A New Decade of ME Research: The 11th Invest in ME International ME Conference 2016
Mark Berry presents the first in a series of articles on the 11th Invest in ME International ME Conference in London ...
Discuss the article on the Forums.

Stomach biopsy, anything specific ME/CFS Doctors looks for, that my Gastro Dr. could biopsy for?

Discussion in 'General ME/CFS Discussion' started by Jennifer J, May 18, 2016.

  1. Jennifer J

    Jennifer J Senior Member

    Messages:
    856
    Likes:
    4,255
    Southern California
    Hi, Everyone. I need your help again, please. I'm going to be meeting with a Gastroenterologist. She will be doing an endoscopy on me without any kind of numbing or anesthesia. I only hope to do this once and hopefully not need to do it again for years, if ever.

    I am also hoping someday (this fall or next year) to maybe see KDM or one of the ME/CFS Doctors in the Bay Area. The only doctor of our medical condition I've been able to see so far is Dr. Chia. (He did blood work that shows I have enteroviruses.)

    Here's my questions: Is there anything in particular they (the ME/CFS doctors) would look for regarding me having ME/CFS that I could ask her to biopsy/test for? And should I/could I have anything sent to their labs?

    Thank you for any ideas, and knowledge, it helps a lot. :hug:
     
    Last edited: May 18, 2016
    Catjbro likes this.
  2. Catjbro

    Catjbro

    Messages:
    62
    Likes:
    70
    Canada
    That does not sound pleasant. Wishing you all the best with the procedure.
     
    Jennifer J likes this.
  3. shannah

    shannah Senior Member

    Messages:
    1,371
    Likes:
    1,644
    Seems to me they can confirm enteroviruses through a stomach biopsy.
     
    Jennifer J likes this.
  4. Sushi

    Sushi Moderation Resource Albuquerque

    Messages:
    14,617
    Likes:
    22,063
    Albuquerque
    Some patients have had PCR tests for viruses from stomach tissue. Apparently it can be easier to find there than in the blood.
     
    Valentijn and Jennifer J like this.
  5. msf

    msf Senior Member

    Messages:
    3,204
    Likes:
    4,499
    Jennifer J and Valentijn like this.
  6. Jennifer J

    Jennifer J Senior Member

    Messages:
    856
    Likes:
    4,255
    Southern California
    @Sushi, @msf, and @shannah, thank you! :)
     
    Sushi likes this.
  7. valentinelynx

    valentinelynx Senior Member

    Messages:
    644
    Likes:
    1,404
    Tucson
    After reading (some of) Afrin's new MCAS book: Never Bet Against Occam, I would love to have my GI biopsies tested for excessive mast cells. Apparently, this test is rarely done unless very specifically requested.
     
    Jennifer J and Sushi like this.

See more popular forum discussions.

Share This Page