1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
New Exercise Study Brings Both Illumination and Questions
Simon McGrath looks at new objective evidence of abnormal response to exercise in ME/CFS patients, and the questions that researchers are still trying to answer ...
Discuss the article on the Forums.

Symptoms After Exercise Poll (PEM)

Discussion in 'Post-Exertional Malaise, Fatigue, and Crashes' started by Cort, Jan 20, 2011.

?

My Top Four Symptoms After Physical Exercise Are

  1. Severe Fatigue

    50 vote(s)
    92.6%
  2. Muscle pain

    35 vote(s)
    64.8%
  3. Fluey Feelings (fever, sore throat, achy muscles, etc.)

    28 vote(s)
    51.9%
  4. Symptoms Upon Standing

    20 vote(s)
    37.0%
  5. Headaches and head pains

    11 vote(s)
    20.4%
  6. Cognitive problems

    37 vote(s)
    68.5%
  7. Gut problems

    6 vote(s)
    11.1%
  8. Muscle weakness

    22 vote(s)
    40.7%
  9. Poor sleep

    18 vote(s)
    33.3%
  10. Poor coordination

    15 vote(s)
    27.8%
Multiple votes are allowed.
  1. Cort

    Cort Phoenix Rising Founder

    Messages:
    7,025
    Likes:
    441
    Raleigh, NC
    This is to inform a survey we are working on...

    What are your most prominent symptoms after too much physical exercise?

    Please pick the top four

    Please let me ones that I've missed.

    Thanks!
     
  2. paclabman

    paclabman

    Messages:
    57
    Likes:
    2
    Seattle area
    For me, I'd define fatigue as how you'd feel if someone hooked up an energy pump to you and sucked it all out - you'd end up feeling drained.

    I used to actually feel like I had flu but without the muscle aches or chills. Now it's more malaise - just not feeling well. Don't know if that should be listed separately from the stuff that's more like sore throat, etc.

    It will be interesting to see how the poll goes.

    If I really overdo it, I also get sound sensitivity. Wonder if others are more sensitive to light or heat or cold? hehe ... my sensitivity to heat never goes away.
     
  3. WillowJ

    WillowJ Senior Member

    Messages:
    3,102
    Likes:
    2,729
    WA, USA
    you missed Ramsay's "general awfulness;" I think this is much better than "malaise" :cool:

    edit: more symptoms to consider for the list

    Oh, yes, like paclabman said, sensitivities, especially noise, light, and vibrations, but also temperature.

    Chills, shivering.

    Trembling.
     
  4. WillowJ

    WillowJ Senior Member

    Messages:
    3,102
    Likes:
    2,729
    WA, USA
    I was intolerant of heat even before I had ME. Also to light and sound, but those goes with migraines. Getting ME have made all these worse and given me a new sensitivity to cold, and brought my sensitivity to vibrations from slight to severe. Anti-inflammatory and migraine medicines help reduce the vibration sensitivity especially, but also the sound and light somewhat.
     
  5. Sushi

    Sushi Moderator and Senior Member Albuquerque

    Messages:
    7,099
    Likes:
    6,078
    Albuquerque
    Hi Cort,

    You missed my top one--such a favorite--chest pressure/pain.

    Sushi
     
  6. Snow Leopard

    Snow Leopard Senior Member

    Messages:
    2,373
    Likes:
    1,949
    Australia
    What about respiratory symptoms? (apart from asthma)
    I usually get a cough etc the day after exertion.
     
  7. Cort

    Cort Phoenix Rising Founder

    Messages:
    7,025
    Likes:
    441
    Raleigh, NC
    my chemical sensitivities tend to go up so I'm not surprised about light and noise sensitivity - that would have been a good one. Chest pain too...sorry I missed your 'favorite' Sushi :)
     
  8. Cort

    Cort Phoenix Rising Founder

    Messages:
    7,025
    Likes:
    441
    Raleigh, NC
    I am so GLAD! I don't get fluey feelings after exercise. It does happen at times and that is just the worst. Sorry to see that is such a common problem.
     
  9. paclabman

    paclabman

    Messages:
    57
    Likes:
    2
    Seattle area
    "general awfulness" is a really good description
     
  10. WillowJ

    WillowJ Senior Member

    Messages:
    3,102
    Likes:
    2,729
    WA, USA
    I was going to come back and add cough and I see that's been added. Chest pains and pressure is added as well; very good (I get that).

