New Atmosphere, New Vision: Gibson and Whittemore Kick Off Invest in ME Conference 2016
Mark Berry reports on Dr. Gibson's introduction and Dr. Whittemore's keynote speech, at the 11th Invest in ME International ME Conference in London.
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Stem cells for cfs/me/pots

Discussion in 'Alternative Therapies' started by sillysocks84, Apr 1, 2015.

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Do you think stem cells really would help in cfs/me?

  1. Yes

    3 vote(s)
    33.3%
  2. No

    1 vote(s)
    11.1%
  3. Maybe

    5 vote(s)
    55.6%
  1. sillysocks84

    sillysocks84 Senior Member

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    I know every once in awhile you guys must get posts about stem cells and whether or not they help in conditions such as chronic fatigue syndrome or me or pots. I am interested to know if anyone recently has decided to get stem cell treatments and if so what has your experience been? I am looking into it. I have a one year old and this morning I thought my ataxia was coming back. My heartrate is always high and dizziness always comes and goes, difficulty with full breaths and of course overly tired are my lovely symptoms.

    Please, I would also just love for you to share what you know even if you haven't had stem cell therapy.
     
  2. halcyon

    halcyon Senior Member

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    My understanding is that very few people have tried this and that it doesn't really work well. As it seems to require a decent amount of funds and the ability to travel to other countries the barrier to trying it is pretty high for the majority of patients.
     
  3. Sushi

    Sushi Senior Member Albuquerque

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    I don't remember anyone posting recently about getting stem cell therapy but there was a lot of discussion a few years ago and a number of patients did go to Panama to receive stem cells. From what I remember, initial benefits didn't last but you can read a very long thread about it here.

    Sushi
     
    Valentijn likes this.
  4. sillysocks84

    sillysocks84 Senior Member

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    May be it would be good as effective treatments if they weren't so expensive! Seems like they helped a lot for awhile. Maybe those results could be maintained by multiple treatments...... someday.....
     
  5. Sushi

    Sushi Senior Member Albuquerque

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    Many of those who went to Panama had multiple treatments over a period of about 18 months (if I remember the timing correctly.)
     
  6. sillysocks84

    sillysocks84 Senior Member

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    Could it be a life long maintenance treatment situation? I, like everyone else want desperately to figure the monster out. I want my full life back. The research on this is infuriating slopow... although Scientific American just had an interesting article about bioelectronic medicine that could be used to stimulate different parts of the vagus nerve to treat many disease. I'll do better research and post a new thread soon.
     

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