The Real ME: A Stock Photography Resource for the Media
We’ve all seen them in the news stories about ME/CFS: the guy in a suit at the office, yawning; the beautiful woman sitting at her desk with her immaculate make-up and elegantly coiffed hair, hand to her head and looking slightly pained.
Discuss the article on the Forums.

Support for those too ill to post - or even sign in

Discussion in 'General ME/CFS Discussion' started by MeSci, Nov 26, 2015.

  1. MeSci

    MeSci ME/CFS since 1995; activity level 6?

    Messages:
    7,969
    Likes:
    12,814
    Cornwall, UK
    People sometimes disappear from PR for a varying amount of time - sometimes permanently - and no one seems to know what is happening with them. They may be well, and busy; they may be ill and struggling; they may not be well enough to post messages, or even to type at all, so may not be able to sign in, hence my posting this in an open forum. Sadly, things may be even worse...

    There are also many who have not joined because they lack confidence, do not have a good grasp of English, etc., again hence my use of an open forum.

    I just want to say to all these people:

    I am thinking of you, and wishing you well. Stay strong. Please join us if you can, but don't worry if you can't - we know you are out there and suffering and struggling as we are.

    I hope that this site gives you strength, support and hope as well as practical help.

    While no one you meet may understand you - we do.

    Things will change - and are changing - for the better, overall, although there are setbacks.

    Together we are strong.
     
    eafw, valentinelynx, ahimsa and 58 others like this.
  2. Mij

    Mij Senior Member

    Messages:
    2,269
    Likes:
    5,030
    @MeSci very thoughtful post.

    I've been listening to the new music by Adele lately and she really hits the heart with her new song "Hello".
     
    CantThink, Kina, Woolie and 5 others like this.
  3. jimells

    jimells Senior Member

    Messages:
    2,001
    Likes:
    6,114
    northern Maine
    One thing I learned from attending 12-step meetings is that one never knows who may be helped in some small way from our words.
     
    ahimsa, PatJ, CantThink and 9 others like this.
  4. MeSci

    MeSci ME/CFS since 1995; activity level 6?

    Messages:
    7,969
    Likes:
    12,814
    Cornwall, UK
    I'd like to add a blanket support for the friends and families of those who are unable to post, especially of those who have tragically passed away.
     
  5. ahmo

    ahmo Senior Member

    Messages:
    4,352
    Likes:
    6,553
    Northcoast NSW, Australia
    thank you @MeSci:love:
     
    MeSci likes this.
  6. Gingergrrl

    Gingergrrl Senior Member

    Messages:
    9,539
    Likes:
    24,649
    USA
    Beautiful post @MeSci and @Mij, I love the new Adele song, too, although often it's often sad to listen to in a haunting way.
     
    Mij and MeSci like this.
  7. daisybell

    daisybell Senior Member

    Messages:
    1,601
    Likes:
    7,362
    New Zealand
    Together we are strong. Thank you @MeSci

    I'd like to also include in this a special thanks and support for all those who care about us and care for us.

    We are millions in number around the world- we may be an invisible community to most, but we have strength in numbers and huge strength in our determination and hope for a better life and better health. I truly believe this is coming.
     
  8. Woolie

    Woolie Senior Member

    Messages:
    1,930
    Likes:
    14,558
    We are thinking of you often - those of you who are reading us but are not well enough to post.

    Inspired by @Mij's post above, I thought I'd post this sweet song. Its about deafness, but I feel its speaks to anyone who has a voice they cannot share.

    "... I'd like to tell you all I know... can you hear me?"

     
    ahimsa, Gingergrrl and Mij like this.
  9. leela

    leela Slow But Hopeful

    Messages:
    3,222
    Likes:
    7,232
    Couchland, USA
    @ woolie: sobbing now, with the whole heaving chest-thing and all
    totally touching
     
    Woolie likes this.
  10. Woolie

    Woolie Senior Member

    Messages:
    1,930
    Likes:
    14,558
    Yea, my reaction tool. The sobbing thing does a number on my symptoms, though! Hell, we can't even emote without paying for it!
     
    jimells, MeSci and Effi like this.
  11. jimells

    jimells Senior Member

    Messages:
    2,001
    Likes:
    6,114
    northern Maine
    But try to explain that to the "outside world" - they just don't get it. To most people, a flat affect = depression. They can't comprehend that it could be a shield and a way to conserve energy.
     
    Woolie and Effi like this.
  12. PatJ

    PatJ far and free I gaze

    Messages:
    1,955
    Likes:
    5,252
    Canada
    Or our actions. Here is one story, and another, to emphasize that point.
     
    Woolie and MeSci like this.
  13. digital dog

    digital dog Senior Member

    Messages:
    605
    Likes:
    927
    Love to all those who feel they cannot continue for another day.
    We feel our pain...we KNOW your pain.
    We are true warriors
     
    Gingergrrl and Sushi like this.

See more popular forum discussions.

Share This Page