1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
Can You Come for a Visit? My ME/CFS Says No
My daughter and son-in-law just had a baby last week. We are thrilled. But we won't be able to see the baby or hold her any time soon. We won't be able to take over little gifts or help out with housework or babysitting.
Discuss the article on the Forums.

Statins for CFS?

Discussion in 'General ME/CFS News' started by Chris, May 24, 2011.

  1. Valentijn

    Valentijn Activity Level: 3

    Messages:
    6,292
    Likes:
    9,005
    Amersfoort, Netherlands
    I'm very (very) glad this thread exists. I have slightly elevated total and LDL cholesterol ("borderline high"), and a doctor wants me to take simvastatin for it ... even though it's already gotten lower in the course of a month or two without any intervention :p Not even discussion of lowering it a bit with diet, etc, just throwing a horribly inappropriate pill at it!

    Anyhow, it's because I'd looked at this thread a month or two ago that I knew I should look into statins more before starting one, so thank you to everyone that shared your experience and the research. Even the common side effects read like a list of basic ME symptoms.
  2. Marlène

    Marlène Senior Member

    Messages:
    441
    Likes:
    210
    Edegem, Belgium
    Please be aware the statins lower DPP-IV enzym which is essential for your immunity.
    This enzyme is responsible for the digestion of carbohydrates. Without this enzym, your opiate receptors are destroyed by exorphines, a toxic waste product of gluten. These opiate receptors are foudn in your brains, HPA-axis, gut and reproductive organs. The regulate your immunity, hormones, mood, etc.

    It is linked to neuropeptide Y and several studies have linked this to ME already.

    Don't be fooled by statins. It is rubbish. It is very bad especially if you have a mitochondrial disease or predisposition to it. Muscle wasting, dementia, hair loss, impotence, ... are often reported.
    About 80 cardiologists and doctors have organised themselves to proof the dangers of this medicine but their research is refused in medical publications.
  3. Marlène

    Marlène Senior Member

    Messages:
    441
    Likes:
    210
    Edegem, Belgium
    I took it for years and every time again I was sick of it. I tried all names, all brands. In the end I ended up in a wheelchair, unable to talk. Up till today I don't know if it caused my M.E. but it sure contributed to it.
  4. Lotus97

    Lotus97 Senior Member

    Messages:
    2,015
    Likes:
    419
    United States
    The supplements Red Yeast Rice and Guggul are supposed to lower cholesterol, but they also lower Coenzyme Q10 just like Statins do. Is it possible that they work like statins in reducing good fats and increasing risk of death or is it just coincedental that they both lower Coenzyme Q10? I doubt there have been any studies on these supplements as far as death risk.

    Something else to consider about Statins:
    taniaaust1, Tammy and Valentijn like this.
  5. jimells

    jimells Senior Member

    Messages:
    425
    Likes:
    582
    northern Maine
    (this is for patients without prior heart disease)
    http://www.thennt.com/nnt/statins-for-heart-disease-prevention-without-prior-heart-disease/

    A few years ago a doctor wanted to order cholesterol tests. I told her, "go ahead, but I'm not taking statins". She cancelled the tests, so obviously statins were the only treatment she would've suggested. I suppose drug companies and their pushers, ahem, doctors, will not stop promoting these pills until the patients patents expire and they can't find a way to fabricate a new patent using the same dangerous compounds.

    http://www.thincs.org/
  6. Valentijn

    Valentijn Activity Level: 3

    Messages:
    6,292
    Likes:
    9,005
    Amersfoort, Netherlands
    Vitamin B3 (Niacin) is also used to lower bad cholesterol, by raising good cholesterol. Seems like a much more sensible approach than indiscriminately removing a substance very important for biological functioning.
  7. jimells

    jimells Senior Member

    Messages:
    425
    Likes:
    582
    northern Maine
    Perhaps even more important than the question of statins is the fact there is no good research to support the cholesterol theory of heart disease. Is there really such a thing as 'bad' cholesterol? My understanding is that some folks have a genetic disorder that causes extreme high cholesterol, but for the rest of us, elevated cholesterol is a reaction to some kind of problem, like a fever is a reaction to infection, not the cause of it.
  8. Lotus97

    Lotus97 Senior Member

    Messages:
    2,015
    Likes:
    419
    United States
    When don't take Coenzyme Q10 I experience pain in my chest.
  9. peggy-sue

    peggy-sue

    Messages:
    2,494
    Likes:
    2,872
    Scotland
    Cholesterol can be reduced safely by taking plant stannols (Phytosterols) - about 2 g a day is enough.
    That's the stuff they put in cholesterol reducing spreads and yoghurt drinks, but the stuff itself can be bought from reputable vitamin and supplement producers fairly cheaply.
    It can also be reduced by taking a daily dose of a couple of grams of psyllium husk (soluble fibre - it's the stuff found in Fibogel) but again, it can be bought much more cheaply as the pure stuff from a health food store or supplement company.
    I've been told my cholesterol is high.
    I will not take statins under any circumstances, so I've been taking these food supplements - and I've managed to loose about 30 lbs in weight to get my BMI where it should be and to get my waist/hip ratio where it should be.
    I haven't been back to get the cholesterol measured again though - I haven't been curious enough to put myself through another visit to the gp and I won't be doing anything differently anyway.
  10. Little Bluestem

    Little Bluestem Senescent on the Illinois prairie, USA

    Messages:
    2,538
    Likes:
    1,889
    Midwest, USA
    The so-called 'bad' (low density) cholesterol is part of the covering of nerves.
  11. peggy-sue

    peggy-sue

    Messages:
    2,494
    Likes:
    2,872
    Scotland
    The covering sheath of the nerves is myelin, not LDL cholesterol, LB!

    However, the whole "story" about cholesterol and heart problems is decidedly "iffy";
    there is now serious doubt about whether cholesterol is actually the cause of heart attacks, but is simply either a correlate or something that arises as a symptom of them.
  12. Lotus97

    Lotus97 Senior Member

    Messages:
    2,015
    Likes:
    419
    United States
    Something I've been wondering, but haven't really had time to look into is the relationship between cholesterol and inflammation.

See more popular forum discussions.

Share This Page