Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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Superfish suffering from chronic fatigue

Discussion in 'General ME/CFS News' started by Ember, Jan 28, 2014.

  1. Ember

    Ember Senior Member

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    By Rodney Stevens
    29th Jan 2014 6:00 AM
    Comments (1)
    More...
     
    justy, alex3619 and Valentijn like this.
  2. leela

    leela Slow But Hopeful

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    Couchland, USA
    I really like how the explications if the illness in the media are getting more and more accurate, referring to neurological effects, CNS disruption, hormonal imbalances, and degrees of disability. It is very encouraging to feel and hear the tone shift, as well as the kind of data offered.
     
  3. Bob

    Bob

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    Thanks for posting, @Ember.
    As @leela says, it includes really helpful information about ME/CFS.
    But perhaps it's possible that Jacqueline is experiencing over-training syndrome, rather than ME, and will recover in a few months. (i.e. Prepare for further stories about a recovery from ME!)
     
    Last edited: Jan 29, 2014
  4. Ember

    Ember Senior Member

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  5. Christopher

    Christopher Senior Member

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    They're miserable, demented people. Don't worry about them :3
     
    leela likes this.
  6. Sea

    Sea Senior Member

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    NSW Australia
    Yes I wondered about this too. It would be hard to know what interaction Cerebral Palsy and overtraining would have together.

    Having said that though, I know this girl (my children trained along side her years ago) and she has trained hard for many years so I would think she and her coaches should know the difference between pushing too hard and illness.
     
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  7. Firestormm

    Firestormm

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    I do share the concerns, but as someone who did not know of this lady until the article, she is one heck of a superstar: https://www.facebook.com/JacquelineFreneyParalympian If she is again able to help then perhaps she could become someone to raise positive awareness about the condition. Certainly doesn't seem to be short of contacts. I do hope she improves - nightmare when this hits of course - and seems she also endured a significant period of waiting until a diagnosis was afforded. But given her profile I would imagine the diagnosis was a reliable one.
     
    justy and Bob like this.

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