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Tania's journal of drug treatments and other ME things

Discussion in 'General Treatment' started by taniaaust1, Dec 28, 2011.

  1. Little Bluestem

    Little Bluestem Senescent on the Illinois prairie, USA

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    My entirely non-professional opinion is that it is more important that you eat than what you eat. Lay in a supply of low-carb food that you can eat with no or minimal preparation. Some possibilities are:
    tinned meat and fish
    cheese
    nuts
    peanut butter

    hummus
    whole grain bread, crackers, and cereal
    ready to eat fresh vegetable and those you are willing to eat cold from the can
    deli salads
    low fat, low sodium canned soups
    high cocoa chocolate bars

    If you have a microwave: microwave dinners, frozen vegetables, frozen fish. In this country I can get prepared meats that can be cooked/heated in the microwave and will last several meals.

    If you have some energy to cook, boiling eggs does not take much and they will last for a week in your refrigerator.

    Once you are eating regularly and maintaining your blood sugar level, you may have more energy for cooking (or whatever is most important to you to do).
    Valentijn and merylg like this.
  2. taniaaust1

    taniaaust1 Senior Member

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    My low carb diet two different specialists have me on is far stricter then that.. due to carb contents I arent allowed peanut butter (im only allowed 12-15 nuts per day), not allowed cereal or crackers, a lot of the veg Im not allowed to have due to being too high in carbs (root veg, corn, pumpkin etc)... Ive been told I have to eat meat every meal (by two different specialists) before eatting anything else, those canned soups tend to be too high in carbs and I arent allowed to eat any deli salads with mayo or sauces which have sugar in them.. that rules basically the deli salads out. I can only eat sugar free choc bars which tend to be 3times the price of normal chocolate. The low carb vegs dont tend to come in cans.

    Hence why Im having such a hard time staying to diet specialists want me on (even on their strict lower carb then diabetic diet for a year, my insulin got 3 times worst..so now at crazy levels), I cant just eat cereal, fruits or just have a sandwich. II eat the wrong thing and Im lectured for it eg got told off for having a few small cracker biscuits with cheese (total 7g carbs), my specialist is blaming my worsened blood readings on that.. but I dont eat and Im lectured for it... They wont give me a drug for my worsening tests but instead just blame me and my diet.

    I actually dont really like fish..but force myself to eat it occassionally (while other times I just gag on it cause of its taste). I have a daughter who's severely allergic to both fish and eggs.. fortunately I dont seem to have the same allergy (thou I havent had food intollerence testing and possibly could have an issue with eggs), . thou of late eggs have a couple of times made me feel ill (thou not vomiting like she does) and they give me very bad gas so suspect I may be developing a new food sensitivity (so have cut back on those to only once or twice a week where I used to have 2 per day on my diet).
  3. taniaaust1

    taniaaust1 Senior Member

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    ah interesting. I had no idea that they catered for food allergies/intollerences etc. Someone a while back told me I didnt qualify.. Ive forgotten now why (I cant see how I can not qualify unless Im too young??).
  4. k-AUS

    k-AUS

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    I just checked the S.A. "Meals on Wheels" site and if you look at the FAQ's section it says you need a referral from a health care professional. I cannot understand how you would not qualify. I think it may be worthwhile pursuing this. Goodluck :hug:
  5. Little Bluestem

    Little Bluestem Senescent on the Illinois prairie, USA

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    My, again non-professional, opinion is that it would be better for you to eat some foods that are not in your diet than to not eat at all. You say that now you are getting lectured for what you eat and for not eating. If you start eating more of the things you are not supposed to, then you will get lectured only for what you eat. :D

    You say you are only eating 1 or 2 meat meals a day, so would it be worse to add an egg meal or cheese meal (I think you do need some protein in every meal)?

    Is it better to skip meals than to eat no-sugar-added peanut butter with celery, whole grain crackers with cheese, or whole grain cereal with milk?

    You could look for salads with vinegar & oil dressing at the deli (I can only think of one at my deli). The only low-carb canned vegetable that I can think of that I would be willing to eat straight from the can is tomatoes.

    Do you like raw low-carb veggies such celery, broccoli, cauliflower, peppers, cucumbers, and tomatoes? Can you get them ready-to-eat at your grocers? If not, once you are settled into your new home, could your carers prepare several days worth of fresh veggies for you?

