Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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"sunburn in the gut"

Discussion in 'Pain and Inflammation' started by Richard7, Dec 23, 2016.

  1. Richard7

    Richard7 Senior Member

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    There is this symptom I have had for at least 2 years, probably longer, where I feel a sensation like sunburn - heat and pain - in my gut and quite often it seems also to be in my throat when it is really bad my mouth and lips can also be sore too.

    It does not happen every day, but it can happen for many days in a row.

    The pain in the gut is worse when I am reclining, particularly if I rock back and forth.

    I have talked about it to my doctor on several occasions but she has no idea. When I learned that I have b. hominis I just hoped that it was something to do with that infection, but I am on day 10 of a 10 day antibiotic therapy and am having a bad day of it.

    It also seems to be associated with worse anxiety/hyperacusis etc, but that might just because it overtaxes my limited resouces.

    Does anyone have any ideas?
     
  2. Kati

    Kati Patient in training

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    Hi @Richard7 is your doctor treating you for GERD? i happen to have GERD and while these days I get very little reflux, I get a sensation of swelling in my upperchest, and sometimes pills get stuck in that area too. This isthe clue for me to return to my doctor and ask for for better drugs for my GERD.

    i started getting this very early, after my ME onset.
     
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  3. Richard7

    Richard7 Senior Member

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    Thanks @Kati

    I do not think it is GERD. I did have GERD until I started on betaine HCL. But GERD was always after eating, this pain can come without eating, was in the chest/throat not belly or mouth and lips.

    It did occure to me that it could be the betaine HCL - that my stomach could be becoming to acidic for my duodenum etc and tried reducing Betaine HCL but that made bo difference. Which was not a supprise as the heat is different to the sensation of having too high a dose of betaine HCL and it can happen when I have not being eating.
     
  4. lnester7

    lnester7 Seven

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    Have you been tested for Coaxaquie viruses all A and Bs strains?

    Have you noticed little bumps on roof of mouth or moon like shape in your throat?

    Could also be a good allergy specially since is getting to your mouth the sensation.

    Just from my experience I am no doctor.
     
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  5. Richard7

    Richard7 Senior Member

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    I have noticed bumps on the roof of my mouth from to time. They are not there today but have been this week.

    and no I have not been tested for those viruses.
     
  6. Forbin

    Forbin Senior Member

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    I've had a sunburn-like sensation in the area of the gut for decades. It's been on and off since coming down with ME 30+ years ago, but mostly on. The sensation is oddly close to the surface of the skin, which make it feel like a sunburn, but I suspect that it is in the small intestine.

    It seems like it might be related to the consumption of wheat/gluten, but it is hard to say. I don't really have the symptoms of either coeliac disease or Chron's disease. Weirdly, I have a similar burning sensation in the lower arms. It seem coincidental that roughly the same sensation is occurring at about the same "height" in both my arms and my gut. It might suggest some kind of neurological origin, I guess.
     
    Last edited: Dec 23, 2016
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  7. rosie26

    rosie26 Senior Member

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    I am getting more intense burning. The last couple of years the skin on my abdomen, above waist and below, has become unnaturally hot. Before that it was the other way around - strangely cold, even when I felt hot inside. I have been concerned that I might have something wrong with my stomach, esophagus, pancreas or the traverse colon, still not sure what it is.

    Last year, for a couple of months, the skin on my back was burning as if I had been sunburnt. The burn was so bad that I had to put cold wet towels on my back to cool it. I think the problem was with my lungs, at that time, as I had had the burning in my lungs firstly, and then it weirdly moved to the skin on my back.

    I have always had an unusual heat production with my ME but it has got worse the last few years (3-5 years).

    I do wonder if this is all coming from the nervous system, some kind of electrical heat - or perhaps it is also from the immune system.
     
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  8. Richard7

    Richard7 Senior Member

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    Yeah I do not know that it is in my gut (intestines) maybe I should say belly instead. Is your pain worse when lying down?
    Does it vary is you rock back and forth in a reclining chair ? (if you have one: I do not really consider them standard)

    @rosie, is you skin hot to the touch? I find that even though I have this sunburn like feeling the skin on my belly can be cold to the touch.
     
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  9. rosie26

    rosie26 Senior Member

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    I think the only difference for me with lying down and standing is that with lying down the heat is more trapped with less skin exposed to the air for cooling. Sometimes I have to turn over to my side to cool my back. Actually, I think I might produce more heat lying down.

    I don't get a lot of pain, just heat pain, like burn pain. Perhaps that is what you meant. My skin is hot to touch on my stomach. It never used to be that way. I used to be like you where the skin was cold to touch.

    If I find out anything I will let you know.
     
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  10. Richard7

    Richard7 Senior Member

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    @rosie26 yeah I meant heat/sunburn pain.
     
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  11. Art Vandelay

    Art Vandelay Senior Member

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    When I first got sick, I had what felt like burning pains which moved through my intestines. I still get it now and then. More here about my experience with blasto and GI symptoms.

    Hope your blasto treatment is successful.
     
    Last edited: Dec 25, 2016
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