1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
New Exercise Study Brings Both Illumination and Questions
Simon McGrath looks at new objective evidence of abnormal response to exercise in ME/CFS patients, and the questions that researchers are still trying to answer ...
Discuss the article on the Forums.

Tania's journal of drug treatments and other ME things

Discussion in 'General Treatment' started by taniaaust1, Dec 28, 2011.

  1. MeSci

    MeSci ME/CFS since 1995; activity level 6

    Messages:
    3,486
    Likes:
    4,072
    Cornwall, UK
    I don't know how you cope with all these phone calls, Tania. I wouldn't be able to. I try to get everyone to communicate by email. Another advantage of that is that you then have a full record of everything.
  2. golden

    golden Senior Member

    Messages:
    1,831
    Likes:
    1,068
    Clear Light
    Yes I agree with MeSci on that. Phone calls are a nightmare.

    However, I had a lot ofvproblems getting a direct email to my water company - an INDIVIDUAL lol to take responsibility and stop passing me from pillar to post.

    When they did finally give me an email (i claimed disability discrimination if tgey would not)

    it was much easier.


    My most recent bad chiropractic consultation that was torture due to the rapid fire questions and scale 1-10 etc. i have been having another nightmare with them trying to communicate via email as its not the usual way they do things.

    My local G.P. no longer has an email. And I caught them out big time via emails.

    To be honest I think its unreasonable not to be given the option of email. And misunderstandings are far fewer.
    I was wondering if there is something of this in the disability act?

    best
    golden
    taniaaust1 likes this.
  3. MeSci

    MeSci ME/CFS since 1995; activity level 6

    Messages:
    3,486
    Likes:
    4,072
    Cornwall, UK
    The law will vary from country to country. I tried to find official UK government info on the issue and failed, but this page gives some guidance on the UK situation, saying:

    But I don't know what the law says in Australia. However, one would expect disability services to make allowances and adjustments for disabled people!

    BTW the relevant law in the UK is now the Equality Act. The disability laws were previously under the Disability Discrimination Act.
    taniaaust1 likes this.
  4. taniaaust1

    taniaaust1 Senior Member

    Messages:
    7,920
    Likes:
    4,882
    Sth Australia
    I dont cope well with the phone calls and with the Aspergers its even worst as I hate talking on the phone to people I dont know.. on top of the ME issues I have with phones. I try to keep my phoning people down to only one call per day if Im well enough to be doing calls...as I get so stressed out about it. (Im often a crying mess over having to do phone calls.. Ive got a near phone phobia going on too due to all the trouble I have on the phone. It's not unusual for my friend to have to make a call for me as Ive gone to tears over it).

    Im thou having to take calls myself a lot.. which is quite bad as at times Im then woken up when Im sick and needing to sleep. I think I may of had a call from my Advocate last week and was so out of it at the time that I couldnt get it together to work out what was going on (I think she may of rang and woke me up.. Im not sure..it may of been a dream. I need to ring her and ask..but if Im sick in bed.. at times I cannot make sense of calls coming in!!).

    Its no good me having message bank as then I just end up completely overwhelmed with all the ring backs I have to do as soon as I have a decent day.

    And my email box.. I get completely overwhelmed with it.. I have so much going into that that I cant find important messages and I cant keep up with keeping it cleaned up, my friend used to try to keep up with it for me but he's given up too with it at this point. (I miss many important messages there!!). I find it so overwhelming there that I hardly even go to it. The safest and best thing for me is probably postal mail (but that is an issue too as I forget to post things and keep misplacing the letters).

    I dont manage a lot of things..hence another reason why I dont do anything like FB either.

    I simply arent really managing.
    Last edited: Mar 30, 2014
  5. taniaaust1

    taniaaust1 Senior Member

    Messages:
    7,920
    Likes:
    4,882
    Sth Australia
    silicone hands.jpg Brain Issues get me into a big mess

    I was fixing something outside today and ended up getting my hands covered with silicone (I forgot to use the plastic I was going to smooth it with which I had ripped off and had sitting right next to me to use)... cause my brain wasnt thinking well to top doing that, I then ended up getting my hands covered in dirt. I stupidly by that point had started thinking it would just wash off (no idea why I even thought that).. forgetting that I have the rocks stuck with this around the top of my frog pond and its permanent!

