syrinx of spinal cord/syringomyelia?

[boo85]

I got a spinal scan done about 3 months ago and it said that I had a syrinx of 1.5mm on my spinal cord. Also known as a syringomyelia. Does anyone have any experience with this? There really isn't all that much information out there and I've read that it's pretty rare. I've come across a few people that have the some thing (some with a syrinx as big a 3mm wide), but from the sounds of things it's just something you keep an eye on, treat and manage the symptoms and if it gets worse, you have the option of draining the build up of fluid to make the symptoms better, but even that has a 50/50 success rate. Personally, I feel that b12 has helped my symptoms so far, even though I've had overmethylation and low potassium (but that's another story).

Neither my dr or neurologist seemed to take it seriously, in fact my neuro just said (when reading the report) that it was likely a coincidence. He didn't seem the type to really want to discuss things with me so I could understand what was going on with MY body either. I'm not going back to him again.

The radiologist advised me (through my dr) to get another spinal scan 6 - 12 months from when I had the first scan to make sure that the syrinx hasn't gotten any wider. The radiologist said that it is very very unlikely to be life-threatening. So I'm in the process of getting referred to a different (public) neurologist so that I can get a free spinal scan (I'm from Australia and when you go through the public system you don't have to pay, but it can mean a long wait just to see a specialist).

Is this related to low b12 or just a coincidence? Would b12 help to stop it from getting wider or damaging the spinal cord?

thanks so much.