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successful treatment for light/noise sensitivity?

Discussion in 'Hypersensitivity and Intolerance' started by Gavman, Feb 26, 2012.

  1. Grigor

    Grigor

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    Yes. I heard lots about it . It's on my list but also I'm a bit hesitant with the Hypoglycemia. And Candida . So waiting a bit with that one.
    rosie26 likes this.
  2. Raindrop

    Raindrop Senior Member

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    Grigor,
    Have you or anyone else here actually tried the suggestions for 10mg Lutein and 2mg Zeaxanthin per day
    for light sensitivity? I am pretty desperate, and I am sure you are as well. People (excepting my GP doctor
    who totally gets it) have a hard time grasping how low or non-existant the lights have to be for me.
    Just don't fit into this world with the extremity of my difficulty with sunlight, light in general and heat, etc.
    Really wondering about the Lutein (which I already take at 10gm per day) and Zeaxanthin.
  3. Allyson

    Allyson *****

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    IMO it is aused by excess drenaline due to POTS Gavman

    Adrenaline is flight of fight - so all senses are hyper alert, muscles tensed, digestion impaired etc

    so treating the OI/POTs helps h photophobia

    see more in this thread the logic and management strategies
    http://forum.notcrazy.net/index.php?topic=9571.0

    Ally
  4. Allyson

    Allyson *****

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    yes it helps my muscle aches Rosie - a staple for me now!
    cheers

    Ally
    rosie26 likes this.
  5. rosie26

    rosie26 Senior Member

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    @Grigor Did you try ALA ? How did you get on - did it lessen light/noise sensitivities for you.
  6. Raindrop

    Raindrop Senior Member

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    I just don't know anything about D Ribose.....is it important to buy a certain type?
    What type would I get and how much of it/ dosage to try? Advice would be helpful.
    Also wondering if any others have also found it helpful with noise sensitivity ?
    rosie26 and Allyson like this.
  7. Allyson

    Allyson *****

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    for me it did otelp with noise sensitivity

    managing my POTS helped with the noise sensitivity as adrenaline from POTS causes it for me

    more about that an how to manage it here Raindrop

    http://forum.notcrazy.net/index.php?topic=9571.0

    good luck

    Ally
    rosie26 likes this.
  8. rosie26

    rosie26 Senior Member

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    Hi Raindrop
    Actually I'm not sure how much of an affect D Ribose has on the light/noise sensitivities. I think it helped me more in the way of giving me a little bit more energy in the muscles which lessoned PEM inflammation overall which then I think lessoned a tiny bit of the neural. It definitely helped the muscles but not as sure about the neural side of it.

    Ribose has been the most helpful thing I have tried without side effects. It doesn't suit everyone though unfortunately.

    I take Drs Best D Ribose, 250g container, the powdered form. 1 scoop in the morning with food and 1 scoop in the evening with food. If you try, you should always take it on food.

    There is a thread by Sasha, but don't know how to link to it.............D - Ribose - can it make you feel bad? It's in the General Treatment section. You can read other members experiences trying D Ribose.
  9. Allyson

    Allyson *****

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    I take healthy origins form iherb - I may try a different brand tho as it does not give me any more energy, just relief for muscle aches which is enough tho I have been happy with this one

    Ally
    rosie26 likes this.
  10. Helen

    Helen Senior Member

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    Lack of vitamin A is known to cause light sensitivity as well as the vitamin B´s (including B12).
    Allyson likes this.
  11. Allyson

    Allyson *****

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    Interesting a B12 is also essential in making connective tissue

    come to think of it y photophobia is better after months on B 12 injections

    and vit D involvement?

    Ally
  12. Helen

    Helen Senior Member

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    I am not sure I understand your question.
  13. Grigor

    Grigor

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    Hi Rosie. It didn't help me much. Actually it lowers bloodsugar which wasn't the best for me . I could try it again cause at the time I was using chrome which also lowers it . So maybe it was too much at the time.
    rosie26 likes this.

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