    Anyway. with my brain dysfunction issues.. this is how my hands ended up (this feels horrible on the hands too! and now I got to wait for the natural process for the skin to slough off!!! which could be weeks :( (I honesty feel like Im a walking disaster whenever I try to do something I seem to create issues). Its lucky Im not working in a beauty parlour!
    Last edited: Mar 30, 2014
    Little Bluestem likes this.
  6. taniaaust1

    taniaaust1 Senior Member

    Messages:
    7,920
    Likes:
    4,882
    Sth Australia
    overwhelming medical paperwork and letters.jpg My elderly friend is usually my fix it person but he's not getting time to do any fix it things for me due to having to help me with so much other urgent stuff (othewise I wouldnt have ended up in the mess Im currently in mentioned in last post).

    Last time he was here.. he spent 3 hrs collecting all the paper work I had all over my house (test results, medical letters, medical info..medical and medical that.. my paperwork chaos.. he even was finding bills which hadnt been paid and forgotten about). and shoved in folders to be sorted, he has taken it all home with him to spend the past week trying to sort as Im to the point that just looking at that is overwhelming me right now (all the sorting is too much on my head and it just makes me think of all the issues Ive had with disabilitySA and the letters Ive tried to write and the ones Ive done which have been ignored..so makes me cry or want to run).

    The unfiled paperwork which was around my house..much of it things Ive been looking for some for past 6mths (much of the stuff I need to get together for the legal case is mixed up with this). The piles in this photo are actually 3 inches high!!

    Im going to feel sooo much better when that is sorted and Im able to find things when needed again. Its bad enough having to do so many letters without looking for days (and usually not finding what I need) each time Im needing supporting paperwork to back up whatever Im saying.
    Little Bluestem, MeSci and Valentijn like this.
  7. taniaaust1

    taniaaust1 Senior Member

    Messages:
    7,920
    Likes:
    4,882
    Sth Australia
    lump.jpg This morning I woke up with this inflamed 1 and a half inch lump on my inner thigh (that's not a knee in this photo! that lump shouldnt even be on my inner thigh there which should be smooth right down the leg there). It was sore, red and weeping in sections.. boil??? staph again?? (the lump on feeling it is going in deep) .. who knows Ive both these things before which caused lumps. (when I got a lump in the past due to what a doctor thought was staph in the past.. it took about a year to fix and lots of antibiotics..but that went black but started out red). So today it was hurting as I walked as my leg then rubbed against the other in that bump area.

    Anyway.. another thing I now need to watch to see what this area will do next.. heal or get worst... I may have to lance this or drain it myself with needle and syringe.
    Last edited: Mar 30, 2014
    MeSci likes this.
  8. MeSci

    MeSci ME/CFS since 1995; activity level 6

    Messages:
    3,486
    Likes:
    4,072
    Cornwall, UK
    Could it be a bite, Tania? I often end up with various lumps after doing gardening, some itching, some oozing, various sizes. That one sure is a biggie!
  9. taniaaust1

    taniaaust1 Senior Member

    Messages:
    7,920
    Likes:
    4,882
    Sth Australia
    Ive no idea what it was. I couldnt see any dents in it to indicate a spider bite or something like that.. it was there when I woke up.. lasted about 24 hrs.. fortuanately whatever that was (I didnt realise that picture was that blurred), went away itself.
    MeSci likes this.
  10. Nielk

    Nielk

    Messages:
    5,231
    Likes:
    5,111
    Queens, NY
    Tania@ have you been ruled out for rheumatoid Arthritis? I have been recently been diagnosed with RA and have been reading up on it and this is a very common problem in RA.
  11. taniaaust1

    taniaaust1 Senior Member

    Messages:
    7,920
    Likes:
    4,882
    Sth Australia
    Family Stuff

    Im back to worrying about my CFS sister. She visited me the other week and then spent a week sick in bed, with pains and ended up vomiting. Her husband ended up taking her to the hospital (apparently a 5hr wait to be seen) and they gave a saline IV (is this coincidence that both me and her have ended up at the hospital in the past 2 months needing saline IV). At the hospital she found out also had a fever and her diastolic BP reading wasnt at all normal for her (its jumped up 20 ..from 70 to 90, while her systolic BP is the same)

    She's not relating what happened to her CFS which still has denial issues over... I look at the fact that she went out all day visiting and then ended up sick for a week, its looking to me as post exertional stuff. I dont think she's ever had a fever with her CFS before and she's never had diastolic issues before either (she was surprised at that) It looks to me that her ME/CFS may have gone to a new level.

