1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
Nitric oxide and its possible implication in ME/CFS (Part 1 of 2)
Andrew Gladman explores the current and historic hypotheses relating to nitric oxide problems in ME/CFS. Part 1 of a 2-part series puts nitric oxide under the microscope and explores what it is, what it does and why it is so frequently discussed in the world of ME/CFS. Part 1 focuses...
Discuss the article on the Forums.

Sudden Weakness and Nausea

Discussion in 'Gastrointestinal and Urinary' started by Lionheart, Feb 5, 2012.

  1. ahimsa

    ahimsa Senior Member

    Messages:
    1,015
    Likes:
    845
    Oregon, USA
    In case you want to read a little bit about it before you talk with your doctor, here's a link with an overview of Orthostatic Intolerance (includes both POTS and NMH):

    http://www.cfids.org/about-cfids/orthostatic-intolerance.asp

    From the symptoms section:

    Edited: Here's one more link if you want more - http://www.research1st.com/2011/06/19/the-outs-and-ins-of-oi/
  2. taniaaust1

    taniaaust1 Senior Member

    Messages:
    7,742
    Likes:
    4,613
    Sth Australia
    The info on the link which ahimsa posted, I suggest you copy it and take it to the doctors with you.. as even many ME/CFS specialists arent aware of POTS, thou most of us have it.
  3. bertiedog

    bertiedog Senior Member

    Messages:
    415
    Likes:
    225
    From my experience with symptoms like those I would rule out adrenal problems. Have you done a 24 hour saliva/DHEA cortisol test to see what level of cortisol you have in your cells. You can order one yourself from Genova Diagnostics.

    When you have very weak adrenals you get symptoms like sudden weakness and vomitting and diahorrea which is similar to those of Addison's disease. If you have adrenal insufficiency then it is common to get POTS too and a low dose of fludrocortisone can cure this.

    I used to suffer in this way but now I have to take steroids every day I don't have the vomotting or diahorrea at all but still episodes when I don't feel very strong.
    taniaaust1 likes this.
  4. Lionheart

    Lionheart CFS warrior / survivor

    Messages:
    39
    Likes:
    25
    USA
    I am having mostly nausea now, but I will take the info to the doctors with me on Wednesday. Wish me luck. :D
  5. Lionheart

    Lionheart CFS warrior / survivor

    Messages:
    39
    Likes:
    25
    USA
    I have been prescribed a medication for ulcers and one for nausea and they are not helping my nausea at all. I am scheduled for an E.G.D. on Monday and hopefully the test will reveal the reason for my nausea. The periods of sudden weakness seem to be connected to my gastrointestinal symptoms, ....but we shall see. They had to reschedule my follow up until after the diagnostic procedure and that will be the end of the month. :(

    I do appreciate all of the support I've received here and will try to keep this post updated as I find out more about my condition.

    Peace,
    Lion
  6. taniaaust1

    taniaaust1 Senior Member

    Messages:
    7,742
    Likes:
    4,613
    Sth Australia
    Best luck in finding out the cause.
  7. Lionheart

    Lionheart CFS warrior / survivor

    Messages:
    39
    Likes:
    25
    USA
    Today's tests revealed a precancerous ulcer in my esophagus (Barrett's esophagitis), inflammation of the stomach lining (gastritis), and the need to have surgery (neeson fundiplication) to repair the (LES) lower esophageal sphincter, which is wide open due to a birth defect. This is the definite cause of my nausea. I don't know if this is causing the sudden weakness yet, but will follow up with my regular physician on the 30th.

    Thanks to all for the encouragement and support and I will try to keep this post updated as I learn new information.

    Peace,
    LH
    ahimsa and taniaaust1 like this.
  8. taniaaust1

    taniaaust1 Senior Member

    Messages:
    7,742
    Likes:
    4,613
    Sth Australia
    Ive liked your post as I was glad to see an update on your situation.

    I hope finding the cause of the nausea at least and knowing it can be fixed is a relief to you but wow, that must of been a shock to hear all that.
  9. Lionheart

    Lionheart CFS warrior / survivor

    Messages:
    39
    Likes:
    25
    USA
    Yes, I am relieved to find that the ulcer isn't cancerous and at least now they can start treating me with medication, lifestyle changes, and whatever surgery may be necessary. :D I am not good at being ill, I am a big baby and want my mommy :Sign giggle: but seriously, thank you for taking the time to reply, it means a lot to me to know someone cares enuff to read and reply to my posts!!! I will update as I learn more.

See more popular forum discussions.

Share This Page