"Spreading the Word"

[Dolphin]

"Spreading the Word"
(Posted on December 9, 2016 by mrspoonseeker)

https://goo.gl/hyZKGG
i.e.
https://spoonseeker.com/2016/12/09/spreading-the-word/

On CBT, the PACE Trial, etc.
Thoughtful and well-referenced piece.

 

[Dolphin]

There is a thread covering the 2 Phil Hammond article
http://forums.phoenixrising.me/index.php?threads/private-eye-me-cluster-bomb.48034/
but I thought this blog post is its own thread.

 

[alex3619]

This article touches many of the major points quite eloquently, but this is of more use for those who are new to the arguments. We keep demonstrating the wheel to the naysayers, and they keep saying it cannot work even though we prove it does, again and again and again. Journalism is a failing profession globally, largely due to economic factors, but maintaining journalistic standards is one of the things needed to save the profession.

 

[CFS_for_19_years]

Comment from Dr. Nigel Speight
https://spoonseeker.com/2016/12/09/spreading-the-word/#comment-817

Lets be grateful for the extent to which MD/Phil Hammond has got it right. It is remarkable considering that Bath puts so much emphasis on CBT and GET He doesn’t seem to be aware of the abuse of families by child Protection proceedings – maybe we should try to open a dialogue with him

Actually, CBT is not the “only” therapy shown to be supposedly effective in ME. Immunoglobulin has also been shown to be effective in RCTs, and the York review for the CMO’s report highlighted this, only for any mention of IgG to be omitted from the summary. it is even mentioned in the 2004 Paediatric College guidelines, though discounted then on grounds of “risk from blood products” (in fact the UK uses IgG from the USA, free from CJD)

If it were not for the influence of the psychiatric lobby there would have been further trials of IgG. Of course, the fact that it can work (at least on some people) rather undermines the psychogenic theory

I attach a list of references

And of course there is Rituximab

Nigel Speight

 

[slysaint]

extracts:
"Dr Hammond has his own ideas about what it will take to get the message about PACE across. He says: “For the PACE researchers to accept (the) reanalysis would require it to be published in a credible, peer-reviewed journal with independent analysis that is free from bias.” I hope he will forgive me for a few moments while I split my sides laughing at that one. PACE itself was peer-reviewed and look what howlers got through that process."

"As the godfather of PACE, Sir Simon Wessely, inadvertently revealed, they always knew exactly where they wanted to get to. They simply made whatever adjustments they needed in order to get there. They live in a world where they are right, patients are wrong, and the facts can be changed to support that. I doubt they’re open to any kind of reason."

"If you are reading this Dr Hammond – and I know you have found your way to my blog before – then I am grateful for the two articles you have written, but I wish you’d go on and finish the job. You called this latest article ‘Trial on Trial’ but in fact you only mentioned PACE in passing. There is so much more to be said. I really do believe that the whole issue of PACE – and ME in general – would be an excellent subject for a Private Eye expose. Someone is going to make their mark on history – to say nothing of helping a lot of sick people – by writing it sometime, so it might as well be you. Then maybe you will be able to give up the day job… Which all in all might be for the best."