    She's currently enrolled in an accrediated childcare course (I was happy when she missed out on her midwifey course as I know her health is too bad for that), only just started the course a few weeks ago but had to take the week off due to being in bed, so now they've asked her to get medical clearance before she returns.

    She's so frustrating me as she's still refusing to go and see a CFS specialist and just says its probably a once off thing (she usually blames eatting wrong but this time she didnt eat anything bad so couldnt blame that). Im very worried next time she ends up sick like this.. maybe she could loose her place in the course.

    I guess there is nothing I can do for her when she wont heed any advice (she's so lucky to have someone to give her advice, I wish I had someone to when I was in my first years of being sick!) but it looks like her CFS is now heading more towards ME and the symptoms I have eg dystolic hypertension.. I wouldnt be surprised if hers was orthostatic too as she said there was nowhere to lay down in the waiting room so she was forced to have to remain upright.

    OMG.. a 5hr wait.. reminds me why I hate going to hospital emergency. its horrendous that ill people are kept waiting this long. (I think I may of had a 9hr wait one time). (she said the hospital had no spare beds to put her into and had to wait for a bed).
    ...........

    One of my non ME/CFS cousins.. had to be flown interstate (Sydney) for brain surgery. They found a brain tumor (I havent heard yet if its cancerous or not). She's in her 30s. The way my family is going I wonder how many of us will make it to 50. .. 17 of us (im the eldest at 43years), 4 of us with ME/CFS and even the healthies in my family seem to be getting hit with things (my cousins mother died when she was young child from cancer..leukemia so having a brain tumor must be terribly scary for her)
  12. taniaaust1

    taniaaust1 Senior Member

    Messages:
    7,920
    Likes:
    4,882
    Sth Australia
    A home visit with a lawyer

    I had my legal appointment with a lawyer yesterday.

    Thank God my friend put in so much time helping me get ready for the appointment with her!!!. The lawyer couldnt understand why DisabilitySA says I dont need a caseworker, I was almost brain dead as I'd wiped my brain out before she got here getting the last few things ready. I was too the point where I couldnt even read!! (so that made it near impossible for me to be able to hand her things she was asking to see. I was a mess (not emotionally at all on this occassion but just completely incapitated by the ME brain stuff).

    I couldnt answer the questions she was asking, even basic stuff I was struggling with. Fortunately my friend had showed up as he had to really really help with the appointment and answer many of the lawyers questions. I was so incapitated by my brain that I couldnt even tell her who all my doctors were!! (so she's left without knowing half of them).

    This lawyer was nice and seems like she will be quite efficient.

    She didnt take with her or want to read stuff I'd printed from online to help make her more aware of the health issues I have and obviously didnt know much at all about CFS.. I got the impression that she probably just thought it was about fatigue (sighs.. Id put a lot of time and work into getting together very good info on ME/POTS,MCS etc too). She has thou taken all my abnormal test results,doctors letters and also letters from the orgs Ive been dealing with back with her to read (which is going to be very confusing for her as there is so much wrong stuff in those letters, stuff in disabilitySA letters and things which hasnt been corrected or I havent responded back to to try to correct due to being so ill) and she'll get back to me with she discusses my case with her legal team.

    Anyway.. I'll have to do a letter to fill her in on all the stuff which wasnt said, other doctors, other people who can back up what Im saying etc etc as I was too brain dead during the appointment. She did seem efficient so I think she would follow things up.

    Anyway.. more on this at a later date.
    .......

    She needed to use my loo while here and I think she was discusted by it.. and my floors. They havent been done now for over 2 months due to not enough support time. Pity she didnt use my bathroom.. that is very terrible right now (she washed her hands unknown to me at the time as I was so out of it, in my kitchen sink).
    Last edited: Apr 3, 2014
    Valentijn, MeSci, Ritto and 1 other person like this.
  13. MeSci

    MeSci ME/CFS since 1995; activity level 6

    Messages:
    3,486
    Likes:
    4,072
    Cornwall, UK
    Good that you have seen a lawyer and that your friend turned up to help. How is the service being paid for? What action are you needing her to take, or is that being left to her to advise on?