    Do they have bags of pre-washed lettuce? You could make a very simple salad with meat and cherry tomatoes. Do you like cottage cheese? I like it with tomatoes.

    Do they have roasted chickens? You could put one in your fridge and eat off of it for several days. I can also get packages of various meats that go right into the microwave and them will last in the fridge for several day. Mine are Hormel brand. I don’t know if you have that over there.

    I can get a couple of fairly low-carb microwave meals. One is beef and broccoli. The other is turkey and green beans.

    It sound like the chocolate is a no-go, but it isn’t really nutritious, just something I consider essential. :rolleyes:

    I hope that you can come up with some way to eat more regular meals. It would be great if Meals on Wheels works out.
  6. taniaaust1

    taniaaust1 Senior Member

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    Cheese/dairy products do contain carb so I have to count those carbs in my diet. So should also be had with meat. As I said I think I may be getting a food intollerance with eggs (nauseus, feeling unwell and have extreme wind after having them a couple of times recently so have cut right down on them for that reason to only having them once per week when I used to have 2 per day for the past year before. With symptoms now to eggs, Im worried I may be about to develop a full blown food intollance to the point where Im not going to be able to eat them at alll and be like my daughter (she goes into extreme vomiting from eggs)



    Who knows what's best.. my specialist blamed my 3 small crackers with cheese that I was having per day for making my blood tests 3 times worst (my blood insulin 150 rather then being under 50) and said it now will take far longer to fix my extremely hyper insulin/prediabetes issue due to it (my sugar is increasing too just with that.. im only just under diabetic range now and still going up). He says that condition will keep getting worst (at the rate Im going I may be a full diabetic within 6mths.. a compllicated diabetic as I still probably will have the too high insulin with it) with just those crackers.



    They tend to have added sugar at the shops. Tomatoes my specialists have said count as fruit (and Im only allowed one small piece of fruit per day.. if I want flavoured yougurt which I often do have, that counts as my daily fruit.. and I cant have any form of concentrated fruit eg tomato sauce or fruit juices).



    I actually really dont liike what I call "rabbit food"(the plain salad things) .. Ive never been a eatter of it but due to this diet I truely hate, I have no other choice but to force myself to eat it at times (which isnt helping my attitute. the diet has unlimited celery, broccoli, peppers, lettuce and cucumbers. (all the things I didnt previously eat unless discuised by a sandwich with eggs, meat and sauce/mayo) I manage to force myself to have what I see as a tastless boring unappetising salad once per week (the only way I like those things is if a full salad is made up with chiicken included in it but of cause that means being on my feet and using energy).



    Not allowed to eat much tomato as they are carb (fruit) and if I have a bit of it, means I cant have any other fruit or my flavoured yogurt for breakfast or dessert or for lunch. I do have half a tomato at times (staying within my limits) and no other fruit.



    Shop brought roasted chickens is currently the main thing I eat due to the ease of it. eg I eat it most days (sometimes twice..often just by itself with nothin else) except when Im bored of eatting it in which case I then wont eat it for several days.



    I havent managed to find any no added sugar microwave meals at all (I cant have any with artificial sweeters as I get bad reactions to those). I actually if Im feeling well enough.. at times make myself beef and broccoli (havent thou done that for a few months).. a chinese version but have to make it from scratch to avoid the added sugars to things.

    Chocolate IS essential lol. Im keeping my weight up with the expensive sugarfree varities (I think I probably would be skinny if it wasnt for that). Its not healthy but that is one of my staples.

    I'll try asking my specialist about that next time I go, actually I'll phone dr and ask about it (as I currently have no way to get back to any of my specialists). I dont know why they havent mentioned this? (maybe cause they arent understanding just how sick I are?? The severity of my condition has been completely ignored. The specialist who helped me to get some home care retired so I cant go back to him).
  7. taniaaust1

    taniaaust1 Senior Member

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    Thing is even when I was eatting well.. before I moved house as my home support was at that time able to help me with doing meals but. I still had PENE affecting me stopping me from still being able to cook well, so I know eatting isnt enough for me to be better with the cooking. Im sicker now then I was then so no way is eatting 3 meals per day going to get me well enough to be cooking all the time.

