Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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Symptom Exacerbation from hunger

Discussion in 'Post-Exertional Malaise, Fatigue, and Crashes' started by ndjndj, May 29, 2017.

  1. ndjndj

    ndjndj

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    Hi all,

    Long time reader / first time poster. 2 years into my CFS journey, working part time but not much of a life other than that.

    Was wondering if anyone else gets an extreme exacerbation of symptoms (e.g. weakness/heaviness, lightheadedness, need to lie down, headache and sometimes even PEM) if you skip a meal / get hungry?

    I've had to add in large mid morning and afternoon snacks (e.g. avocado, quinoa, sweet potato) and always have, say, nuts, on the ready to avoid these crashes. If i leave lunch any later than 130pm I'm screwed and much more likely to crash later that day.

    Interested in whether anyone has had similar issues! Thanks

    Nick
     
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  2. TiredSam

    TiredSam The wise nematode hibernates

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    Yup. But then before I had ME I always got very irritable when hungry. Now I get headachy etc, which can disappear as soon as I've had my first mouthful of food. I can never miss a meal, if I have the choice between missing breakfast or being late for work I'll be late for work, rather than run the risk of getting to work hungry and letting myself down badly in the politeness department.
     
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  3. mirshine

    mirshine Senior Member

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    Me too!
     
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  4. Fogbuster

    Fogbuster Senior Member

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    I share all your symptoms, along with moderate/severe cognitive impairment and adrenaline surges, this really affects my social ability and general function too. It seems that when I get the hunger feeling, if I don't eat within a 10-30 min bracket, my symptoms will bit by bit start to play up or worsen. Eating carbs reduces it a tiny bit, but still, not a very nice! :thumbdown:
     
  5. hellytheelephant

    hellytheelephant Senior Member

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    I am exactly the same re hunger: I carry protein with me at all times!
     
  6. Binkie4

    Binkie4 Senior Member

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    Me too.

    If I start to get symptom exacerbation, I must eat. Worry about weight!
     
  7. Jessie 107

    Jessie 107

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    Yes I immediately started to feel better as soon as I eat, I would never be able to skip a meal without feeling ill.
     
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  8. Sidney

    Sidney

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    Yes to all...
    Except that, further on the CFS journey ( i. e, further down the tunnel), I've suddenly started terrible carb cravings, for the first time in my life. I can't face the healthy proteins, or anything 'strong'.
    Very bad development.
     
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  9. ryan31337

    ryan31337 Senior Member

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    Yup, same here. A meal would give me a boost, more so on PEM days when I'd take on a bunch of carbs with good effect.

    But after 20 years it switched and I gradually began experiencing all classic symptoms of diabetes with reactive hypos, though I'm still a healthy BMI and have normal fasting blood glucose....
     
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  10. ndjndj

    ndjndj

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    Thanks for your input (and general agreement!) everyone. Has anyone discovered anything to reduce the sensitivity to this in any way? i.e. increased tolerance / longer breaks in between meals?
     
  11. ndjndj

    ndjndj

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    As for weight and general health, I've certainly discovered the high protein, high veg (and even high fats) and low simple carbs helps a lot here. Pretty close to paleo.

    e.g. My mid morning snack is quinoa cooked in coconut milk, early arfternoon brocoli will be tahini or a whole avocado (sliced up with olive oil apple cider vingegar) or sweet potato. Breakfast I'll generally have 3 eggs scrambled with kale.
    I've also pretty much cut sugar and once you get over that first month of no sugar, you stop craving. It's unbelievable.

    I was of normal weight to begin with but since adopting this diet i've probably lost weight and randomly get people asking why my skin looks so good all of a sudden (probably from no sugar!). This actually sucks in a way as it hides the feeling of death going on underneath :)
     
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  12. ndjndj

    ndjndj

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    I have this too and have thought a lot about it and the extent to which it might be triggered (or worsened) by my own symptom anxiety. i.e. get hungry > start feeling a bit weak > know if you don't eat you might feel worse > stress response triggered > start feeling worse etc.
     
    Jessie 107 likes this.
  13. ryan31337

    ryan31337 Senior Member

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    Ketogenic diet has worked wonders for me. No idea if that's primarily because I was developing insulin resistance or something related on the side though.
     

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