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Supreme Court Lets Affordable Health Care Act Stand....Implications for ME/CFS

Discussion in 'Phoenix Rising Articles' started by Phoenix Rising Team, Jun 28, 2012.

  1. Phoenix Rising Team

    Phoenix Rising Team

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    View the Post on the Blog
    camas and Merry like this.
  2. Sallysblooms

    Sallysblooms P.O.T.S. now SO MUCH BETTER!

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    Very bad for all concerned. Not just people with CFS. Disaster. Only hope is election time.
    ggingues likes this.
  3. Esther12

    Esther12 Senior Member

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    Thanks Cort.

    While treatment options for CFS are so limited, these reforms probably won't lead to much direct improvement in the way people's CFS is treated... but it should make it easier for those with CFS to have the coverage needed in case other medical problems emerge.
  4. WillowJ

    WillowJ Senior Member

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    Many needed reforms were included in the PPAHCA, but there was also a lot of baggage included which reinforces many of the things about our current structure which aren't working (and adds some new things which I think will cause further, faster failure). We could devise a better reform. American Medical Association has a suggestion (dated 2008) which I support.
    http://www.ama-assn.org/resources/doc/washington/ama-proposal-health-reform-2008.pdf
  5. floydguy

    floydguy Senior Member

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    I am not touching this one except to say that US healthcare costs are unsustainable with or without Obamacare. Either way the healthcare system is more like dealing with the DMV than Amazon or Apple. The real problem is that more and more the "customer" is not the patient but a third party like the government or insurance company. Republicans seem to be okay with this as they've not made much of an effort to change it themselves. Republicans aren't providing much balance on this issue. They appear to want a consolidation of power in healthcare as much as the Dems - just as long as it's "privatized"...economic statism is not just for the left!
    ggingues likes this.
  6. Sallysblooms

    Sallysblooms P.O.T.S. now SO MUCH BETTER!

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    Nothing more than a gigatic tax that Obama said it WASN'T. OOOPS. ha. Guess we all know now. This has never worked anywhere.
    ggingues likes this.
  7. Merry

    Merry Senior Member

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    Great news for the country and for me personally. I've been doing without medical care for several years now. And it makes me sad that anyone in the ME/CFS community would fight against access to health care for the millions of uninsured and under-insured.
    oceanblue, camas, beaker and 6 others like this.
  8. CJB

    CJB Senior Member

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    Great article, Cort.

    If the more fundamental aspects are left intact, it will help a lot of folks I know and love. It's a far cry from what I wanted and I don't think anyone was 100% comfortable with it, but it was the best that could be accomplished at the time. Some of the provisions included really common-sense strategies that will reduce costs and improve outcomes. Those are seldom talked about, but are probably among the more important.

    It needs to be built upon and improved, I agree. And we'll really only know what impact it will have with some experience.

    I like it when at least one of the Supreme's behaves in an unpredictable way. Gives me hope. WTG Chief Justice Roberts. The Sunday Morning talking heads are going to be fun to watch this weekend.
    beaker and Merry like this.
  9. WillowJ

    WillowJ Senior Member

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    I don't think anybody said that, Merry. Certainly not me. Cheers.
    ggingues likes this.
  10. ggingues

    ggingues $10 gift code at iHerb GAS343 of $40

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    I agree, I think it is horrible news for the country and it will not stand. Obama is finished, he has awakened a sleeping giant, good by Dems. He has killed his party, an overreach by gov't. Unfortunately it will just crash our economy much sooner than expected, if allowed to stand. Just about everything the gov't does is unsustainable and just distorts markets.

    The things that the gov't subsidizes heavily, rise above inflation every year, look at education and health care. Typical inflation is about 3%, and the aforementioned industries rise about double of 3% if not more, year after year.

    They are also behind the housing bubble, which we have not recovered from, and will not for years to come. If people want more massive meddling in our economy by the feds, than get ready for a massive implosion also.

    GG

    PS Hope I can keep donating monthly to this website and other worthy CFS causes. (The working poor).
    Sallysblooms likes this.
  11. Bob

    Bob

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    Very interesting to read the comments about this from our US members. I can't comment on Obamacare, because I'm in the UK. But it's interesting to hear that some people on this forum are against it. From what I've heard about it, in the UK, I imagined that all people with CFS would be in favour of it. From a UK perspective, I've mainly heard that it was a long-overdue and well-needed bill. So it's interesting to hear people on this forum think otherwise. I imagined that most people would have @Merry's perspective on the issue. Anyway, I'm not expressing a view, because I don't know enough details, and I'm not a US citizen, so it doesn't affect me.
  12. Sallysblooms

    Sallysblooms P.O.T.S. now SO MUCH BETTER!

