Professor & patients' paper on the solvable biological challenge of ME/CFS: reader-friendly version
Simon McGrath provides a patient-friendly version of a peer-reviewed paper which highlights some of the most promising biomedical research on ME/CFS ...
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Success! from GCMAF, and New Videos from Doctor Bell, Enlander and Peterson!

Discussion in 'General ME/CFS News' started by livingwithcfids, Oct 20, 2011.

  1. livingwithcfids

    livingwithcfids

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    Success! from GCMAF
    These two patients of Doctor Enlander have had "significant improvement in such a short period of time compared to other ME/CFS/CFIDS treatments"
    Patient 1 http://www.youtube.com/watch?v=ueqHbhD5q4c&feature=channel_video_title
    Patient 2 http://www.youtube.com/watch?v=mAUHbSG7HEY&feature=relmfu

    Also, Doctor Bell talks about the new discovery (the cancer drug)
    http://www.youtube.com/watch?feature=player_embedded&v=petcvu53S0w

    Doctor Peterson on new foundation, pilot studies, investigating cerebro-spinal fluid (CSF) in M.E/CFIDS patients
    http://www.youtube.com/watch?v=_H3mDhf-kso

    I've really seen so much CHANGE! these past few days. New research, new drugs, international attention, action to take down CDC "CFS" out-dated information, its all so exciting. I don't want to get any ones hopes up, but the tides are surely in our favor now.
     
    leela and jenbooks like this.
  2. *GG*

    *GG* Senior Member

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    Thanks for posting all this. I saw the Dr. Bell one, but not the others!

    GG
     
  3. Enid

    Enid Senior Member

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    Thanks for posting livingwithcfids - with so much research coming together now it has to be the most encouraging time for ME. A personal liking for investigation of cerebrospinal fluids - never doubted since my lumbar puncture something should have been revealed then.
     
  4. Lou

    Lou Senior Member

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    Dr. Bell's world, in this case, could use some expansion. I've been sick more than twenty-five years and gcmaf worked for me better than anything else tried in that time.

    Uh, sorry, Dr. Bell, you were referring to a drug, not gcmaf. I should have read the link.
     
  5. Ronan

    Ronan Senior Member

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    Unfortunately I think he was talking about the new Cancer drug treatment when he says up to 5 years. I'm 10 years in now!
     
  6. Andrew

    Andrew Senior Member

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    It's interesting to see Dr. Peterson and others talk about what the science is showing now. It's pretty much what ME experts were saying 40 years ago.
     
  7. livingwithcfids

    livingwithcfids

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    Experts were saying ME was auto-immune 40 years ago? Does anyone think ME/CFS is auto-immune?
     
  8. Andrew

    Andrew Senior Member

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    Not that I know of. What I read is that an infection of one kind of another was triggering events that led to neuro and immune problems.
     
  9. justinreilly

    justinreilly Senior Member

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    NYC (& RI)
    The Norwegian doctors who did the study think it indicates ME is an auto-immune disease. This hypothesis has been out there for a long time, but hasn't been researched much, I don't think.

    I am optimistic and psyched with all the good news lately!
     
    leela likes this.
  10. Andrew

    Andrew Senior Member

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    I think the conversation got mixed up here. I was talking about Ramsey and how it relates to Peterson. Not about the Norwegian study.
     
  11. Ronan

    Ronan Senior Member

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    Here's an interesting quote in relation to duration of illness and expected response:

    With a small study and only 15 patients in each group is too little data to say anything certain about the duration of the disease in relation to response. We'll look at in the new studies.
     
  12. GaryK

    GaryK

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    BINGO boomer, with 1 auto Immune disorder its said that others may be present as well!
     
  13. Battery Muncher

    Battery Muncher Senior Member

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    Great news! What a hopeful week!
     
  14. SpecialK82

    SpecialK82 Ohio, USA

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    Thanks for posting all these great videos in one spot - I am so encouraged to see this sort of progress.
     

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