May 12, 2017 Is International ME/CFS and FM Awareness Day
International ME/CFS and FM Awareness Day is May 12th, 2017. Jody Smith shares some information about upcoming events and ways you can be heard ...
Discuss the article on the Forums.

Stanford/OMF Community Symposium and ME/CFS research in the news! (Palo Alto Online)

Discussion in 'General ME/CFS News' started by Ben Howell, Aug 5, 2017.

  1. Ben Howell

    Ben Howell OMF Correspondent

    Messages:
    736
    Likes:
    8,213
    U.K.
    Last edited: Aug 5, 2017
  2. aimossy

    aimossy Senior Member

    Messages:
    1,089
    Likes:
    3,760
    I am just gobsmacked about the loss of funding and the damn reason for it!
     
    Mary, Solstice, Valentijn and 10 others like this.
  3. BurnA

    BurnA Senior Member

    Messages:
    2,086
    Likes:
    9,846
    Maybe cut some of the text from the first post, news articles like these only get coverage if there is interest. They will more than likely count no. of visitors to the site. The more visitors the higher the chance of future coverage.
     
    Solstice, Valentijn, Aroa and 5 others like this.
  4. Ben Howell

    Ben Howell OMF Correspondent

    Messages:
    736
    Likes:
    8,213
    U.K.
    Fair point, I've amended it.


    B
     
    Valentijn, Binkie4, AndyPR and 3 others like this.
  5. Ben Howell

    Ben Howell OMF Correspondent

    Messages:
    736
    Likes:
    8,213
    U.K.
    That photo of Ron is just great. Reminds me: 'You might think you're cool, but you'll never be as cool as Prof. Ron Davis holding a nano-fabricated microchip with 2500 electrodes complete with cheeky glint in eye cool...' :cool:


    B
     
  6. BurnA

    BurnA Senior Member

    Messages:
    2,086
    Likes:
    9,846

    It's like he knows exactly how important that chip is and he is saying just wait and see what this is going to tell me.
     
    Solstice, Mary, lemonworld and 11 others like this.
  7. wastwater

    wastwater Senior Member

    Messages:
    917
    Likes:
    621
    uk
    Can we test the chips
     
  8. Webdog

    Webdog Nothing left to say

    Seems like just yesterday Francis Collins was telling us we were a research priority. :(
     
    Mary, Solstice, Valentijn and 5 others like this.
  9. alex3619

    alex3619 Senior Member

    Messages:
    12,405
    Likes:
    34,763
    Logan, Queensland, Australia
    The stated reason appears to be general and not ME or CFS related, though we do not know all the details. The NIH is probably expecting a funding cut and looking to slash costs. They do not seem to realize that cheaper technology means research progresses faster. Slashing this particular funding might put a brake on research in a wide range of diseases, not just ME or CFS.

    Of course this does not rule out that it is ME related in some way, the politics is murky.
     
    *GG*, Solstice and Valentijn like this.
  10. Anne

    Anne Senior Member

    Messages:
    295
    Likes:
    723
    Me too.
     
    aimossy likes this.
  11. Alvin2

    Alvin2 If humans were rational...

    Messages:
    1,164
    Likes:
    3,256
    I didn't know they already tried Rituximab on Whitney and it failed :cry:

    This is exactly why i said in the other thread a while back that their admitting ME/CFS is a terrible physical disease meant nothing till the money was in Dr Davis' possession. Counting chickens before they hatch is a fools errand.

    I wonder if there is any word on the funding they applied for earlier this year, or does that make months or years to get an answer?
     
    lafarfelue and Webdog like this.
  12. Nickster

    Nickster Senior Member

    Messages:
    146
    Likes:
    819
    Los Angeles, CA
    This is such hit and disappointing that NIH pulled its funding. However, this symposium is getting the word out that Ron means business and maybe just maybe this will bring awareness and it may lead to obtaining private funding and/or money from NIH.
    We need to continue to bring this information out into the publics eye and make people aware of what is going on.
    Anything is possible.
     
  13. Snowdrop

    Snowdrop Rebel without a biscuit

    Messages:
    2,895
    Likes:
    10,074
    A quote from the article has the NIH stating "trying to reduce the cost of health care is not our priority" :bang-head:
     
    Anne, Janet Dafoe (Rose49) and Webdog like this.
  14. Daisymay

    Daisymay Senior Member

    Messages:
    726
    Likes:
    3,955
    Oh heavens, that is just so awful and after 27 years. Can someone please clarify, is this the whole of RD's lab closed or part? Unbelievable...
     
    Webdog likes this.
  15. BurnA

    BurnA Senior Member

    Messages:
    2,086
    Likes:
    9,846
    I don't think it said anything about any of it closing. Just the NIH have stopped their grant. The consequences of that are not made clear.
     
  16. Janet Dafoe (Rose49)

    Janet Dafoe (Rose49) Board Member

    Messages:
    575
    Likes:
    10,719
    It wasn't about slashing funding. The grant that was terminated was a Center Grant. Technically it is a P01 grant. It was funded by NHGRI (National human genome research institute). It's the only P01 grant they awarded to a Center, and the only one with only 1 PI. It was first awarded in 1990. Ron has always been the PI. It was not discontinued because of a shift towards more basic research. For the past decade The center has been developing new technologies that could reduce the cost of healthcare dramatically. . Ron was told by NIH that the grant was terminated because reducing the cost of healthcare is not a priority of NIH. It was terminated in spite of a very good score. The good score made it so it would've been funded. But NIH officials intervened and decided to terminate it in spite of its score.

    And no, OMF does not receive any NIH money.
     
  17. Jesse2233

    Jesse2233 Senior Member

    Messages:
    1,437
    Likes:
    3,453
  18. Alvin2

    Alvin2 If humans were rational...

    Messages:
    1,164
    Likes:
    3,256
    I hope it doesn't mean Ron's lab gets shut down?
     
    Daisymay likes this.
  19. Janet Dafoe (Rose49)

    Janet Dafoe (Rose49) Board Member

    Messages:
    575
    Likes:
    10,719
    Yes! Fingers and toes crossed!
     
    Kati, moosie, Anne and 10 others like this.
  20. Janet Dafoe (Rose49)

    Janet Dafoe (Rose49) Board Member

    Messages:
    575
    Likes:
    10,719
    No, his lab won't be shut down. It just will be more difficult. Underscores the urgent need for donations.
     
    Tally, Mary, Anne and 10 others like this.

See more popular forum discussions.

Share This Page