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    Very few American's want this mess. We have had freedom. This would not pass now if it were done again. It was a joke, NO one read it first.
    ggingues likes this.
  13. liquid sky

    liquid sky Senior Member

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    I am so glad that this will help you gain access to medical care, Merry. There are some really nice and sensible provisions in this law. Looking at the list of provisions provided by Cort, I can't see anything that is not an improvement.
    Making the insurance companies spend a percentage of your premiums on direct healthcare rather than administrative or advertising expenses is a good start. I have worked in healthcare all my working life and I have always thought that it should be non-profit. Not there yet.

    Last week I went to a specialist and was waiting in line to pay my copay. The lady in front of me was charged 50 cents for her copay. I thought that was crazy as I have to pay $30.00 for mine and pay for insurance. Then I thought later that I was being unfair. Maybe that was all she could pay, so who was I to judge? I like the idea that everyone pays something. Some are freeloading when they could afford insurance, but don't and the cost is payed by those with insurance in higher costs for services. No one is above a medical emergency and we shouldn't expect others to pick up the costs. This bill helps most everyone afford insurance.
    Merry, camas and CJB like this.
  14. Bob

    Bob

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    Great to hear it's good news for you personally Merry. :) I'm really pleased to hear that.

    Sorry to hear the bill doesn't suit everyone.
    Merry and ggingues like this.
  15. Bob

    Bob

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    In the UK we get 100% free healthcare (except for regular dentistry), paid for by taxes.
    I think most people really appreciate our NHS, and despite the negative things you probably hear about it on this forum (including from me), I think it does a brilliant job with most medical issues.
    But it does often let us down, as it doesn't have the resources to be perfect.
    It tends to serve acute and emergency problems very well, but neglects many chronic problems like CFS/ME and depression.
    jace likes this.
  16. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    Hi Bob,

    I think quite a few of the US citizens on the forum are going to avoid posting on this thread as it could turn easily turn into a political debate. Just to say that the yays and nays here may not statistically reflect opinions.

    Sushi
    Merry, camas, beaker and 6 others like this.
  17. Cort

    Cort Phoenix Rising Founder

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    To say Roberts disappointed conservatives is an understatements....he certainly has guts :).. Personally I see the law as being very helpful and was happy to see it passed.
    Lou likes this.
  18. Cort

    Cort Phoenix Rising Founder

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    It would be lovely if the law continues to be tweaked to maximize efficiency and reward innovation. From what commentators said it does accomplish its goal of getting most Americans covered and there's quite a bit left to do on cutting costs.
    beaker likes this.
  19. CJB

    CJB Senior Member

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    I'm afraid very few Americans understand what's in the bill. There's been a well-financed misinformation campaign.

    I disagree that it was a joke. It was the product of a decades-long effort to provide healthcare to every American. And now the Supreme Court has ruled it's constitutional.

    There's still a lot of work to be done.
    camas, beaker and jace like this.
  20. Hope123

    Hope123 Senior Member

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    As a CFS patient and former healthcare worker, the bill is not perfect but then few things are. As the saying goes, "Don't let the perfect be the enemy of the good." I support it and am glad it passed.

    I have family in Canada and friends in Europe who have lived in the US. When I first became ill, one of the first things everyone was concerned about was how I would continue to get healthcare if I no longer had a job and whether I would be bankrupt by medical costs. (50% of bankruptcies in the US are related to medical illness) My Canadian relatives have endured cancer and serious strokes but no one became bankrupt and from what I could see, their care did not suffer. A friend offered to help me pay for care but I was lucky to have worked for an employer who covered my healthcare for an extended period initially and then to have enough money to buy the same-level insurance under COBRA until I was approved for Medicare.

    Patients I have had in the past and many people on this forum aren't so lucky. If they're not covered by spousal/ parental insurance, aren't financially well-off enough, can't work enough to get insurance benefits, or their employer doesn't offer insurance, they're hung out to dry unless and until they get approved by Medicare. Approval as we know can take years and is not guaranteed. We see this on the forum regularly. It's true insurance doesn't cover many things people with CFS may want to get tested for or for particular treatments but insurance does pay for RULING OUT other illnesses that can cause your symptoms. AND that is very important. How many times have people here said "you might want to get checked out for such and such"? Besides which, having CFS doesn't protect you from other medical conditions.

    It's interesting to read some interviews of people on the street as some express that they are against it but with further details from the reporter or some more contemplation,their answer becomes less certain and some adopt a more "let's wait and see" attitude.
    Merry, beaker and CJB like this.

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