    * it makes my whole conditon sicker when Im doing more.. I dont suffer from a loss of energy as such as many do, that is minor down on my symptom list but I suffer in so many more other ways, with a complete worsening of my whole condition. ..viral reactivation, fevers, cough/asthma, neurological issues kick in worst, POTS worsens, sleep issues come back etc etc. My warning sign is exhaustion but still can do things(Im great at pushing throu that) but if I do, Im then screwed due to the other symptoms which then hit.

    One thing eatting regularly (as long as I arent breaching my diet as otherwise my emotions get worst) is it does help is my emotions. I have less emotional stability when Im missing meals and can be getting very grumpy with people.

    ............................

    Update

    I completely bombed out after my 2 hrs of home support today. Had to go straight to bed after it as just having home support exhausts me to the point I was completely unable to stay awake after it (not physically tired or lack of energy as such but NEEDING to sleep and couldnt stay awake.. I kept falling asleep while trying to do things like Narcolepsy people do, physically Im ok thou as Im used to tiredness. I believe Narcolepsy is one of my ME symptoms. I can just feel normal persons tired but then be falling asleep every 1-2mins over and over till I go to bed).

    So I went to bed for a nap.. but then ended up not waking up for 7.5 hrs (other then some tossing and turning and finding I was feverish yet again when I woke for brief periods before almost immediately falling back to sleep again), so Im now awake due to that 7.5hrs sleep and its 12.40am in the morning :( . (Second ..maybe third time Ive ended up in that state and with a fever throu over doing it in past 7 days, this is the kind of thing doing more cooking would throw me more into, my immune system starts crashing, narcolespy?? develops).

    Its completely screwed up my sleep times but I had no other choice but to sleep as I just couldnt stay awake and I have a blood test at 9.30am in the morning and I know by then Im going to be NEEDING bad to sleep again and will probably be falling asleep again.

    Usuallly Im "just okay" after my home support.. worn out but not needing to sleep (thou often needing hours of bedrest after it) but the difference was I didnt get my full rest day yesterday due to going to the local ME/CFS support group (seaford) yesterday for 30mins so that impacted me today. The bad thing was NO ONE showed up at the support group meeting place thou it had been advertised in the local paper (with no phone number), so I wasted some of my support time to get there and ended up with the fever I had today due to overdoing it due to that, for nothing.

    Even adding an extra half an hour to what I currently do in a 2 day period can make me sicker!! and that is what happened.. 7.5hrs more sleep needed and fever. I'd gone to this group in the hopes of briefly talking to the locals as I need to find out which local doctor they use around here (and fortunately thou the home support agency isnt supposed to help me do things like that, they did this once as i told them I NEEDED to go so I could find a suitable local doctor). **sighs** its a pity we all are far too sick that even our support groups are completely unreliable. The cafe where the meeting place was, said Im not the only one who has showed up asking about the local ME/CFS group when they havent been there at all, apparently the group hasnt been meeting since LAST YEAR, according to those who run the cafe (but it's still being advertised). If anyone from Seaford ME/CFS support group reads this.. please, please make sure to take the ad for this out of the local paper if no one can reliably show up or at least add a name and phone number to the ad..

    ...................

    Last time I had a blood tests done.. it really floored me and I couldnt do anything but be in bed all day and night after that. It took me 24 hrs in bed to recover from the blood test. So Im dreading the one I need today early morning which is going to be at a time I will be needing to sleep. (I probably should be cancelling it seeing I have been in a fever from over doing it, my fever has only just broken in last couple of hours but I was extremely lucky to get the agency to find someone to take me there and pick me up (they cant stay as they are on other jobs) and if I cancel.. I may not be able to get there next time I book. (the agency isnt meant to take me to appointments but I dont think they currently realise my support funding from DisabilitySA dont cover taking me to medical things as per stated in the DisabilitySA letter (who fund the support agency for me).
    ..............

    Seeing my boyfriend is away.. I have no way to get to the library at all to get things like DVDs (I often fall asleep watching those), so I arranged and had a person from the library disability service come out the other day and interview me for home library services, so that is now in place. (which was good as I had overdue things I would of got fined for otherwise as I wouldnt have been able to return them).
  8. taniaaust1

    taniaaust1 Senior Member

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    If anyone saw the message I had up before.. just want to let you know things are fine and I DONT now need anyone to ring me, thanks.

