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Stem Cells

Discussion in 'General Treatment' started by deb obrien, Aug 13, 2009.

  1. Navid

    Navid Senior Member

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    did dr k say why...she says NO

    tx, lisa
  2. calzy

    calzy Senior Member

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    :confused:Not enough research, long term effects etc. Cheney has discussed at lenght with her his treatment plans, but I guess everyone has their medical opinons. And she doesnt like the idea of it being outside the US.:Retro mad: I guess UM is doing a lot of stem cell research. The clinics are American companies as I understand. Molly, who referred you?
  3. Hysterical Woman

    Hysterical Woman Senior Member

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    Hi Guys,

    I don't know this for sure, but isn't the stem cells kinda the last resort with his patients? Don't most if not all try his other protocols first? Maybe not? Anybody know?

    Maxine
  4. calzy

    calzy Senior Member

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    By the way, Id do it in a heartbeat, so what if I get a brain tumor in 10 years, Id feel good getting it.:Retro tongue::D
  5. calzy

    calzy Senior Member

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    Nope, not last resort, up to the patient and actually this is part of his protocal now.
  6. Hysterical Woman

    Hysterical Woman Senior Member

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    Hi Calzy,

    Thanks for the info. I would consider it if I knew more about it and could beg, borrow, or steal....oh OK, beg and borrow the money to do it. I am not highly concerned about the clinic being outside of the US. I can't imagine that Cheney would be using it if it was set up in someone's garage. ;) I have managed to lose 19+ years of my life in this country with almost no help at all from our medical system.

    Take care,

    Maxine
  7. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    Agree, Calzy,

    I know of Cheney patients at different functioning levels, different ages, all sorts of differences who have gone for stem cell infusions. He does want them to do a lot of protocols beforehand in preparation to get the best results. So far, everyone I have heard of (through my friend) has had good results, but...no one knows how it will go down the road--just that they are generally doing dramatically better so far. I jump for it too if the $$ were lying around. I don't expect Medicare to pick this one up anytime soon.

    Sushi
  8. Hysterical Woman

    Hysterical Woman Senior Member

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    Molly

    Hi Molly,

    One more question - did you have any problems at the clinic with communication? Did most everyone there speak English....or American?:Retro smile:

    Also, I am assuming they treat a lot of illnesses there besides CFS and MS. Cancer? Others? Just curious.

    Thanks,

    Maxine
  9. calzy

    calzy Senior Member

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    Im not concerned about the clinic being outside US, its an American co that got fed up with the governments putting up road blocks.
  10. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    Yes, Maxine,

    Cheney went down before he started taking patients and checked everything out. Then he accompanied at least the first few "batches" of patients and kept an eye on everyone and on the procedures. He was happy with the standard of care. The only complaint I have heard from my friend is that they went to a separate practice for the "fat harvesting" (this was Panama, not Costa Rica), and my friend didn't feel able to ask questions etc. re the procedure--which was painful.

    Sushi
  11. Hysterical Woman

    Hysterical Woman Senior Member

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    Molly

    But I WANT there to be a NORMAL.:Retro smile:

    Yes, I believe my friend who sees Cheney is over 40 and that might be one of the reasons why she has not gone for the stem cell approach. I am definitely over 40, too, unfortunately, and am concerned that my cells might not be as viable.

    Unfortunately, no guarantees.

    I understand about this concern. I don't (and never have) smoked. I couldn't drink when first ill then I could, now I can't again without big consequences. I believe I will have more questions but my main one is - do you know where I can buy a winning lottery ticket?

  12. bluebonnet

    bluebonnet

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    They took 750 CCs of belly fat (just over 3 cups) from each of the 6 patients who went down in September.

    However, Dr. Cheney is no longer recommending the mini-lipo procedure (at least for now) because the people in his September group showed slightly less improvement than the previous two groups who did NOT have their belly fat harvested for stem cells.
  13. Kathi

    Kathi Senior Member

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    It is my understanding that they will not be using the belly fat stem cells any longer!! So please update your information.

    Kathi
  14. Peggy

    Peggy

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    I am confused by this over 40/under 40 thing with Dr. Cheney. On his video about stem cells, he states that stem cells are necessary for those OVER 40, because the other treatments will not be enough as there are too many genetic mutations by 40, but it seems like people are saying here that he feels the prognosis for stem cells over 40 is not that good? Can anyone clarify his opinion about this? (also 40 seems somewhat arbitrary, since we all age differently, and also I wonder why he wouldn't try using growth hormone injections with the stem cells if that's the issue?).
  15. calzy

    calzy Senior Member

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    I think thats great news Kathi, less $ and less down time. btw Go Steelers! well, next year maybe.:tear:
  16. dipic

    dipic Senior Member

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    Dr.Cheney's latest newsletter just came out and it talks about his work with stem cells. I don't have a subscription to his newsletter (you have to pay for it) so I only have a preview of what it contains.

    The part I bolded stands out to me the most. For one, I was under the impression that Cheney had treated quite a bit more than just 13 people with stem cells. Secondly, what does he mean by "the second cure so far"? How on in the heck can he determine if someone has been "cured" or not? Seems a bit outrageous.

    Wish I had access to the full thing, but anyway, just thought I would share what I have.

    (Cheney's site: http://www.cheneyresearch.com/)
  17. oerganix

    oerganix Senior Member

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  18. oerganix

    oerganix Senior Member

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    Molly29, thanks so much for sharing this with us. Can you point me to a website or tell me the name of the Costa Rican clinic? I live "next door" to Costa Rica and would like to try to parse out how much housing and transportation contribute to the total cost you stated. Or, if you know how it breaks down, what did the actual medical treatment cost?

    I can go and return to/from Costa Rica for less than $50 RT and I know how to stay there for around $17-20 for a single, a little more for a double. And I know how to eat very cheaply.

    You did say one doesn't need a doctor's referral, didn't you? Although my Nicaraguan doc would do it, I'm sure.

    Again, thank you!
  19. Hysterical Woman

    Hysterical Woman Senior Member

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  20. cfs since 1998

    cfs since 1998 *****

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    It certainly seems interesting, especially since I'm currently under 30 but not for long!

    It would be more appropriate to call it "full remission" rather than "cure", especially if the cause is a retrovirus you can never get rid of.

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