I have been on fredd's protocol for 10 days and am having some start up difficulties. I am taking:
By way of background I have had CFS for 10 years- I got it suddenly after a gastro upset in indonesia. My symtpoms have primarily been insomnia,daily headaches, chronic migraine ( 5 week) body aches and fatigue plus in the last few yeas some numb and tingling extremities. One year ago, after I had been on 6 months of abx, I developed an oll over body itch- it plagues me still and I cannot get rid of it- I did 3 months on Nystatin and 6 weeks on iflucan and still I itch- in fact it is getting worse.
I went on the marshal protocol for 2 years in 2006 2007 and my symptoms went away significantly but then returned againin 2008. I have tried stronger antibiotics since and they make no difference to my condition. maybe the marshall protool with the benicar did something to help my immune system- dont know but it is no longer of any help.
A year ago I did the yasko genetics. I did about 3 months on that programme with hydroxy B12 ( 4- 5 mg a day) and a small amount of methyl folate ( 400mg). It did not improve or noticably worsen my condition so i stopped ( I got pancreatitis and that took over my life for a bit). I have a defect in relation to the gene for folate and will therefore only take supplements with methylfolate and so have staye away from B right. I do not supplement potassium as it burns my stomach even when i take it with meals.
I have now had to retire from work at 52 yo as I am too unwell to function. I continue to have all the symtpoms described above plus burning skin and itching all over- this is driving me mad- it gets worse if i take liver support supplements or try and detox eg treat candida. So at the moment I am just doing the Fredd protocol and trying to ride out the difficulties with that without adding extra things like candida treatments.y dr has insisted though, that i start with 1/2 tablet of a "hepatic detox" as he says that my testing does show i have problems with liver detoxification and he thinks if I can build up on these tabs they may help the itch?
I have noticed an increase in my body itch, headaches since starting this protocol. I also have some nausea and insomnia is a bit worse ( 3am before I can get to sleep- not helped by the itching which does not respond to antihystamines). The first few days i had sinus drip which was new and has now stopped. i also had a few teeth ( the ones that were crowned) that were really painful and ached- this is no subsiding in the main. The itch and headaches and insomnia are my worst problems- I have noticed tht I am going a good few days between migraines- early days but perhaps something is shifting? If only I can stand the itching!!!! I know I am high histamine andan undermethylator and so my dr therefore has me on zinc, same-e, B6, P5P and cal/mag- been on this 8 weeks ut cannot tell any improvement.
As to supplements vit D- they make me feel really unwell even at low doses- at one stage I had built up to a dose ( over 6 months) of 4,000 iu a day ( under the care of a neurologist) . My itching started aroound this dosage and when i first cut ut the vit d the itching stopped but it soon ( within a week or 2 ) started back up again. Perhaps this suggest that my liver may be involed...not sure. I have alos had to give up my t3 meedication for thyroid as any from of t3 makes me itch- again i have hear that this may be a "toxic liver" issue....not sure if it is my liver or candida- or both ( most likely). Interesting to, that when I take any metal detox substance, I alos itch ike crazy eg DMSA, zeolite, modified citrus pectin, humifulvate. This is getting too long....
So my questions are:
Should I stay on the dose of methyl B1 at 250mg twice a day for a while longer or should I be trying to increase this?
Is it likely that the itching that I have had for1 2 months - which now includes burning skin sensations as well, is likely to get better on this protocol, as i proceed?
My plan is to get to titration of 5 mg of methyl B12 before I add adenosyl- does this sound ok?
Any other thoughts about my titration and the ITCHY skin problem?