    I had a message up asking people to phone me to wake me up for my blood tests this morn as I have to eat a cooked breakfast before I go for booked 2hr glucose tollerance tests with insulin (my specialist is checking my bodies response with my diet to make sure im fine with the low, low carb diet for breakfast but forgot how to set my alarm and couldnt work it out how to change my alarms pm to am).

    The support agency has agreed to take me (I had time left after due to my home support cancelations due to the 2 appointments before my boyfriend went away.. Unfortunately the agency is using 2hrs of my time, only spare time I have, for a 5min drop off and later the same for a pickup. I ended up going back to sleep after 4.30am bbut was waking up every 20 mins to keep checking the time to make sure I didnt sleep in :( .. Im so so exhausted and tired.

    Anyway.. I guess I should start cooking. I feel like Im about to collapse and I havent even started doing anything yet...Im going to struggle with just sitting down at the blood place. (I think I'll take a blanket/pillow with me and lay on the floor and sleep between the blood tests).

    edit
    Update

    I stuffed up my blood test some as I worked out the times wrong.. my head was unable to work out from the time I had to get the test done and the time I was being picked up, it wrongly worked out half an hour taking time back from there, so I ate the breakfast too early and then didnt know if they would do the test (it ended up being done 1hr 20mins after I ate, I dont know if its going to acceptable to my specialist or not. **sighs.. It seems Im able to screw up the simpliest thing**

    Im now are feeling "wired" throu lack of sleep so wont be able to sleep.

    The support worker from agency (Anne) was lovely and I cant figure out why the agency said she couldnt stay with me at the clinic or send her back to my house to clean after dropping me off thou they were claiming me for the time she wasnt going to be even helping me, as she had nothing on. She ended up hanging around anyway, which was fortunate as the perfumes in the clinic got to me and I couldnt wait inside the waiting room and when I ended up trying to get to her car to wait between tests, I ended up collapsed in the clinics driveway.. 3-4 of the clinics nurses then came out and helped me get off the ground of the carpark, my shaking body (almost having a seizure) to a bed in a room.

    I didnt tell anyone I had ME/CFS, just said I had POTS and bad reactions to perfume and got great treatment after the collapse (wonder if it would of been the same if I told them I had ME/CFS?, they even asked me if oxygen would help me or not.. something I didnt know as I havent tried that when I collapse. I used to always tell people I had ME/CFS when I had issues, due to advocacy wise we need people to realise how bad this illness is and its only by us being open will people ever learn but Ive reached the point now where Im just too burnt out to be suffering the consequences of telling people that.

    ONCE AGAIN **sighs** the support agency didnt tell the worker I have perfume issues . but fortunately Anne wasnt wearing any as she was sensitive herself so I know she didnt play any part in my collapse. The blood nurse thou was wearing a ton of perfume.
    Valentijn likes this.
  9. taniaaust1

    taniaaust1 Senior Member

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    DisabilitySA (my local branch of the states disability service) just phoned, they seem to be seriously following up my complaint to the Health & Community Services Complaints Commissioner and really trying to sort things (this new branch seems to be much better then my old branch or maybe trying to help me, cause I put in an official complaint to the commissioner?).

    For the FIRST TIME they mentioned contacting their branch of the Disability org in which helps get clients wheelchairs... but they got to get info from my doctors first. Im about to email the doctor (the one who isnt understanding just how bad my condition is being) to tell him about the 3 collapses Ive had in 2 weeks including todays and including the one i had trying to get up his driveway last doctors visit. It's a worry that Ive only been able to get to 2 doctors appointments this year due to the ME and the transport issues, so none of my other specialists know Ive worsened at all with the collapses.
    Valentijn likes this.
  10. Little Bluestem

    Little Bluestem Senescent on the Illinois prairie, USA

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    Oops, I forgot that tomatoes are a fruit. :redface:If you have a microwave, look in the refrigerated case at the grocers for ready to zap meats. Some beef and pork would give you some relief from all of that chicken. In Oz, they might even have lamb.
    Valentijn likes this.
  11. taniaaust1

    taniaaust1 Senior Member

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    wow. I never knew you could cook beef and lamb in the microwave?

