Hunting down the cause of ME/CFS & other challenging disorders - Lipkin in London
In a talk to patients in London on 3rd September, Dr. W. Ian Lipkin described the extraordinary lengths he and his team are prepared to go to in order to track down the source of an illness, with examples ranging from autism to the strange case of Kawasaki disease.
Discuss the article on the Forums.

Starting IVIG

Discussion in 'Antivirals, Antibiotics and Immune Modulators' started by dsdmom, Oct 6, 2010.

  1. dsdmom

    dsdmom Senior Member

    Messages:
    390
    Likes:
    45
    It looks like I will be starting ivig - possibly next week. The first time I have it done I need to go 5 days in a row. I am a bit nervous and am wondering what to expect. For those of you who have gotten ivig, were you pretty miserable and if so, for how long? Should I expect to be out of commission for a week or 2? I'm most worried about a headache I guess.

    It was approved based on neuropathy, so it is not for CFS per se.
     
  2. ukxmrv

    ukxmrv Senior Member

    Messages:
    3,676
    Likes:
    2,403
    London
    I was fine with IVIG, took Benadryl which my doctor recommended. Sadly, no effect on my ME symptoms.

    Hope that it goes well for you!

    XMRV+
     
  3. dsdmom

    dsdmom Senior Member

    Messages:
    390
    Likes:
    45
    Thanks for your input!
    What were you taking it for? Do you remember your dose? And how often?
     
  4. heapsreal

    heapsreal iherb 10% discount code OPA989,

    Messages:
    7,674
    Likes:
    5,415
    australia (brisbane)
    dsdmom, how did the IVIG go??

    cheers!!!
     

See more popular forum discussions.

Share This Page