The 12th Invest in ME Research Conference June, 2017, Part 2
MEMum presents the second article in a series of three about the recent 12th Invest In ME International Conference (IIMEC12) in London.
Discuss the article on the Forums.

St Cross Special Ethics Seminar with Michael Sharpe, June 1, 2017

Discussion in 'General ME/CFS News' started by Ysabelle-S, Jun 11, 2017.

  1. Ysabelle-S

    Ysabelle-S Highly Vexatious

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  2. AndyPR

    AndyPR Cookies for Tired Sam

    Obviously not a recommendation.

    http://www.stx.ox.ac.uk/current-members/events/2773

    Those false harassment beliefs don't seem to have gone away...
     
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  3. Barry53

    Barry53 Senior Member

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    No Mr. Sharpe, the misdirection inferred here is simply not true, even though the statement itself forms a partial truth. (It's why in a court of law the oath is to tell the truth, the whole truth, and nothing but the truth - partial truths can infer untruths).

    What the particular issue actually is, is claiming psychiatric/psychological treatments can lead to recovery from the primary condition underlying ME/CFS, or even significant improvement. This is what strongly people object to, including a great many of the world's leading scientists who have signed an open letter to that effect; it is very disingenuous to suggest these scientists actively engage in "coordinated harassment" and "protest" - promoting good science is their goal, as indeed is the goal of the vast majority of all ME/CFS patients and their carers.

    It is of course very possible that psychiatric/psychological treatments may help with coping strategies and secondary symptoms, the same as with many other debilitating physical conditions, such as cancer etc. This is not disputed, despite your inference above that it is.
     
    Last edited: Jun 11, 2017
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  4. Demepivo

    Demepivo Dolores Abernathy

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    Cheers @AndyPR

    Brought this up with the Oxford ME group (OMEGA) today...
     
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  5. Ysabelle-S

    Ysabelle-S Highly Vexatious

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    We didn't politicise ourselves, our illness was hijacked, and by people with connections to insurance and the likes of the DWP (though it had a different name before).

    ME is a contested field because people with no expertise in this area moved in and claimed it for themselves, taking an eraser and rubbing out earlier research and knowledge. They were medical squatters, and they are refusing to be evicted in the face of mounting medical science.

    People who know nothing about the field of ME will fail to understand the similarities between Sharpe and cronies to the world of climate science denial. The last thing they want their audiences to know is what the international research community makes of them. There's a fortress Britain mentality going on here, and all they can do is engage in projection of their own anti-science behaviour and co-ordinated pressure actions (the various talks and slide shows that have been going on recently) on to patients.

    ME is a serious neurological disorder affecting many systems in the body, and has been known to kill. These facts are contested in the same way epilepsy as a disorder might once have been contested by those who believed in demonic possession.

    Of course, it's the patients who have the problem, rather than the fields of psychiatry and psychology being founded on some seriously out of touch beliefs. Add to that dollops of ableism, misogyny and professional arrogance for the patient whose role is to indulge the psych's saviour complex and delusions. Next patient, kerching!

    The internet has always upset someone or other, often those in power. It opens the gates to citizen-led critiques of various groups - politicians, the medical profession, and others. When you're a member of a cult which has almost a parent-child view of the psych-patient relationship, it's hardly surprising you're getting upset. Especially when international critics from academia and science are joining in, threatening the lucrative little bandwagon. The recent newsletter that went out to physicians in the state of New York, effectively warning about the PACE trial and the nature of exercise intolerance in ME must have been a bitter blow. How dare those activist groups cause this much trouble.

    Still playing martyrs and victims while patients periodically have to read another memorial post for another ME sufferer who has passed away. Meanwhile patients are defamed, subject to gaslighting, and even medical abuse in far too many cases. The behaviour of these 'professionals' almost reminds me of the Victorian attitude to children - that they should be seen and not heard. ME patients should be seen by psychs, and not heard. Our life experience, our day to day experience of illness which conforms to growing knowledge of energy and exercise intolerance issues is to be dismissed. Doctor knows best. Doctor knows nothing.

    And now we finish with the lofty and laughable pretence that PACE can in any way be described as science, let alone anything connected to the future of science. "A pile of doggy poo" was how David Tuller once described it, and he should know having dissected the utter shambles piece by piece.
     
    Last edited: Jun 11, 2017
  6. Tom Kindlon

    Tom Kindlon Senior Member

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  7. Dolphin

    Dolphin Senior Member

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  8. Jonathan Edwards

    Jonathan Edwards Senior Member

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    There used to be a good word for this - humbug.

    So now I have clear confirmation that Dr Sharpe is as dim witted and dysfunctional as White, Wessely and Chalder.

    The extraordinary thing is the po-faced way it is presented. Anyone with any gump will see this man simply does not understand what is going on. It is curiously reminiscent of Mrs May.
     
  9. Ysabelle-S

    Ysabelle-S Highly Vexatious

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    You don't mince words, lol.
     