    Lawyers tend to be pretty intelligent, so hopefully she will see the inconsistencies in the letters and thus see how incompetent the disability services are.

    Having said that, washing one's hands in a kitchen sink after using the loo is not an intelligent thing to do! It's the last thing you need - loo germs where you wash your food utensils. My best friend went to do that once and I stopped her. My downstairs loo doesn't have a washbasin so I had to send her upstairs to the bathroom.

    Good luck with it!
  14. taniaaust1

    taniaaust1 Senior Member

    Messages:
    7,920
    Likes:
    4,882
    Sth Australia
    It is a free legal service thing which the Equal Opportunity Commissioner gave me the phone number of when I said I needed things sorted out fast (something different to the normal legal aid stuff).
    .....

    Yeah, I was so discusted over washing hands in my sink thing, I myself wouldnt even do that!! (I was annoyed at my friend for not stopping her as he knows how much I hate that as he used to wash his hands from the toilet in my kitchen sink and I made him stop doing that).
    MeSci likes this.
  15. taniaaust1

    taniaaust1 Senior Member

    Messages:
    7,920
    Likes:
    4,882
    Sth Australia
    :( Its 2.44am right now and Ive been up since 2.30am cause Im feeling so hot that I cant sleep, I was trying to sleep without any blankets and naked too but still feeling too hot. I just looked at my house thermometer and its actually only 15C (that's 59 degree Fahrenheit) so obviously Im either feverish or my sense of temperature has screwed up again (something not abnormal for me). (I feel too physically exhausted right now to go and get a thermometer to try to find out more what is going on with me right now.. the furthest Im going is to my computer/loo). (Im thinking about having a cold bath but maybe that isnt a good idea if my body temp isnt up, I have needed medical treatment for hypothermina before).

    I think part of my issue right now is that Ive lost my Florinef (or maybe I finished the bottle but have forgotten I did so?) so havent been able to take past few days and I stupidly forgot to get new Florinef when my support workers were here and took me shopping . (So me feeling hot may be cause of dehydration as Im struggling to keep my fluids up and just peeing them all out.. Im peeing every hour even when Im trying to sleep its waking me up). I soo need my Florinef (I wonder if the chemist is open on a Sunday and if they can home deliver them.. I need to get some! this is currently not good at all).

    I went into the chemist too but that still didnt trigger off reminding me that I needed Florinef, things were screwing up there. I was trying to get glucose strips for my glucose monitor as Ive run out and didnt realise that they are over $50 unless Im joined up with the diabetes place in which they are then only $1 something!! I'd been given the paperwork to sign up for this diabetes thing in the past but didnt sign up as I wasnt aware I had to do so to save that money..

    besides I got the monitor due to hypoglycemia (along with prediabetes) so didnt think I could join up with a diabetes org thing so being naive about what I needed to do. I threw the paperwork out (actually someone at a chemist may of previously told me I couldnt join as one had to have actual diabetes to do so..but now I have 2 different ones at the chemist telling me I still need to join.. its confusing as heck!). One would of thought having a disabiliy pension card would of been enough to get them discounted.

    To get the paperwork again for this diabetes place for the glucose strips, turned out the chemist doesnt keep it. I was going send it in unsigned by dr but with a copy of the letter from one of my specialists to my insurance company saying I need the glucose monitor hoping that would be enough. So it looks like the only way I can get my glucose strips is to get to a dr to get the paperwork and get it filled in (and as people here know, I struggle greatly to get to drs and thou I now have been granted a few trips to a few drs of mine.. I think I have two left.. once those appointments Ive been taken too.. I will have to fight for help to get to more. The disability service took a whole year to give me approval for support person to get me to ones Ive been given now, I need the appointments I have now for other important stuff.

    So I was then going to try to get a home call out dr in to do it but the chemist has told me such a dr wouldnt have the forms I need on him to do so.

    grrrrrr why does everything have to be so difficult!!! Anyway.. so currently Im without glucose strips (which make it harder for me to work out what is going on when Im very ill) and also without my much needed Florinef (so feeling now like Im burning up..unless its something else to do with my ME).

