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Sudden low grade fevers?

Discussion in 'Immunological' started by Alesh, Jul 12, 2011.

  1. Alesh

    Alesh Senior Member

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    I have had ME for more than 13 years. In the first year I had elevated temperature. But the remaining time I had temperature below 36C. Now for more than a month I have a constant temperature in the range of 37-37.7C and I am more exhausted than before. Does anyone have a similar experience? Can it signify something?
     
  2. caledonia

    caledonia

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    I found out my low grade fevers are caused by yeast. If I take an anti-fungal, they go away. I rotate between Grapefruit Seed Extract, Cat's Claw and Caprylistat (a form of caprylic acid). I can be on of those for a year, then it stops being effective, and I switch to the next one.

    You should know within a day or two if it's going to work.
     
  3. taniaaust1

    taniaaust1

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    Yes.. the ME/CFS in me has followed that similar pattern. First year or 2 my temp was very elevated 38-39.8C a lot of the time. (very viral symptoms much of time)

    Then once the ME was more chronic and set in for a while.. I had low temp. Sometimes even at 35.9C but most of time low 36C ranges. The low temp went on for many many years, sometime like 8? years or more. With that I also had new symptoms of ME such as Raynauds and chillblains (I wasnt old) and also had low BP

    Last 2-3 of years... I dont have the low temp issues I used to have and my temp has come back to a normal temp range but with fevers at times again but this time low grade ones not the high grade ones of the start of my illness. And my low BP has shifted into issues with dysregulated BP (both very high and low)

    Im mostly homebound and not bedridden as in my past..but exhaust and can get symptoms very fast.

    I dont know why our bodies have such patterns thou having elevated temp at start makes sense if our body is trying to fight off something at that point. Maybe with time it wears out and gives up fighting and burns out causing the low temp?
     
  4. viota

    viota

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    my temp is always at 37c never dips below it.At the moment im mostly bedridden.
     
  5. Alesh

    Alesh Senior Member

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    Thanks for the answers. For me it is a new symptom (together with hypertensive crises). I hope some doctor will want to investigate it...but I doubt it.
     
  6. Nickcnate

    Nickcnate

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    for me its a response ti chronic inflammation, not sure that helps
     
  7. taniaaust1

    taniaaust1

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    Posteral hypertensive crisis?

    My own theory is that something can get damaged in our body after having ME/CFS for a while.. this takes many of us who have ME/CFS low BP (86% of us) into another BP state of having dysregulated BP in which hypertensive crises can occur. (my own BP nowdays can spike up to 156/138 when up on feet ....early ME days I just had low BP).

    The whole issue to is to do with sympathetic nervous system dysfunction and autonomic issues. (This dysregulated BP issue is an issue that most doctors have never heard of). I havent got a doctor treating this high BP issue .. (he didnt know what to do about it as my BP also goes low when I sleep). I dont know if there is any drugs to regulate BP in a way to raise low BP at the same time as lowering bouts of high BP.

    Thou my issue is being ignored I know that the result of this issue can be actual heart failure (Ive come across two people who werent old at all.. one was only in 30s, who were in heart failure from same issue.. heart ends up damaged).

    best luck in being treated esp if you have dysregulated BP which doctors so little understand
     
  8. Countrygirl

    Countrygirl Senior Member

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    I was most interested to read your post, taniaaust. I have just come out of the stroke unit after another hypertensive crisis causing brain injury. On this occasion, I was told my pupils became uneven and I lost the power in my right side, but both fortunately resolved.

    For 30 years I had hypotension with the ME, sometimes severely. Then about four years ago, my BP would suddenly spike from sometimes quite low to 230/130. On three occasions now, I have been admitted to hospital and it has taken many weeks for the damage caused by the sudden spikes to mostly resolve. Unfortunately, the first one has left me with permanent vestibular damage and a Meniere's-type problem. On the second admittance to hospital, I was told I seemed to have a cardiac problem associated with it. I have tried to explain what happens to my doctor, but he seems rather bewildered by it and, like you, I have received no treatment. I think we are being left to become daisy fodder as this seems to be a rather dangerous issue, which is being ignored.


    I know one other person who is now also experiencing hypertensive crises after many years of ME and hypotension. I would like to know if others here have experienced the same problem and whether their doctor has found any way of treating it. I used to think one couldn't have ME and hypertension, but I am obviously wrong.

    I wonder how many other ME veterans are experiencing this?

    C.G.
     
  9. Jenny

    Jenny Senior Member

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    I'm very sorry to hear about your spell in hospital CG. Im glad to hear you have made some recovery - I do hope this continues.

    I've had ME for 30 years (though with a long period of remission in the 1990s). I had several periods of low blood pressure, then in 2005 I had a subarachnoid haemorrhage, probably linked to high blood pressure. (But I think this was caused by vascular damage related to the ME.) While I was in hospital my blood pressure varied widely from hour to hour, and the docs seemed not to understand this. I was treated with nimodipine for the haemorrhage and this seemed to help my ME symptoms quite a bit.

