Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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Sponsorship please for James C. Coyne "PACE scandal" event in Belfast 9th Feb

Discussion in 'Fundraising' started by Keela Too, Jan 19, 2016.

  1. Keela Too

    Keela Too Sally Burch

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    N.Ireland
    James C Coyne will be speaking at two events in Belfast in early February 2016.

    The second of these, on Tuesday 9th February, is to be held in Parliament Buildings, Stormont, and is aimed at medical professionals and key decision makers for Northern Ireland. (The first event will be held in Belfast Castle on Sunday 7th February and is open to all).

    Hope 4 ME & Fibro Northern Ireland are co-hosting this event with Jo-Anne Dobson MLA. We are currently sending out invitations and compiling delegate information packs.

    Our charity is run entirely by patient volunteers and we receive no core government funding. We rely entirely on small government grants, voluntary donations and fundraising events to make ends meet.

    This event is part of our campaign towards establishing a consultant led clinic based on sound biomedical principles (such as the CCC) for Northern Ireland. Also we hope it will add pressure to the demand for an urgent review of the UK NICE guidelines for "CFS/ME".

    The Stormont talk will be recorded (thanks to sponsorship from the Irish ME Trust) and we hope to make the resulting video available on You Tube soon after the event .

    Should any of our friends on PR wish to sponsor this event (even a couple of ££ will allow us to put more material in the information packs) then please use this link.

    https://mydonate.bt.com/events/jamescoyneni/271212

    Alternatively donations can be made using Paypal to: hope4mefibro@outlook.com
    (Please state in the comment box that your donation is intended to be used for this event.)

    Many thanks.

    Sally Burch
    Trustee Hope 4 ME & Fibro NI

    Little by little, hopefully we can chip away at the biopsychosocial school's hold over the treatments we are offered! :)
     
  2. Esther12

    Esther12 Senior Member

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    Good luck promoting the event and working to attract a good audience. I have no idea how to do things like that. Would getting constituents/patients to promote it directly to MPs/doctors be useful? (You probably already have a plan).

    Biscuits! Everyone comes to meetings for biscuits.
     
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  3. Sasha

    Sasha Fine, thank you

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    But only if they're chocolate.

    This :cookie: is supposedly a biscuit but it looks like frogspawn to me.
     
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  4. Keela Too

    Keela Too Sally Burch

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    Yes, yes, and yes! Just getting our act together on all those fronts! :)
    @Esther12
     
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  5. Sasha

    Sasha Fine, thank you

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    A little bump for this...

    Needs £700, already has £232.
     
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  6. lazybones

    lazybones

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    Newry, Northern Ireland
    Hi Sasha. Sally is having difficulties with getting on here, would you please contact her by email at the charity address, mark FAO Sally, please
    hope4mefibro@outlook.com
    Thank you.
     

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