    Is it possible to cook a steak or do a roast beef in the microwave (or will it go too hard to chew and tough? I have chewing issues at times due to the ME esp if something is hard for me to chew, my jaw tires to the point I become unable to eat). (I dont eat pork for spiritual religious reasons). I do eat lamb.
    ............

    Update

    The library yesterday somehow confused my address (they did have it right on their paperwork thou) and delivered a big pile of DVDs for me onto my neighbours doorstep, just left them there (which she ended up seeing and bringing across.. thank God for that as if they'd all gone missing I may of been up for the cost).

    The lyme doctor sent me all my test results and I got them today... Also the same lyme test result got to me from the lab today too following my phone call asking why it hadnt been sent to me (so after not getting it for so long, as fate would have it, irronically I now double got it same day). My PCR lyme tests (both urine and the 6 week cultured blood one) have come back negative, so I still in the same boat of wondering if I could have lyme or not esp seeing I already know I dont well produce antibodies to things (vaccinations that wouldnt take) its very possible that PCR test may of been wrong (the lyme test also carried its normal warning of negative result doesnt exclude possibility of lyme). So this puts me in a spot as the dr seemed eager to treat me for lyme whether I was postive or not, seeing I match it so well (couldnt match the symptoms any better) and I know I dont want to do lyme treatments without a positive test seeing my symptoms also could be a few other things (including of cause historical like ME).

    I think I'll try to get back to her thou ("when" I can get back, I need transport of some kind first) to do a heavy metal challenge test as that is something else I needed followed up more (re extremely high heavy metal copper hair test in the past (so high it was almost off the graph chart) and hence Ive been on a protocol to lower copper for the past 18-24mths so a proper heavy metal test challenge at this point would be interesting)..

    My iron was good this round of tests (thou Im not taking supplements for it but still eatting a ton of meat), all the other things were around the same as normal "for me" (including a white blood cell count which some specialists say indicate chronic infection.. quite low normal), my cholestrol high as per normal, my sugar level had a warning to do more tests etc.
    ................

    I got another round of blood tests to get done tomorrow, this couple of lots of blood tests the other specialist wanted me to do (not ones I got today. (currently waiting the results from the first round of tests from him which couldnt be done at the same time as one lot was fasting and the other lot was non fasting).

    Cause my doctors arent communicating and no one is actually managing my whole case, I dont have a GP to manage it at all (and doctors often dont ask me what has recently been done or dont really listen).. some of the blood tests are being doubled up on. I soo need a doctor to take me on who is willing to manage my whole case!!, rather then this doctor specialising in this and this other doctor specialising in that etc.. its so messy and with my head (memory issues and also trouble expressing verbally) and many doctors dont listen well when I do try to say things or jjust dont ask me the questions which need asking eg has this test lately been done?.. sighs.
    Valentijn likes this.
  12. Little Bluestem

    Little Bluestem Senescent on the Illinois prairie, USA

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    I do not know if you can cook meat in the microwave. The meat that I buy for microwaving has already been cooked, so I just have to heat it up. It is expensive, so I only buy it when it is on sale. With your health and diet problems, it might be a worthwhile investment.

    The next time you see your doctor you could ask him what he would rather you do when you cannot fix a meal that fits his diet specifications - not eat at all or eat something that is not on the diet.
  13. taniaaust1

    taniaaust1 Senior Member

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    I havent found any precooked meat meals which are low carb or dont have additives etc.

    I did ask my doctor that and he just got annoyed at me "You've taken your progress backwards by not eatting right and by skipping meals (blaming my going downhill on that rather then the fact I crashed with a house move and havent been able to pick back up to where I was before..something he completely ignored). DO YOU WANT TO GET WELL OR NOT!!!" "MAKE AN EFFORT". Anyway.. I just got an lecture and no understanding at all from him. He expects me just to be cooking up the types of meals I should eat and thou he's a "CFS" specialist, he has no understanding at all about severe cases and isnt understanding that I just cant (he doesnt even know what POTS is either). "STOP MAKING EXCUSES" (the capitals are his words to me). I even couldnt make it out to the car by myself on leaving his clinic and fell in his driveway and was crawling and my boyfriend had to go and get the car.

