The other since the disability adovacacy place and also my case worker Helene from DisabilitySA ring me, they've both rang me back again since. Ive thou confused both those phone calls so dont know what was said to me (I just cant keep up with it all, the calls back and forth). I "think" Helene told me to hold off again ringing Gale to make an appointment but Im not sure . Ive no idea what the other told me either.. so now Im confused if she made a time for a home visit or not and dont have a clue what is going on (Im often struggling to take in the info while people are telling me on the phone, I dont think noone is realising just how hard phones are for me. I know I have a home visit sometime from someone..either Friday or Monday (cant remember which). It would be impossible thou right now with all the constant phone calls back and forth between different people and me and with each other, to keep track of it all by letter writing as that would just slow everything constantly going on more. Being housebound, I also cant just get out to mail something but have to wait till my next support time is (and often loose the letters Ive done in the meantime!). We also often run out of time when Im taken out shopping to have time to post a letter that's if Ive remembered to bring the letter I had to post with me. Im currently confusing tons of letters I have here I've typed, I must currently have about 10 or so here, not knowing what has been sent and what are copies of ones which have been sent. Its a complete shambles. Im not capable of doing all this. I can not keep up with it. I cant even keep my head up with the phone calls let alone the letters. My elderly friend used to do all this organisation for me as I couldnt do it, he'd keep records of what was going on where, who'd I'd spoke to, what had been said (I used to get people to speak to him) but now due to his age, he's developed memory issues too and its just as hard for him!! He's just as bad as me now. (I havent seen him for a month as he's been away with xmas and now has family from interstate over ..so things are really fully apart here) Anyway before I loose the note Ive just done about a phone call I got an hour ago.. I have an appointment on the 23rd Jan Thursday at 2.30pm with Dr Allan Gale. His secretary rang me and said he'd told her to get me to make an appointment with him. I was like "you sure? I think Ive been told to hold off of making any appointments till an getting to an appointment application has been approved." I know its been or should of been put in as Helene was doing that. She just said again that that is what Dr Gale had told her to get me to do. So anyway I made the appointment as he wants (and Ive been wanting) and hope he's said that due to he's spoken to Helene (if so he knows more about what is going on then I do) ..or not.. its going possibly end up being another appointment I wont be able to get too. (It makes it all the more harder when you are dealing with someones secretary and they cant tell you what is exactly going on and couldnt tell me if he'd been told to do this with me by Helene/DisabilitySA). One problem thou with the appointment was the skin testing I need done is only done by his nurse on a Tuesday and Thursday which is when I get my home support for my dishes/shopping. So this is going to mean that all my home support stuff is going to screw up once again as usually the home support agency who doesnt have enough workers in my area *, cant refill my time before the end of the month and hence I then loose my home support hours due to DisabilitySA having this ridiculous rule on them in which I loose them if they arent all used by the end of the month. So a doctors appointment in the last two weeks of the month means I loose home help time. Who in the heck makes the ridiculous rules at DisabilitySA? Im coming under). I'll see if Dr Gale can talk to DisabilitySA about this to stop me from loosing my support hour time. I'll also ask Dr Gale if he can talk to DisabilitySA again as thou he was going to ring them and tell them I NEED to go to him, I doubt very much that he knows that they've turned around and made me use my needed Dr Del Fante appointment to see him instead. I wonder what he's going to think/say when he hears they've taken my other needed appointment away. * Im still awaiting for DisabilitySA to sort changing over my support agency to a better one (something Ive been trying to get happen for past 6 mths) .. one who has more workers where I are so more able to deal with when I have no other choice but make changes to my support times. Helene was supposed to put in the application for that a couple of weeks ago if I can believe what I was told (thing is I think Im having issues with the unseen and unnamed person who is her superior who has to approve all the contracts she applies for). Please Please DisabilitySA start being reasonable with enabling me to get to my medical appointments. If someone reads this and hasnt seen my petition about the states disability org neglecting the disabled eg me as far as medical appointments go http://www.thepetitionsite.com/802/...bled-patients-to-needed-medical-appointments/ Id appreciate it greatly if you'd sign. Irronically cause I cant get to my appointments, my doctors due to not seeing me for so long cant then do vertifications on how Im going to DisabilitySA, so I then cant get the professional backup I need eg Dr Gale and Dr Fante etc cant write a report on my health right now as he hasnt been able to see me for over a year etc. I not just need managment on my various conditions from my various doctors but I need letters from all my doctors on how I are right now if I have any hope of getting the home and care services from the states Disability org. By stopping me from being able to get to my doctors, the disability service can use the excuse of "we didnt have enough info to have put things in place earlier" when I complain about not getting the services I needed sooner. I know they are going to use that excuse and get away with all the bullshit and bad treatment Ive had fromt them but its them who have caused that to happen by depriving me from able to get to my doctors to get the info they expect from me (seeing they wont just believe me). How's someone not getting to doctors going to have full current, up to date medical documentation? Their expectations are illogical! If the states disability org cant even get their head about someone being too ill or disabiled to get themselves to doctors without help.. what hope is there. .... I have a massive headache right now.. Im tired and probably also partly due to stress too over all the DisabilitySA crap (its certainly impacted my health negativity). Due to the bad headache, Im wondering and stressing on how Im going cope with the support worker here with it if its not gone by then. The thought of someone in my kitchen sink banging dishes around is quite terrible to me right now (the noise of my fingers hitting keys on my keyboard are bad enough).