Another DisabilitiesSA home visit, also a bad crashed day My reply to heapsreal last post updates how my Temazepam trial for my sleep and trying to move it forward is going. On Wednesday, I had another home visit appointment with the guy (David Falgenhaur) from DisabilitiesSA to discuss how my application for home assisstance is going. Once again disappointing news.. he said it could take 4-5 months more to be sorted out. He said there are issues over which dept my case should be under.. whether it comes under Disability orgs or if it comes under one of the health org (he didnt say what health org thou when he said that) as both orgs want the other org to take it and say it comes more under them as they themselves dont want to be funding home help for me due to trying to keep clients down. So Im left with my case is caught up in the beaucratic system of what does ME/CFS come under.. is it a health issue or a disablity issue?? and cause the orgs cant make up their minds, its leaving a big loop hole in the system for me once again to be falling in between the gaps. (unless they are using a delay tactic hoping I'll just go away? or suddenly get better?). Last home visit he did, I was having one of my normal good days (normal as in sitting around doing nothing so not to trigger off symptoms), this visit thou, I was in a crashed state so he actually got to see how I sometimes are (something the doctors dont get to see as I cant get to the surgery when this bad). The previous day had been too warm for me and triggered off a ME crash the next day (interesting I hadnt been too badly affected in the heat with the major affects of it hitting me next day... delayed heat affect). I was so severe that I couldnt walk. My boyfriend arrived before the guy got here and I'd twice attempted unsuccessfully to get and stay out of bed.. both times resulting in me coming crashing to the ground. Interestingly when I first got up, I'd felt fine but after walking around my house for 5 minutes and then suddenly I was on the floor completely unable to get up again. My boyfriend was standing along side of me when I went down and didnt have time to grap me as I went to yell to him to do so. I went down so fast I couldnt even get the full words "grab me" out of my mouth. So I then stayed in bed for the next couple of hours hoping I'd be out of bed by the time the guy arrived but to no avail. By the time he'd got here.. I was all smelly due to lack of showering for previous couple of days and in need to get to the loo to which we then got him to help my boyfriend take me there.. one each holding me up on each side. Before the DisabilitiesSA guy arrived, another attempt to get me out of bed, which once again found my legs shaking and completely unable to support my body weight when it was put down onto them.. resulted in my boyfriend having to bring a bucket into my bedroom to pee into (which boyfriend helping me to balance) or I would of wet all over the place. I couldnt even walk to the toilet with him supporting me. I attempted to brush my teeth but was too weak so ended up handing toothbrush to my boyfriend to put somewhere and boyfriend helped me with a glass of water after due to lack of coordination and weakness (glass of water was so heavy for me it make my hand shake.. just weight of holding my hand up make it shake). I ended up dropping the first drink he brought to me from the bed onto the floor.. spilling my drink all over the floor (and almost smashing the glass). (At that point we settled on him filling up my drink bottles so I could drink from them more easily.. I dont know why I even attempt to drink out of a glass when Im that weak and shakey). After I was helped to the loo.. boyfriend and the guy went to the loungeroom and I tried to join them from there when finished, only to end up once again crashing to the floor, this time in my hallway (this time hurting my ankle a bit as I went down). So by that time, with me completely fed up of falling, we ended up holding my home visit in my hallway with me still on the floor. I pointed out my bruises (both my legs are currently bruised) from previous falls and knocking into things due to poor judgement and instability to the guy.. One good thing is the guy agrees that I do need home help.. but its just a matter now of no org wanting me and saying the other org should be helping as they argue if my issues are disability or health. The whole thing is pathetic, recently I spent 15 hrs straight (actually that has twice happened in past 2 weeks, too bad to even get up to get myself a drink or food during that time and laying in bed thirsty and awaiting for my condition to hopefully soon improve so I can walk). He said he'd visit again in 2 weeks to let me know how my application is going. Even with me bedbound at times unable to get myself a drink.. my case for home assistance isnt seen as an urgent one. As Ive told the guy a few times.. if it wasnt for my boyfriend visiting me twice a week, I fear I could end up stuck in bed and dying at some point due to not being able to get up or striking my head when I fall.