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swollen throat, bad sleep, CFS wrse aftr rtxn

Discussion in 'Rituximab: News and Research' started by Whit, Sep 9, 2013.

  1. Whit

    Whit Senior Member

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    Bay Area
    swollen throat

    Not Sore. swollen. Maybe swollen bfore rtxn but much worse after. , it's been 8 months on rtxn and over two months since last infusion.

    Causing (worse) apnea. Had a home sleep study and apnea is significant.

    Anyone else? Any ideas?

    gargle with salt water helps the swollen throat a bit.

    This seems to help as well:

    http://www.1cascade.com/ProductInfo.aspx?productid=4333

    Will try this next:

    http://www.1cascade.com/ProductInfo.aspx?productid=2726

    "Red root is a lymphatic stimulant useful in tonsilitis, sore throats, swollen lymph nodes and fluid-filled cysts. "

    Any problems with these? If echinacea stimulates immune sys, bad idea aftr rtxn?


    bad sleep

    6/12
    Pre-rituxan I used to usually sleep through the night, at least the majority of the time, even if not the same quality of sleep as I got pre-CFS. I haven't slept through the night once in the 5.5 months since RituxanIt's getting to be a pretty bad situation. I wake up a lot, and often can't get back to sleep after only 4 hours. I'm really sleepy during the day. When I don't actually wake up, I almost always toss and turn and sort of "half wake up" all the time.

    D Ribose didn't used to affect my sleep, but since Rituxan, if I take it during the day (last dose way before bed time) or even in AM only, I lay in bed in a kind of half sleep state where I can't get all the way to sleep.

    I had mild sleep apnea before Rituxan, and tha'ts gotten worse. But I think there is something more going on here as well given the "half sleep" (worsened by sugar).

    There was a change immediately after Rituxan.

    9/12
    (update- been 8 mnths and slp a bit better BC of no sugar/carbs for 6hrs bfr bed). But still nt good. Apnea worse.

    Curious if anyone else has noticed this?

    CFS also wrse

    I can't talk. Can't type/text enough to communicate. Haven't had a conversation with someone in 8 months...

    .
    NK17 likes this.
  2. alex3619

    alex3619 Senior Member

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    Logan, Queensland, Australia
    Interesting. No ideas as yet, but I am thinking about it.
  3. SOC

    SOC Moderator and Senior Member

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    USA
    Is it possible you have an infection or reactivation of a latent infection from B-cell depletion?

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