Gingergrrl
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in people symptomatic with Parvovirus, IVIG is used to heal it, even when the patient has normal IGG levels. Why isn't this approach used for other infections like EBV, CMV, HHV6 etc?
I am wondering the same thing as my ME/CFS doctor said that IVIG is *THE* treatment for Parvo virus but not for the others. Does anyone know why this is? I am low IgG positive on Parvo but am negative on IgM and PCR and do not believe that Parvo is the cause of my problems vs. newly discovered auto-antibodies.
We tried for 6 months to get insurance to cover. But all of his other IGG levels were normal. so not covered.
Hi @Billt Am sorry to hear this and am sorry I am so slow at present to respond via PM but will do soon and you and your son are always in my thoughts. I have no idea if insurance will authorize IVIG or SCIG for me but I would very much like the opportunity to try it.
I was prescribed 3 ml twice a week of Gammanorm.
@justy, Is Gammanorm the same as Gammunex or Gammaguard? Am wondering if there are different names in Europe or there are really three brands with similar names!
IVIG at high dose has anti-inflammatory effect for diseases that clearly have autoimmune basis.
I have heard this, too, that IVIG for auto-antibodies or auto-inflammatory conditions starts with a high loading dose but I already know this will be impossible for me. If I attempt this, I will start with the very lowest dose and slowest infusion speed possible until certain I am not allergic and build up vs. the other way around.
@RYO Did you ever end up starting this treatment and if so, how did it work for you? Do you have auto-antibodies or were you guessing that you did without testing?