    I so wish I had ME specialists not naive CFS specialists. In Sth Australia, there is not one CFS specialist who understands "ME" in my state who I can get in to see.
    Valentijn likes this.
  14. taniaaust1

    taniaaust1 Senior Member

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    Update

    I just rang the support agency re last two times they taken me for blood tests in the past 3 weeks the support workers have turned out wearing artifical fragrancies or perfumes.. so another phone call from me to them to tell them once again that cant be happening as it can cause me to collapse and also makes me illner. It seems they cant guarentee it wont happen again and once again Im told they will tell their people that (this time I spoke to Margarette, Im sure she's one of the ones Ive complained about this before). Dont they get it it can cause me to COLLAPSE, its essential they stop the same mistake from being made. (I sooo need a case worker making sure I dont keep getting the same issues over and over happening all the time but still dont have a case worked as its deemed not needed for me :( ). Maybe I should threatened to sue them if I collapse due to something like this and injure myself during it to make them take the whole issue as seriously as they should be.. sighs..but then I certainly wont be making any friends and the agency may just end up giving me a hard time).

    When I rang re the "please no perfumes or artifical fragnances", I checked to see if they did get me a worker today like I was told they probably could do and would the other day when I rang.. anyway.. I woke myself up very early so I'd be ready and (Ive been fasting for the blood tests and it turns out NOTHING was arranged and in fact, nothing on their records to even indicate I rang with the request I was needing a lift re fasting blood tests in the past week. (they told me they dont record all the phone calls :( , I guess I'd best start putting my complaints in writing there too then).

    Anyway I ended up being told the same thing I was told the other day when I rang.. they said they will give me some of my time in advance and "try" to find someone to come in 1 hr to take me to get the blood tests done. So Im still fasting right now, not knowing what is going to happen ( I missed dinner last night too).

    We even rang out of time this week with my support time to even get all the dishes done (this is starting to become a case.. my plates, cups, cuterly is all being washed up but my support time runs out before all the dishes are done leaving things like my grill, saucepans, baking pans.. still unwashed and the floors.. forget them.. I cant remember the last time there was any support time to get them done. Getting my dishes done or mostly done, wins hands down if I have to toss up between those and my floors (thou Im still getting itchy fungal issues on bottom of foot probably due to dirty floors.. teatree oil heals the foot issue but it just keeps coming back).

    I had to get the support worker to use some of my house cleaning time to take me to the library so I could "try to" order my supplements on their internet (my computer hasnt got good virus protection on it as I never get all the updates done due to having only a dial up connection) ,which my specialist has me on (and will give me yet another lecture if Ive not been taking them). I ended up wasting that time as when we went to the library, I ended up I couldnt order them anyway as thou I'd managed to find my paypal password, Id forgotten my email one and that was needed to order as wel as I didnt know my account details from previous iherb things as I'd since changed emails after loosing yet another password. (Im really struggling with basic stuff with no help seeing my boyfriend is overseas). Anyway.. I'll make another attempt (and this time know to take my password for my email with me) to reorder my supplements in a weeks time (when I will next have some help to be able to use my home support time to be able to do something like that..taking time away once again from the housecleaning support :( ).

    I sooo wish DisabilitySA understood just how hard things are here and that I NEED more support but gov agencies just dont understand our condition. If I get sicker (which I are slowly goving downhill more and more), I wont be able to do all Im doing now with the ringing and ringing agency trying to sort things out time and time again... Im concerned Im going to end up at the point again where I wont be able to be doing a thing.
    ....................

    On a positive note (I hate sounding negative all the time).. with my boyfriend away that means Im doing far less on Mondays and Fridays (the days he usually comes up and helps me with things), means Im more focused on the sitting jobs around the house to keep myself occupied. So Ive been busy painting (non toxic paints of cause) making things in my home pretty (even if things like my floors are discustingly dirty and unwashed for many weeks, maybe 2mths or more!). Ive come up with my own painting technique which I used to make my plain plastic plant pots pretty. Also my ktichen table which was piled high in papers etc, is now neat again, I can now actually see the table top!

