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Spirulina anyone??

Discussion in 'General Treatment' started by RUkiddingME, Nov 14, 2011.

  1. RUkiddingME

    RUkiddingME Senior Member

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    Just started taking Spirulina (blue-green algae) a few days ago after reading about it's immune boosting properties. Tonight I came across a few sites that mentioned Spirulina should not be used if you have an auto-immune disease as it could seriously make your symptoms worse. ME/CFS was not listed although I have read that it's an auto-immune and neuro-immune disease. Which is it? Anyone tried this stuff?
     
  2. Sallysblooms

    Sallysblooms P.O.T.S. now SO MUCH BETTER!

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    Southern USA
    It is one of the really good ingredients of my Green's First powder I add to my smoothie daily. My smoothie is amazing for immunity.
     
  3. baccarat

    baccarat Senior Member

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    No thanks.
    I used to get loads of the stuff in the early stages of my illness. It alleviated fatigue but I'm sure I picked up bugs from it. The thing comes from water and is bound to be packed with all sorts of bad microorganisms. Some are too small to be filtered out. I subsequently learnt that it can be a source of liver flukes.
    For that reason Im staying well clear now of any algae related products, including chlorella.
    Good luck.
     
  4. L'engle

    L'engle moderate ME

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    I was thinking of getting spirulina. I ended up buying wheat grass instead. I gather they're somewhat similar.
     
  5. FunkOdyssey

    FunkOdyssey Senior Member

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    I tried it, before I was giving much thought to autoimmunity as a possibility in CFS. Sure enough it made me feel awful, flared up existing symptoms and began to trigger new ones. Real bad stuff in my particular case.
     
  6. endomeister

    endomeister

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    I have tried Spirulina. It made me ill, and at first I did not know why. Later, after some research, I was able to confirm that it can potently stimulate TNF-alpha, an inflammatory cytokine.

    I do not recommend it for most people for that reason. I have not had the same negative response to Sun Chlorella, however. It has benefited me greatly and helped my digestive system. YMMV.

    There are other supplements which can aggravate auto-inflammatory and autoimmune conditions.

    I have developed a chart of supplements which can help or worsen many CFS patients based on some preliminary research:

    http://is.gd/B4oJMb
     
    L'engle likes this.
  7. merylg

    merylg Senior Member

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    Hi endomeister,

    Thanks for your chart :Sign Good Job: . It's very interesting. I had my doubts about garlic...whether I was allergic to it, or sensitive to it??? Interesting as it's part of the Lillium family and I am allergic to Lilly flowers!!!

    I notice it's on your chart as a potent stimulator of TNF-alpha and therefore inflammatory :eek:

    Too bad it is in the Neuro Health Formula I have!!! Do you have some references I could read about it?

    Thanks,

    meryl :victory: PS I take Chlorella (Swisse), helps detox
     
  8. endomeister

    endomeister

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    I have seen conflicting information in regard to garlic. Here is a quote from an article: "Garlic derivatives have both a stimulatory (7) and inhibitory (79) effect on lymphocyte proliferation and LPS-induced TNF-alpha generation".

    Remember that with autoimmune and autoinflammatory conditions (like CFS, Behcet's Disease, etc), patients often greatly overproduce tnf-alpha and other inflammatory compounds in response to any stimulation. So, if a food has immunomodulatory effects which are both suppressive and stimulative, the stimulative effects may dominate.

    Here is a pubmed link with some information on alliin, a compound in garlic: http://www.ncbi.nlm.nih.gov/pubmed/10501628


    Remember, also, that stimulating tnf will lower glutathione levels as inflammation generates all kinds of toxins that glutathione must mop up.

    Garlic is also said to be rich in citrulline, a precursor for arginine. Arginine stimulates NO which is already in overdrive in some inflammatory conditions. In addition, a cause/trigger of some auto-inflammatory conditions are the herpes family viruses like HSV1/2, VZV, etc. These viruses are stimulated by arginine. This is yet another mechanism through which garlic may produce inflammation.

    To counter arginine, many of us take lysine (which in fact does help counter arginine and reduce inflammation).


    The upshot is be careful with garlic if you have any autoinflammatory or autoimmune condition, or sense it is causing problems for you.
     
  9. Sallysblooms

    Sallysblooms P.O.T.S. now SO MUCH BETTER!

    Messages:
    1,767
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    Southern USA

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