    Over the last few years though, although my ME has got worse, my blood pressure is usually normal. So I guess this shows that these blood pressure problems can improve.

    Jenny
     
  10. taniaaust1

    taniaaust1

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    Ive had the symptom of unequal pupils and more like MS kind of symptoms eg foot/leg drag at times with this illness but cant relate them to the hypertension.

    As far as how many of us are getting hypertensive eposides (id say due to having a dysregulated BP) there are no answers to that. As far as I know this symptom hasnt been studied at all yet in ME even those studying the autononomic issues in CFS (eg Adelaide research group) were focused on the low BP side of things and werent even aware that some of us are getting hypertensive bouts.

    All I can say is this issue would be far more common then we realise. I know in myself that my BP was only suddenly spiking for an hour or so only about once a day so without 24 hr monitoring being done on someone (this is how I first came aware of my issue), this issue may be hard to see and probably will go unnoticed.

    I had a huge BP spike in a specialist appointment recently while he was taking my BP.. he was taking my BP every 30 seconds and we took it from laying (it was fine laying) to standing .. and it instantly started going up on the postural change (I'd never seen it go up to orthostatic stimulation as quick as that, usually I've got to be on my feet for a short time first).

    After 1-1 and a half minutes, my BP was up to 170 and at that point I started getting symptoms to standing. When it hit 170 I got a hot flush and head pressure and a very strong urge that I had to sit down (along with legs starting to get weak and go into shaking). I sat at that point (as I was concerned I was about to collapse), had we continued the BP monitoring with me standing who knows how much higher my BP would of spiked.

    That showed me that I certainly do get symptoms due to these high BP spikes... I know now that I go into symptoms when my BP reaches 170 (but wasnt aware of my BP going up till it go to that point).


    There are a few of us at this site with this issue. It is an issue Dr David Bell is aware of being in ME people.

    CG you mentioned doctors thought could be a heart related issue. Since I posted that other post here, Ive realised I certainly have a mitral valve prolapse. I realised that as sometime within the past 3 years, 2 of my heart valves have developed leaking and when I looked up what was the most common cause, it said mitral valve prolapse.

    Dr Cheney I think it was said most of those with ME have mitral valve prolapse (did he say 80% of us have this? the percent was very high).. all I know is mine mitral valve prolapse is being missed. (they didnt look into why I now have minor leaks in two of my heart valves which I didnt have before.. I wonder if my BP issues and the pressure they must cause in my system have caused the mitral valve prolapse????? or maybe there is a link to that and BP issues???????)

    We really need someone studying this issue in ME as we all know that high BP is dangerous and research studies say that BP spiking separately to having high BP, is an extra risk factor to having an heart attack.

    I made a wiki page at the world wide wiki on "orthostatic hypertension" if you wish to check it out. I went throu pubmed and referenced every study I could find (going back to the 1970s..only been 17 studies I think it was), so unfortunately hardly no studies have been done on this little known area. Only one big study has been ever done on it and that was its prevelance in the general pop. I know the issue is far higher in us.
     
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  11. Countrygirl

    Countrygirl Senior Member

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    Thank you for the very informative post,taniaaust. I think this area clearly requires further study and I do hope it will capture the interest of some researchers. Perhaps we veterans could start by regularly checking our BPs throughout the day in order to identify a pattern.

    Jenny, I hope you recovered well from S.H., but am sorry to hear that your ME has worsened over the years. I do hope an improvement lies ahead for you.

    This is a useful paper on postural hypertension.

    http://www.nature.com/nrneph/journal/v2/n8/full/ncpneph0228.html

    C.G.
     
  12. allyann

    allyann Senior Member

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    I've had ME/CFS for the last three years and have had a normal range of blood pressure whenever I've been tested. In the last six weeks of my pregnancy I was suffering high BP and had to be medicated. After delivery I have been up and down like a yoyo ranging from 150/110 to 105/65. They do not want to medicate me again in case it goes low and I end up fainting.

    I did have a period of about five years from when I was 28 when I had high blood pressure that was medicated but have never had this varying degree.

    As far as temperature goes, I had a low grade fever for the first two years of having ME/CFS. Now it is normal.


    Sent from my iPod touch using Tapatalk
     
  13. hurtingallthetimet

    hurtingallthetimet Senior Member

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    i have low grade temp for years now since becoming ill...id ask doctor and was told from the illness..if its something new to you and yoruve told doctor make sure you do so they can make sure you dont have anything else going on..take care
     
  14. SickOfSickness

    SickOfSickness Senior Member

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    I have a lower normal body temp (maybe had it before the illness, or maybe it's from the illness). Then I get many low grade fevers, but they make my body temp seem normal (instead of low). I believe I get them due to inflammation if I exerted myself at all, and therefore have pain or soreness. Also many of mine are probably due to allergies and sensitivities. Oh! And I get them if I'm overstressed. They can happen in minutes if the stress is enough.
     

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