    Cornwall, UK
    There have been a few threads about this already, and it looks very promising. Here is one.
     

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