    So things are falling medically apart right now. Being forced to have to go to a dr to get what I need right now is bad as I needing to be focused on getting more of the paperwork done.. I still havent put in the complaint over when I got mocked at the repat hospital by the head nurse for having MCS (Im worried its going to be too late for them to look into by the time I get the complaint done).. and the Equal Opportunity board is still waiting for a reply, I've extended the deadline they gave to have a reply in but the way things are going if more stuff keeps coming up, Im not going to be able to meet the second deadline either.. Going to the dr will remove the day I had allocated for doing important paperwork. I will now be wiped out for a couple of days from going to a dr instead to get the paperwork done for the glucose strips.

    So I wont have a chance then to be focused on this till a whole week later as I get PENE with other stuff on the days my support workers come. I think Ive already used up 2 weeks of the extention time now due to putting all my focus on getting ready for that lawyers appointment I had instead (and its going to take me more then a week to get the reply for the equal opportunity commissioner done.. **sighs** :( doesnt look like i can do it in the time.. going to a drs appointment will only leave me with 1 week to sort out the other). With time limits for things, its being impossible for me to get done the things I need to do (Im annoyed that many of my other complaints have been ignored as "you complained too late").

    *I have repeat prescription for the Florinef from last drs visit so that isnt an issue as long as I can access it from the chemist!
    Last edited: Apr 5, 2014
  16. taniaaust1

    taniaaust1 Senior Member

    Messages:
    7,920
    Likes:
    4,882
    Sth Australia
    Ive had only 2-3hrs sleep in the past 36 hrs.

    Today Ive tried to get a home call out dr to see if they carry any florinef to give me but found out that isnt one of the drugs they carry. I also called my drs surgery to ask about form so Im not paying heaps for glucose test strips. This phone call left me feeling EXTREMELY FRUSTRATED after two chemists telling me I need to get the form from a doctor, well the doctor has now told me on the phone that I'd need to get the form from a chemist!!! and wouldnt believe me that two different chemists told me that only doctors have the form Im needing. Talk about crazy. Anyway.. finally the doctor told me to phone the diabetes foundation tomorrow and ask them for the form.

    Obviously Im not thinking straight at all as on rereading my last post I see I was at 3am in wee hours of morn..thinking about seeing if a chemist could deliver my Florinef today but then I spent all day today (during business hours) when the chemist would of been open (???) thinking that chemists dont open in Sunday. My sister has just informed me she thinks they do and has now jjust offered to take me to the chemist to get my drug seeing she's got a child out my way to pick up soon. (my thoughts are chopping and changing of what I can and cant do, due to info drop outs in my brain.. certainly worst right now due to lack of sleep).

    Anyway.. Im going to be a much happier girl when Im got my Florinef and dont have thirst which is driving me crazy (even drinking a lot isnt relieving it).
    MeSci likes this.
  17. AndyPandy

    AndyPandy Making the most of it

    Messages:
    210
    Likes:
    452
    Australia
    Hi Tania
    I get my glucose testing strips at a cheaper rate through registration with the NDSS. This is the national scheme in Australia. You will find the registration form online at www.diabetesaustralia.com.au/ndss Click on registration and it will bring up the form you need.

    It looks like the scheme is limited to diagnosed diabetics which might be a problem for you, but they have an info line which you might like to call to check. I am not sure if there are other ways of getting cheaper testing strips.

    Once you are registered, they send you a registration card which you have to produce at the chemist to get the reduced rate. I think you might be able to order online and get them delivered through the various State and Territory diabetes organisations as well, using your registration details.

    Best wishes.
    Indigophoton and MeSci like this.
  18. Little Bluestem

    Little Bluestem Senescent on the Illinois prairie, USA

    Messages:
    2,504
    Likes:
    1,853
    Midwest, USA
    Rather than going to the dr. with the forms, could you mail them along with an addressed, stamped envelop for him to send the form to where ever they are to go after he has filled them out?
    Indigophoton likes this.
  19. taniaaust1

    taniaaust1 Senior Member

    Messages:
    7,920
    Likes:
    4,882
    Sth Australia
    Hi Andy, thanks.. the form I'd been trying to get was for joining the NDSS.

    I finally did end up managing to get the form I was being told by the chemists I needed (but they didnt have)... turned out one of the chemists which had told me they didnt have that, on another day I got taken back and asked someone else there, I found out they had the forms after all!!

    Then but when I read the form they were all saying I needed, I could see I didnt qualify as I dont have diabetes but have severe hypoglycemia attacks eg blood sugar level 2.2 or 2.4 and have also prediabetes, one number below diagnosable diabetes.. my sugar can swing.. (which their form states they dont cover prediabetes and it mentioned nothing at all about severe hypoglycemia).

