The power and pitfalls of omics part 2: epigenomics, transcriptomics and ME/CFS
Simon McGrath concludes his blog about the remarkable Prof George Davey Smith's smart ideas for understanding diseases, which may soon be applied to ME/CFS.
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Stranded on Mars

Discussion in 'Spirituality and ME/CFS' started by RYO, Jan 26, 2016.

  1. RYO

    RYO Senior Member

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    I recently watched "The Martian" starring Matt Damon. I thought the movie was a good metaphor for how CFS/ME patients feel stranded and isolated. It's a shame we don't have a "mission control" to help us. I am still praying for a rescue mission so I can get off this desolate planet called ME/CFS.
     
  2. PNR2008

    PNR2008 Senior Member

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    @RYO very well put.
     
  3. PNR2008

    PNR2008 Senior Member

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    @RYO when I got sick in 1988, I could not wrap my head around the complications of this disease. So I just felt like I was a captive in my own home but in a foreign country with very odd rules. It was the only way I could cope with the drastic change in my life.
     
    meandthecat, RYO, Mary and 1 other person like this.
  4. Marky90

    Marky90 Science breeds knowledge, opinion breeds ignorance

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    I agree, although the movie did not live up to its potential. Interstellar was much better.

    "rage, rage, against the dying of the light".
     
  5. RYO

    RYO Senior Member

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    @PNR2008 Your friends really don't want to leave you but over time that's what happens. You can't even blame them. So there you are taking stock of your resources and doing whatever to survive. You try anything in desperation which sometimes blows up in your face. And lastly, you have to face the stark reality of your vulnerability and mortality every day.

    Watching Forgotten Plague for me was like finally getting a line of communication with the rest of the world. You can spend hours trying to explain in words our plight but the documentary allows outsiders a glimpse into our dark world.
     
  6. L'engle

    L'engle moogle

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    Your real friends will not leave you completely, even if you rarely or never see them in person. My best friends, though they are few, never doubt my condition or push me aside.

    Please don't lose hope that it is possible to have real connections with other people, however infrequent or virtual in nature.:hug:
     
  7. Old Bones

    Old Bones Senior Member

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    My television metaphor for how ME/CFS patients often feel is the episode "Schisms" in Season 6 of Star Trek: The Next Generation (1992). This was during my "living on the couch" days. Television was a major pass time. I hadn't realized yet that watching TV was contributing to my extreme fatigue and other symptoms.

    I often think of this episode, years later, when describing how I feel waking up in the morning -- that I was abducted by aliens overnight in order for them to perform medical experiments on me (eg. dislocating or severing my limbs, stabbing me with sharp probes).
     
    SickOfSickness likes this.

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