    Shortness of breath and heavy chest could be added.

    Feeling cold.

    Arthralgias.

    I'm not sure if I could pick a top 4.

    Can I choose 5?
     
  11. busybee

    busybee Senior Member

    Messages:
    118
    Likes:
    3
    I don't think I can give just four.

    My symptoms upregulate, they start with throat/glands, quickly on to coordination/cognitive, pain and gut follows then right leg goes numb and my right arm drives me to distraction. Sleep is affected but I can offset it after small amounts of activity.

    I rarely get to the pain stage as I keep activity levels low.
     
  12. justy

    justy Senior Member

    Messages:
    2,683
    Likes:
    2,903
    U.K
    Just to clarify, ive responded as if you meant increased activity, not specifically what other might consider "exercise" ive included for example a few minutes of gardening or a short walk. Hope thats what was intended.
     
  13. caledonia

    caledonia

    Messages:
    2,983
    Likes:
    1,596
    Cincinnati, OH, USA
    Like my good doc wrote my SS disability paperwork - "minimal exertion exacerbates all symptoms". So it would depend on what your particular symptoms are, then they would all get worse.

    In other words, I don't think you're going to get much out of this poll, or it should at least end up being a list that's comparable to the list of symptoms that people experience not after exercise.
     
  14. Cort

    Cort Phoenix Rising Founder

    Messages:
    7,025
    Likes:
    441
    Raleigh, NC
    Sure- same thing :)
     
  15. Cort

    Cort Phoenix Rising Founder

    Messages:
    7,025
    Likes:
    441
    Raleigh, NC
    I'm looking for subsets and I think there are glimmers of them. I, for instance, do not typically get fluey feelings and it looks like about 30% of the people so far do not either. On the other hand if I really over do it I have really restless sleep - but it doesn't look like that happens that much either.

    Symptoms upon standing are lower than I would have thought as well. I get them but other problems are worse......

    Combining this with illness duration, illness severity, onset, gender etc. ....could be quite interesting in the big survey.
     
  16. WillowJ

    WillowJ Senior Member

    Messages:
    3,102
    Likes:
    2,729
    WA, USA
    I get those, but not as badly as others. I'm guessing using a computer filters out some of the people with the worse OI.

    I can't decide if difficulty standing counts as one of the top exercise-responsive signs/symptoms or not... still don't think I can pick just 4
     
  17. paclabman

    paclabman

    Messages:
    57
    Likes:
    2
    Seattle area
    Just another observation, but the meds people are on will also influence which PEM symptoms they now think are the worst.

    When I went down to Stockton for the Stevens tests, they had me stop my pain med and nuvigil. I was not a happy person.

    Some time back, my Dr thought it was important to start some treatment for pain. It stopped my occasional fibro type flares. It also helped sleep - which is an indication that at some point during the night, pain was enough to wake me up early. And I was surprised that it really helped to shorten my PEM recovery time.

    So, as an example, pain in my muscles and tendons next to my joints might have made the list instead of poor coordination problems - but my pain med prevents that.

    Edit - guess we could have people stop their meds to get a more accurate survey, but .... ummm ... I'm not sure I'd want to volunteer for that ...
     
  18. Cort

    Cort Phoenix Rising Founder

    Messages:
    7,025
    Likes:
    441
    Raleigh, NC
    Good point we should ask for non-medicated responses! Muscle pain is a big part of my post exercise symptoms....except that its different from my pain from exercise prior to CFS - its a burning pain...not an aching pain...
     
  19. xchocoholic

    xchocoholic Senior Member

    Messages:
    2,882
    Likes:
    1,546
    Florida
    Hi Cort,

    I didn't see sleepiness listed here. Because of my OI, if I'm upright for too long, I'll have a day where all I do is lay on the couch and nap every couple of hours. I don't get PEM if I'm just putzing around the house and laying down when I feel the need. Too bad, it's not possible to grocery shop while laying down ... lol ...
     
  20. ggingues

    ggingues $10 gift code at iHerb GAS343 of $40

    Messages:
    4,093
    Likes:
    912
    Concord, NH
     

See more popular forum discussions.

Share This Page