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  10. Ysabelle-S

    Ysabelle-S Highly Vexatious

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    David Tuller, thanking the donor above for their money and.....

     
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  11. Jonathan Edwards

    Jonathan Edwards Senior Member

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    I prefer to serve them whole with a light sprinkling of pimentón.
     
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  12. I'd rather serve 'em whole with favva beans and a nice cianti to Hannibal Lector, or a shark! :p
     
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  13. jimells

    jimells Senior Member

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    Dr Sharpe,
    What are the ethics of trying to disappear an illness???

    -letter from NIH official Dr Stephen Straus to CDC's Dr Keiji Fukuda
     
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  14. taniaaust1

    taniaaust1

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    Im SURE he knows what's going on.. He's part of the whole coverup .. (what insurance company pays him?)

    ............

    http://www.meactionuk.org.uk/Quotes_from_Mike_Sharpe.htm

    "
    On 17 May 1995, Sharpe was one of the main speakers at a symposium entitled “Occupational Health Issues for Employers” held at the London Business School; the advice presented included informing attendees that ME/ CFS has also been called (quote) “the malingerer’s excuse”; Wessely spoke on the “myths” of ME; Sharpe spoke about anti-depressants and CBT and Trudie Chalder ( a Registered Mental Nurse who works with Wessely) spoke about “Selling the treatment to the patient”. Another speaker at this symposium was the Vice President of UNUM, the UK’s largest disability insurer, whose Chronic Fatigue Syndrome Management Plan dated 4 April 1995 states about ME/CFS

    (i) Diagnosis: Neurosis with a new banner

    (ii) UNUM stands to lose millions if we do not move quickly to address this increasing problem

    (iii) Attending Physicians – work with UNUM in an effort to return the patient / claimant back to maximum functionality with or without symptoms.

    [ In February 2000 a Conference on Insurance Medicine was held at The Royal College of Physicians in London, attended by Simon Wessely and Michael Sharpe, at which it is believed Sharpe advised that he was recommending to insurance companies that claimants with ME/CFS should be subject to covert video surveillance. "

    Does UNUM secretly pay him on the side to keep ME/CFS buried??? He's been a guest speaker at conferences where heads of insurance company also are.. he's probably good friends with these insurance guy heads at the very least.
     
    Last edited: Jun 12, 2017
  15. taniaaust1

    taniaaust1

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    It kind of blows my mind to see one of the Wessely croonies, Micheal Sharpe lecturing on "ethics".

    I guess this whole thing is another attempt to try to downplay the results of PACE...and make people think it is us with the issue. They want to distract from what is really going on, they want to stop people looking further by stopping them from listening to us

    I wish this blame the patient group thing would stop. Its harrassment of us. We wouldnt of been putting in many FOI requests if the info from the bad science wasnt being hidden from us.
     
  16. lilpink

    lilpink Senior Member

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    The lecture IS vexatious. It's the embodiment of that behaviour.
     
  17. Chrisb

    Chrisb Senior Member

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    The subject should be interesting. An ethics seminar on Sharpe practice.
     
  18. slysaint

    slysaint Senior Member

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    Was surprised to find this post retweeted by Sharpe:
    Trish Groves‏@trished Jan 23


    We need less research, better research, research done for right reasons http://www.bmj.com/content/308/6924/283… from 1994 @BMJ_Latest Now truer than ever

    http://www.bmj.com/content/308/6924/283

    "
    The scandal of poor medical research
    We need less research, better research, and research done for the right reasons


    ...What, then, should we think about researchers who use the wrong techniques (either wilfully or in ignorance), use the right techniques wrongly, misinterpret their results, report their results selectively, cite the literature selectively, and draw unjustified conclusions? We should be appalled. Yet numerous studies of the medical literature, in both general and specialist journals, have shown that all of the above phenomena are common.1 2 3 4 5 6 7 This is surely a scandal."

    !!!!!!!!!!!!!!
    eta: followed this link a bit and found this:


    BMC Medical Evidence‏@MedicalEvidence Jun 7


    ICMJE announce data sharing statements for clinical trials:
    "
    A requirement of the International Committee of Medical Journal Editors

    The International Committee of Medical Journal Editors (ICMJE) believes there is an ethical obligation to responsibly share data generated by interventional clinical trials because trial participants have put themselves at risk. In January 2016 we published a proposal aimed at helping to create an environment in which the sharing of deidentified individual participant data becomes the norm."
    http://www.bmj.com/content/357/bmj.j2372
    https://twitter.com/MedicalEvidence?lang=en
    [​IMG]
     
    Last edited: Jun 12, 2017
  19. Barry53

    Barry53 Senior Member

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    Why don't you just say what you mean Jonathan :rofl::p;) (Joke, in case anyone is in any doubt).
     
  20. Barry53

    Barry53 Senior Member

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    It's classic though, perpetrators trying to claim the moral high ground they have been identified as lacking for so long.
     

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