Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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Stanford study evaluating hormones in women with ME/CFS and healthy controls (18-45)

Discussion in 'Active Clinical Studies' started by Dolphin, Jun 20, 2017.

  1. Dolphin

    Dolphin Senior Member

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    From: https://cfsme-registry.info

     
    bspg and Never Give Up like this.
  2. *GG*

    *GG* Moderator

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    Concord, NH
    Where are you getting this information from, by calling them? Do you need to Register for the site to see this info?

    Want to possibly pass it along, but if this info is not readily available online. I probably will not, people don't often have the energy for that, and this study requires 2 separate visits? $200 does not cover the cost of travel unless you are nearby.

    GG
     
  3. Dolphin

    Dolphin Senior Member

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    Yes you have to register to see the information. But he basically said he is doing the work pro bono so I imagine shouldn't be unhappy with it being posted elsewhere.

    I have no more specific information on this request.
     
  4. Never Give Up

    Never Give Up Collecting improvements, until there's a cure.

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    You could ask if the will pay your travel expenses.
     

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