The 12th Invest in ME Research Conference June, 2017, Part 2
MEMum presents the second article in a series of three about the recent 12th Invest In ME International Conference (IIMEC12) in London.
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Steroid Nasal Sprays

Discussion in 'General Treatment' started by TheMoonIsBlue, Sep 22, 2010.

  1. TheMoonIsBlue

    TheMoonIsBlue Senior Member

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    Does anyone know if the small amount of steroids in the prescription steroid nasal sprays would have any real negative effect on us with M.E./CFS? I used Nasonex, and Nasacort AQ for years but haven't for about 3. I was using NasalCrom Spray which is OTC now and I think somehow related to Singular chemically but it seems to be making me have to urinate more.

    My sinuses are Ok during the day but always swell at night, whichever side I am laying on gets clogged and I have to roll over then the other side gets clogged. I've tried allergy pills, antioxidants, cleaning my sinuses 10x a day.....this has been going on for ten years.

    Anyone tried FLONASE?
     
  2. Sushi

    Sushi Senior Member Albuquerque

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    Hi MoonIsBlue,

    I have to take steroid nasal sprays. They say that not much is systemically absorbed. I do take generic Flonase and it helps a lot.

    Sushi
     
  3. Lotus97

    Lotus97 Senior Member

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    I was taking Flonase and it did help my nasal congestion, but I recently read that corticosteroids (aka steroids) such as Flonase could reactivate viruses/viral coinfections which is a concern for me since I have Lyme disease.
    http://www.mdjunction.com/forums/ly...ch/324686-viruses-and-lyme-diseasebig-problem

    When I've tried to go off Flonase it seems to cause shortness of breath and rebound nasal congestion. Even if you don't have Lyme or viruses, there is this precaution I found:

    http://www.drugs.com/pro/flonase.html

     
  4. SickOfSickness

    SickOfSickness Senior Member

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    Nasonex helps with my allergies and it doesn't cause side effects. I took about 1/4 to 1/2 of what normal people take. I had generic Flonase once, which I couldn't stand because of the scent. It probably had chemicals I was allergic to.
     
  5. Nielk

    Nielk

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    I too am on constant generic Flonase spray. As soon as I go off for a few days, my sinuses start acting up. i too hope that this long term use has no negative effect.
     
  6. K2 for Hope

    K2 for Hope ALways Hoping

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    I was using generic Flonase for a clogged eustachian tube and allergies. It seemed to help. Thanks for posting this as I was a bit concerned about using it, but I didn't seem to have any side effects.

    I was also put on an oral steroid "methylprednisolone tablets (4 mg dose pak) which caused immediate pneumonia (within 48 hrs). I finished the dose pak, but then had to be on Levaquin for the pneumonia.
     

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