Any advice on any aspect of my programme would be helpful. Thanks so much for any input- I have read all the posts and am really hoping that this protocol might help- I seem to be in a downward spiral and my family are looking on desperate or any sign of recovery ( me too- I feel the pressure) :Retro smile: Thanks on advance, Suzanne
- Jarrow methyl B12 sub ling 1mg- 1/4 tab in am and 1/4 in pm
- solgar metafolin 600mg ( slowly titrating up)
- omega 3 fish oil- 3000mg
- B6 100mg
- P5P 50mg
- B2 250 mg
- zinc 75 mg
- cal/mag 1000/500
- vit E 400 iu
- vit C 3000mg
- SAM-e 400mg
- selenium 200mcg
- probiotics
By way of background I have had CFS for 10 years- I got it suddenly after a gastro upset in indonesia. My symtpoms have primarily been insomnia,daily headaches, chronic migraine ( 5 week) body aches and fatigue plus in the last few yeas some numb and tingling extremities. One year ago, after I had been on 6 months of abx, I developed an oll over body itch- it plagues me still and I cannot get rid of it- I did 3 months on Nystatin and 6 weeks on iflucan and still I itch- in fact it is getting worse.
I went on the marshal protocol for 2 years in 2006 2007 and my symptoms went away significantly but then returned againin 2008. I have tried stronger antibiotics since and they make no difference to my condition. maybe the marshall protool with the benicar did something to help my immune system- dont know but it is no longer of any help.
A year ago I did the yasko genetics. I did about 3 months on that programme with hydroxy B12 ( 4- 5 mg a day) and a small amount of methyl folate ( 400mg). It did not improve or noticably worsen my condition so i stopped ( I got pancreatitis and that took over my life for a bit). I have a defect in relation to the gene for folate and will therefore only take supplements with methylfolate and so have staye away from B right. I do not supplement potassium as it burns my stomach even when i take it with meals.
I have now had to retire from work at 52 yo as I am too unwell to function. I continue to have all the symtpoms described above plus burning skin and itching all over- this is driving me mad- it gets worse if i take liver support supplements or try and detox eg treat candida. So at the moment I am just doing the Fredd protocol and trying to ride out the difficulties with that without adding extra things like candida treatments.y dr has insisted though, that i start with 1/2 tablet of a "hepatic detox" as he says that my testing does show i have problems with liver detoxification and he thinks if I can build up on these tabs they may help the itch?
I have noticed an increase in my body itch, headaches since starting this protocol. I also have some nausea and insomnia is a bit worse ( 3am before I can get to sleep- not helped by the itching which does not respond to antihystamines). The first few days i had sinus drip which was new and has now stopped. i also had a few teeth ( the ones that were crowned) that were really painful and ached- this is no subsiding in the main. The itch and headaches and insomnia are my worst problems- I have noticed tht I am going a good few days between migraines- early days but perhaps something is shifting? If only I can stand the itching!!!! I know I am high histamine andan undermethylator and so my dr therefore has me on zinc, same-e, B6, P5P and cal/mag- been on this 8 weeks ut cannot tell any improvement.
As to supplements vit D- they make me feel really unwell even at low doses- at one stage I had built up to a dose ( over 6 months) of 4,000 iu a day ( under the care of a neurologist) . My itching started aroound this dosage and when i first cut ut the vit d the itching stopped but it soon ( within a week or 2 ) started back up again. Perhaps this suggest that my liver may be involed...not sure. I have alos had to give up my t3 meedication for thyroid as any from of t3 makes me itch- again i have hear that this may be a "toxic liver" issue....not sure if it is my liver or candida- or both ( most likely). Interesting to, that when I take any metal detox substance, I alos itch ike crazy eg DMSA, zeolite, modified citrus pectin, humifulvate. This is getting too long....
So my questions are:
Should I stay on the dose of methyl B1 at 250mg twice a day for a while longer or should I be trying to increase this?
Is it likely that the itching that I have had for1 2 months - which now includes burning skin sensations as well, is likely to get better on this protocol, as i proceed?
My plan is to get to titration of 5 mg of methyl B12 before I add adenosyl- does this sound ok?
Any other thoughts about my titration and the ITCHY skin problem?
Any advice on any aspect of my programme would be helpful. Thanks so much for any input- I have read all the posts and am really hoping that this protocol might help- I seem to be in a downward spiral and my family are looking on desperate or any sign of recovery ( me too- I feel the pressure) :Retro smile: Thanks on advance, Suzanne