    Im also using the time my boyfriend is away to work on a DVD writing course (to help me when I write my own day book on ME and my nightmare experience with it re doctors, gov agencies and others). I couldnt go back to my collage Naturopathy course which is like forever suspended in time but I can learn new things via DVD lectures due to the "pause" and the "rewind" function and the DVD also puts the important points in writing so I can pause at those places too till my head "gets it". The DVD lectures are half an hour in length and long as Im at my best I can "usually" (not always thou), make it thou a 30min DVD lecture.
  15. heapsreal

    heapsreal iherb 10% discount code OPA989,

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    have u thought of a good protein drink to use for a few meals a day. they are alot better tasting then they use to be and thats just mixing them with cold water. http://www.chemistwarehouse.com.au/...name=USN Pure protein Hydro 6-IGF 1kg Vanilla this is what i use at the moment, tastes good. do they have this chemist down where u are. its a dam big tub too, i drink 1-2 a day depending on how lazy i am at preparing food and it lasts me a good fortnight.
    Little Bluestem and taniaaust1 like this.
  16. taniaaust1

    taniaaust1 Senior Member

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    Sth Australia
    Thanks heaps...

    Im trying to look at the picture of it but cant read anywhere how many carbs it contains? Can you please tell me.

    Also is this the same in ingredients as undenatured whey? whatever that contains? as I got explosive diarhearr to the point in which I was then having to wear nappies, when I trialed undenatured whey (my body after a week or 2 period decided it wouldnt tollerate it at all anymore).

    I do see this product has casin in it. Do you know if its got more then one glass of milk. Ive have dairy intollerance at times (at one point I couldnt have dairy for a couple of years). I are now back to drinking milk but still need to take care how much I have as it still makes me unwell after a certain point (I can get away with a glass of milk per day ok which I have at night for my bedtime cocoa but risk getting unwell when Im drinking more then that), so I need to be cautious with it. Ive been tested for lactose intollerance but dont have that so I strongly suspect its the casin in the milk I have issues with, just havent been able to get food intollerance testing done yet to confirm it.
  17. taniaaust1

    taniaaust1 Senior Member

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    Sth Australia
    Update

    The support agency ended up couldnt find anyone to take me to do the blood tests I'd fasted for, so Ive fasted for nothing. (they did try "this morn" to find someone, who knows what happened with that other person at the support agency I spoke to days ago who was going to try to find someone to take me.. she could of least warned me that no one had been found so no one would be coming today.. sighs..that's the phone call they have no recond of). :(

    I wasnt going to catch a taxi as I really shouldnt be leaving my house alone even if being taken to a surgery for a blood test. Last blood test I ended up collapsed in the carpark outside, unable to get back up (fortunately had my support worker with me who ran inside and got help for us to help to get me to a safer place) and certainly dont want to end up in that situation where someone could run over me. (Last year I almost got run over in a supermarket carpark after I went down, my support worker had to stop cars from hitting me).
    GcMAF Australia likes this.
  18. GcMAF Australia

    GcMAF Australia Senior Member

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    BLOODY governments
  19. GcMAF Australia

    GcMAF Australia Senior Member

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    email to Penny Wong
    ...
    Last year I contacted the local ALP office in Ararat in order to obtain assistance for a person in Adelaide.

    This person rang your office.
    The person at your office referred Tania to South Australian Agencies.

    However this is absolutely no use what so ever. These are the very same agencies that failed the person in the first place!!
    The affected person can not handle the phone well because of her illness.

    Here is the latest episode

    "

    The support agency ended up couldnt find anyone to take me to do the blood tests I'd fasted for, so Ive fasted for nothing. (they did try "this morn" to find someone, who knows what happened with that other person at the support agency I spoke to days ago who was going to try to find someone to take me.. she could of least warned me that no one had been found so no one would be coming today.. sighs..that's the phone call they have no record of)"

    This is occurring week in and week out!!


    Dr ....
    Hall's Gap Victoria
    Little Bluestem likes this.
  20. heapsreal

    heapsreal iherb 10% discount code OPA989,

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    australia (brisbane)
    It has 2 grams of carbs per serve and 40-grams of protein, mostly whey and caseinate and some soy. also has MCT oil in it which is good for low carbs. basically low doses of most vitamins and good amount of calcium and potassium. lots of glutamine which is good for immune system and gut etc

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