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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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.... I ask him [ GP ] if she has POTS. No, he says, since she is tachycardic when sitting down as well. He won't put her on beta blockers, wants to wait for a halter test at the hospital. Is it worth waiting for? Am I better to go private and get a bunch of tests done? Tilt table? V02 max? I'm up for getting whichever tests done that sort this issue out. Her GP wants to believe her tachycardia is caused by anxiety. I KNOW that is not the case. What would you do?
Maybe you guys can help me too (please!). My 15-year-old daughter got a diagnosis of CFS/ME earlier this year, after 2 years of tests etc. You know the drill. Anyway, she has complained of heart palpitations often. But when I took her to the GP and to the hospital because of it last year, they took her BP and said there was nothing wrong. Now I have a BP monitor which also reads heart rate. She has a low BP (80/56) which they have started to treat with Florinef. Great, that increased it to about 95/65 (dose is one pill in the morning). But the heart palpitations and generally thudding heart seem to be getting worse. Here are some numbers and situations: lying on couch two days ago: HR 87; HR taken immediately she stands up - 117. Heart rate taken yesterday - seated 102, standing - gradually rising to 119 after a minute or two (then she had to sit down). Today, she gets out of bed in the morning and walks upstairs and sits down. HR 144. I find those numbers alarming. I take her to the GP. I ask him if she has POTS. No, he says, since she is tachycardic when sitting down as well. He won't put her on beta blockers, wants to wait for a halter test at the hospital. Is it worth waiting for? Am I better to go private and get a bunch of tests done? Tilt table? V02 max? I'm up for getting whichever tests done that sort this issue out. Her GP wants to believe her tachycardia is caused by anxiety. I KNOW that is not the case. What would you do?
There are people who mix their own (there are several recipes at PR), but I'm not one of them.ElectroMix is a water mineralizer and dietary supplement that contains nutritionally balanced essential electrolytes: Potassium, Magnesium, Calcium, Manganese, plus Chromium.
ElectroMix is a water mineralizer and dietary supplement that contains nutritionally balanced essential electrolytes: Potassium, Magnesium, Calcium, Manganese, plus Chromium.
My tachy is Inappropriate Sinus Tachy which means without meds I have a HR of over 100 at rest and it leaps POTS like over 120 to over 150 when upright.
I'm on Ivabradine 10 mg twice a day. I've only been on this mega dose for a week but my HR has improved a lot. It's rarely above 100 even when I'm up and about and resting HR is around 80. MUCH better.
I can't take other heart meds because my lungs are bust so it's Ivabradine or nothing for me. Thankfully I can tolerate it (so far) . Cardio it hoping that getting my HR under better control might help curb the rapidly fluctuating BP problems and even some breathing probs.
Just the last couple of days I think my breathing is better when upright - not so much orthostatic breathlessness.