Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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stenotrophomonas maltophilia infection

Discussion in 'General ME/CFS Discussion' started by el_squared, Jul 30, 2015.

  1. el_squared

    el_squared

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    Hi there,
    I'm new to the forum. I have Celiac Disease and Fibro and likely CFS. I get chronic sinus infections but often I'm not sure of what type. This time, the culture came back positive for this bacterium: stenotrophomonas maltophilia.

    I understand it's very antibiotic resistant and usually shows up in immune-compromised people.

    My question is: Has anyone else been diagnosed with this such infection? Is this common in CFS?

    thanks for your input!
    Laura
     
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  2. AaroninOregon

    AaroninOregon noob

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    Welcome to PR @el_squared

    I have never heard of this specific bacteria, but I bet a few of PR's members have.
     
  3. minkeygirl

    minkeygirl But I Look So Good.

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  4. heapsreal

    heapsreal iherb 10% discount code OPA989,

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    Got nothing.
    were abx prescribed?
     
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  5. el_squared

    el_squared

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    Yes, Levoquin, which is one of the few considered effective to kill it. I am aware that this antibiotic is rough, and it's not good to do any of them. Luckily, I have a liquid form of it that I'm inhaling, so hopefully it's more topical and doesn't go throughout my system.
     
  6. heapsreal

    heapsreal iherb 10% discount code OPA989,

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    Just looked it up and seems bactrim can be used to treat this infection. From what i read its commonly found in catheters and drains etc where synthetic material is used etc.
     
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  7. el_squared

    el_squared

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    Yeah and it's in my nose! I do wonder if I got it through the neti pot. I try to always use distilled water, but sometimes I fail. I'm going to be more careful. Also, there is a very interesting university study linking people infected with this bacteria to living in water damaged homes. My apartment has had water damage over the years in various places, but any mold testing done has been negative and no mold is visible. Still, I worry that's playing a role.

    http://healthnews.uc.edu/news/?/20422/
     
  8. AaroninOregon

    AaroninOregon noob

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    Fluoroquinolones :eek: :eek: :eek:

    Hopefully, you are not afflicted by it's awful side effects. :thumbsup:
     
  9. el_squared

    el_squared

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    I know. I worry.
     
  10. minkeygirl

    minkeygirl But I Look So Good.

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    @heapsreal suggested bactrim so that might be an easier place to start. Do a month or more. It took me a month on doxycycline to get rid or my sinus infection. I don't know what the bacteria was.
     
  11. Valentijn

    Valentijn The Diabolic Logic

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    There's been a few papers published which indicate that N-acetylcysteine (NAC) helps prevent against collagen damage caused by flouroquinolones. I'm on a flouroquinolone for 10 days each of last month and the next two months, and haven't had any side effects thus far while on the NAC as well.
     
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