http://www.stanforddaily.com/2016/01/05/tackling-chronic-fatigue-syndrome/ This is a very sympathetic article with 2 cases of severe ME including Whitney and another young man cared for by his parents. Dr Davis talks about difficulty in getiing NIH funding. Here is an exerpt: In March 2015, Davis submitted two grant proposals to the National Institute of Health (NIH) for funding to study patients severely affected by ME/CFS. Neither application was able to move past the NIH’s pre-proposal stage. “They weren’t even sent out for review,” Davis said. “One of [the responses said we] should look at severe patients, but that’s what the grant was all about.” Another response criticized the lack of data points in Davis’ proposal. “They said we’re not making any neurological measurements like NMR scanning,” Davis said. “This is a proposal about severe patients that are bedridden. You can’t take them into the hospital and do a scan.” The difficulties Davis and other world-renowned scientists have faced in obtaining funding for research initiatives on ME/CS reflect the overall lack of NIH-supported funding for the disease Share widely.