    So today I rang the NDSS and ended up in tears as I was told that I dont qualify.. I'd been trying to keep my hopes up that they'd help me in some way (thou they could give me a very slight discount cause I have a pension card but it was going to be over $50 still for my glucose strips when if I had diabetes I could get them from them for $1.50 (so only a saving a few dollars from the chemist price). I got quite annoyed and upset as I do need those strips re my hypoglycemia, Ive been terribly ill due to hypoglycemia before.

    Its complete discrimination against those who dont have common medical issues.. its not fair I cant get cheap strips for severe hypo attacks. I have so many health issues going on that I cant always tell what is what when Im getting very sick so need to be able to test myself.
    ..........

    As I was crying over this when my support worker showed up today.. To cheer me up I ended up telling her to leave my dishes and instead asked her to take me out to buy the new purse Ive been needing for past 5mths (Im so sick of my money ending up on the floor every time we go shopping as my purse doesnt shut.. we looked at my local shops the other day but they didnt have one.. fortunately Ive been told my support workers can take me to the big department store now which is out of my suburb 10 mins away.. but to do this means my dishes get left for week which I really hate.. due to the driving time).

    ah well.. Its looks my physio will be arriving Monday with a week old worth of dishes sitting over my sink and cupboars..

    When we finally found a purse (crazily many of the big dept stores now dont stock purses!!).. cause the ME was severely affecting my ability to make decisions and choices.. I just felt completely lost, I sat on the floor for probably 5 mins staring at them not being able to make a decision... so ended up buying 5 purses.. it was either that or I would ended up walking out without a thing.. I couldnt deal with the situation (fortunately they were cheap).. but its still kind of crazy what I did.

    ***sighs.. Im so struggling.. just simply buying a purse and trying to choose was a nightmare for me and I just couldnt do it as I coulddnt make an on the spot decision*** OMG I cant believe I did that today cause I couldnt make a choice.. I just found it impossible. Stupid illness. (that shop is a bit far away so I wont be able to take any of them back so I guess I'll put 2 of them away for family presents, keep one for special occassions.. and have a spare one for me so I dont need another purse for a long time).

    Then to top things off .. when we went to leave.. my support workers car wouldnt start and she had to ring the RAA (the road service people). It took them almost 1hr to arrive, thank god it wasnt hot as I would of then been in huge trouble! Im wired right now as Ive done too much (its going to be very hard for me to sleep thou I should be having a sleep).

    I am happy thou now as at least I now have a purse I was so needing.

    ...................
    *Ive now made a local drs appointment for the 29th April (I have one appointment with local dr which DisabilitySA approved transport for) re to see if there is ANYWAY I can get those glucose test strips for a decent price with my pension card. I havent seen my GP either since before I was hospital last after the collapse after which I had the IVs.

    Seeing my Florinef dose is a lot higher too cause the hospital told me to up it, I'll get a form so I can have a blood test done too to check my potassium levels.
    Last edited: Apr 11, 2014
  20. taniaaust1

    taniaaust1 Senior Member

    Messages:
    7,920
    Likes:
    4,882
    Sth Australia
    Unfortunately none of my drs ever fill out forms without making me have a medical appointment (I guess they dont like doing things for free). They wont even give out prescriptions without appointments (or maybe its a case of them always wanting to see me as I have so many issues and hardly get to them?).

    .......

    My GP thou her clinic says on their leaflets they do home visits.. when I requested for that I got told they only do that for a couple of patients in the whole clinic (the clinic has about 7-8 doctors so it isnt small).. I havent been able to convince them to give me home visits. I dont understand why.. (thou my GP has written 2 letters to disability services telling them that I need help to get to my appointments to see her).

    Maybe they just do home visits to dying people??
    ...........

    The physio who is coming out Monday to access my ramp and shower chair needs (measure up etc).. is going to be a different one to the one Ive had out a couple of times (they seem to do different things in their office so this was handed over for the other to sort out). I hope this other is good with ME people. (Im very nervous everytime I need to deal with a new person).

    I tried to get hold of my advocate today to help me sort out other stuff which still isnt done (make an appointment with her to do that)..but she was away today.
    Last edited: Apr 11, 2014
    Little Bluestem and Valentijn like this.

See more popular forum discussions.

Share This Page