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Suggestions for avoiding external triggers

Discussion in 'Mast Cell Disorders/Mastocytosis' started by xchocoholic, Nov 19, 2012.

  1. xchocoholic

    xchocoholic Senior Member

    Messages:
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    Likes:
    1,480
    Florida
    Hi there,

    Sorry it took me so long to get back to this. Lifestyles of a pwcs, ya know .... Rest, cook, eat, sleep, repeat ..

    I went with zyrtec because I read it was better for swelling. I have anaphylaxis and angioedema which is
    causing pelvic and bladder pain too. It's helping too as long as I take 25 - 30 mg spread out throughout
    the day. I do best taking only 5 mg at a time for some reason. I suspect that's all my body can process
    at one time.

    I tried brand name zyrtec but it made me sleepy whereas Wal-zyr (Walgreens zyrtec tablets) doesn't. Wal-zyr has corn starch in it and I get a boost from cornstarch.

    I have some teeth problems that I need to take care of too. I wonder if dental problems are related to cfs.
    I had all my mercury removed between 1990 - 1992, but I have a root canal that probably needs to go.

    I've been working on finding pans, laundry soap, etc. I bought a Cuisinart anodized aluminum pan that I have to
    take back. I can taste the aluminum. Bleh .. I started tasting aluminum from cans over 10 years ago.

    Tc .. X
  2. soulfeast

    soulfeast Senior Member

    Messages:
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    Likes:
    44
    Virginia, US
    its taking me a while to respond as well. such a puzzle here. Funny how some of us are fitting this profile. I have been flushing, throat tightening and experiencing that borderline anaphylaxis feelings. Started with light sensitivity, feeling top of my head was buzzing, sinuses inflamming, ears inflamming (?) internally.. then the flushing etc.. creepy feelings under skin.. slight breathlessness. I was off supplements for 3-4 weeks depending on which ones for mito and other tests. Added back in and this happens, not that I didnt prime myself by ingesting a lot of high histamine and histamine triggering foods a day before and day of mast cell tests.

    I should now probably experiment with twice a day dosing and start back on d-hist, quercetin or neuroprotek. Probably need to keep an eye on reactions to b6 and methylfolate since I am understanding both can trigger (and oddly help control.. strange... b6 can trigger histamine release but it helps with production of DAO enzyme and folic acid can trigger (best I understand?) and though methylation help control.

    Take away these mast cell like symptoms and if I wear compression hose, I am doing so much better. Already experiencing a consistant positive shift after dealing with the dental infections. Just hoping the one root canal does not turn into an issue.
    SaraM, camas and xchocoholic like this.
  3. xchocoholic

    xchocoholic Senior Member

    Messages:
    2,818
    Likes:
    1,480
    Florida
    Hi soulfeast,

    Good to hear you're doing better. I'm busy experimenting with various meds and supplements too.
    The zyrtec helps me but I wasn't satisfied not knowing what other meds might help. I'm trialing different
    cox inhibitors, nsaids, because of prostaglandins role in mast cells.

    I think I may have found a solution for my dirty a/c ducts. Method bathroom cleaner appears to be keeping
    the pathogens under control. I'm spraying it directly on the fiberglass. I was using bleach successfully but
    am trying to avoid those chemicals.

    I bought some more
    plants too to help clean the air. NASA has an interesting study on which ones do the best job. Just
    google nasa plants to find it. I really enjoy plants so that's a bonus for me.

    I have a hepa air cleaner but couldn't find any charcoal filters to fit it. I haven't tried looking online yet tho.

    Fwiw, I'm allergic to vinegar now but I wasn't always. I used to clean with it but I had to stop.

    Tc .. X
    soulfeast and camas like this.

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